The Psychosocial Impact of Food Protein-Induced Enterocolitis Syndrome

Michelle C. Maciag1,2, Linda J. Herbert3, Scott H. Sicherer4, Michael C. Young1,2, Fallon Schultz5, Amity A. Westcott-Chavez5, Wanda Phipatanakul1,2, Theresa A. Bingemann6, Lisa M. Bartnikas1,2
1Department of Medicine, Division of Immunology, Boston Children's Hospital, Boston, Mass
2Harvard Medical School, Boston, Mass
3Division of Allergy and Immunology, Children's National Hospital, Washington, DC
4Department of Pediatrics, Division of Allergy and Immunology, Icahn School of Medicine at Mount Sinai, New York, NY
5International FPIES Association (I-FPIES), Point Pleasant Beach, NJ
6Department of Allergy and Immunology, University of Rochester School of Medicine and Dentistry, Rochester, NY

Tài liệu tham khảo

Leonard, 2015, Food protein-induced enterocolitis syndrome, Pediatr Clin North Am, 62, 1463, 10.1016/j.pcl.2015.07.011 Mehr, 2017, Food protein-induced enterocolitis syndrome in Australia: a population-based study, 2012-2014, J Allergy Clin Immunol, 140, 1323, 10.1016/j.jaci.2017.03.027 Nowak-Wegrzyn, 2019, Food protein-induced enterocolitis syndrome in the US-population-based study, J Allergy Clin Immunol, 144, 1128, 10.1016/j.jaci.2019.06.032 Lee, 2019, Differentiating acute food protein-induced enterocolitis syndrome from its mimics: a comparison of clinical features and routine laboratory biomarkers, J Allergy Clin Immunol Pract, 7, 471, 10.1016/j.jaip.2018.10.020 Schultz, 2014, Food protein-induced enterocolitis syndrome from the parent perspective, Curr Opin Allergy Clin Immunol, 14, 263, 10.1097/ACI.0000000000000059 Nowak-Wegrzyn, 2017, International consensus guidelines for the diagnosis and management of food protein-induced enterocolitis syndrome: executive summary-workgroup report of the adverse reactions to Foods Committee, American Academy of Allergy, Asthma & Immunology, J Allergy Clin Immunol, 139, 1111, 10.1016/j.jaci.2016.12.966 Maciag, 2020, A slice of food protein-induced enterocolitis syndrome (FPIES): insights from 441 children with FPIES as provided by caregivers in the International FPIES Association, J Allergy Clin Immunol Pract, 8, 1702, 10.1016/j.jaip.2020.01.030 Greenhawt, 2016, A validated index to measure health-related quality of life in patients with food protein-induced enterocolitis syndrome, J Allergy Clin Immunol, 137, 1251, 10.1016/j.jaci.2015.09.056 Cohen, 2004, Development of a questionnaire to measure quality of life in families with a child with food allergy, J Allergy Clin Immunol, 114, 1159, 10.1016/j.jaci.2004.08.007 Cohen, 1988 Cohen, 1983, A global measure of perceived stress, J Health Soc Behav, 24, 385, 10.2307/2136404 Meyer, 1990, Development and validation of the Penn State Worry Questionnaire, Behav Res Ther, 28, 487, 10.1016/0005-7967(90)90135-6 Leyfer, 2006, Examination of the utility of the beck anxiety inventory and its factors as a screener for anxiety disorders, J Anxiety Disord, 20, 444, 10.1016/j.janxdis.2005.05.004 Beck, 1988, An inventory for measuring clinical anxiety: psychometric properties, J Consul Clin Psychol, 56, 893, 10.1037/0022-006X.56.6.893 Knibb, 2015, Parental confidence in managing food allergy: development and validation of the food allergy self-efficacy scale for parents (FASE-P), Clin Exp Allergy, 45, 1681, 10.1111/cea.12599 Spence, 2001, The structure of anxiety symptoms among preschoolers, Behav Res Ther, 39, 1293, 10.1016/S0005-7967(00)00098-X Spence, 1998, A measure of anxiety symptoms among children, Behav Res Ther, 36, 545, 10.1016/S0005-7967(98)00034-5 Spence, 1999 Nauta, 2004, A parent-report measure of children's anxiety: psychometric properties and comparison with child-report in a clinic and normal sample, Behav Res Ther, 42, 813, 10.1016/S0005-7967(03)00200-6 Yule, 1997 Lau, 2014, Anxiety and stress in mothers of food-allergic children, Pediatr Allergy Immunol, 25, 236, 10.1111/pai.12203 Birdi, 2016, Quality of life, stress, and mental health in parents of children with parentally diagnosed food allergy compared to medically diagnosed and healthy controls, J Allergy, 2016, 1497375 Stein, 2015, Generalized anxiety disorder, N Engl J Med, 373, 2059, 10.1056/NEJMcp1502514 Knibb, 2012, The psychological impact of diagnostic food challenges to confirm the resolution of peanut or tree nut allergy, Clin Exp Allergy, 42, 451, 10.1111/j.1365-2222.2011.03905.x Knibb, 2013, The psychosocial impact of an activity holiday for young children with severe food allergy: a longitudinal study, Pediatr Allergy Immunol, 24, 368, 10.1111/pai.12074