The Impact of Tourette’s Syndrome in the School and the Family: Perspectives from Three Stakeholder Groups
Tóm tắt
Từ khóa
Tài liệu tham khảo
Abwender, D. A., Como, P. G., Kurlan, R., Parry, K., Fett, K. A., Cui, L., et al. (1996). School problems in Tourette’s syndrome. Archives of Neurology, 53, 509–511.
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, 4th ed (DSM-IV-TR). Washington, DC: American Psychiatric Association.
Art, B., De Roo, L., Willems, S., & De Maeseneer, J. (2008). An interdisciplinary community diagnosis experience in an undergraduate medical curriculum: development at Ghent University. Academic Medicine, 83, 675–683.
Baanders, A. N., & Heijmans, M. J. (2007). The impact of chronic diseases. The partner’s perspective. Family & Community Health, 30, 305–317.
Bjerrum, L., Hamm, L., Toft, B., Munck, A., & Kragstrup, J. (2002). Do general practitioner and patient agree about the risk factors for ischaemic heart disease. Scandinavian Journal of Primary Health Care, 20, 16–21.
Boeije, H. R., Duijnstee, M. S., & Grypdonck, M. H. (2003). Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health & Social Care in the Community, 11, 242–252.
Carter, A., Pauls, D. L., Leckman, J. F., & Cohen, D. J. (1994). A prospective longitudinal Study of Gilles de la Tourette’s Syndrome. Journal of the American Academy of Child and Adolescent Psychiatry, 33, 377–385.
Champion, L. M., Fulton, W. A., & Shady, G. A. (1988). Tourette Syndrome and social functioning in a Canadian population. Neuroscience and Biobehavioral Reviews, 12, 255–257.
Chang, H. L., Tu, M. J., & Wang, H. S. (2004). Tourette’s syndrome: psychopathology in adolescents. Psychiatry and Clinical Neurosciences, 58, 353–358.
Channon, S., Crawford, S., Vakili, K., & Robertson, M. (2003). Real-life-type problem solving in Tourette Syndrome. Cognitive and Behavioral Neurology, 16, 3–15.
Comings, D. E., & Comings, B. G. (1987). A controlled study of Tourette syndrome. I. Attention-deficit disorder, learning disorders, and school problems. American Journal of Human Genetics, 41, 701–741.
Cooke, L. P. (2009). Gender equity and fertility in Italy and Spain. Journal of Social Policy, 38, 123–140.
Cooper, C., Robertson, M. M., & Livingston, G. (2003). Psychological morbidity and caregiver burden in parents of children with Tourette’s disorder and psychiatric comorbidity. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 1370–1375.
Courts, N. F., Newton, A. N., & McNeal, L. J. (2005). Husbands and wives living with multiple sclerosis. The Jounal of Neuroscience Nursing, 37, 20–27.
Davis, R. E., Dolan, G., Thomas, S., Atwell, C., Mead, D., Nehammer, S., et al. (2003). Exploring doctor and patient views about risk communication and shared decision-making in the consultation. Psychological Reports, 6, 198–207.
Davis, K. K., Davis, J. S., & Dowlwe, L. O. (2004). In motion, out of place: the public space(s) of Tourette Syndrome. Social Science & Medicine, 59, 103–112.
Debes, N., Hjalgrim, H., & Skov, L. (2010). The presence of attention-deficit hyperactivity disorder (ADHD) and obssesive-compulsive disorder worsen psychosocial and educational problems in Tourette syndrome. Journal of Child Neurology, 25, 171–181.
De Lange, N., & Oliver, M. A. J. (2004). Mothers’ experiences of aggression in their Tourette’s Syndrome children. International Journal for the Advancement of Counselling, 26, 65–77.
Del Pino-Casado, R., Frías-Osuna, A., & Palomino-Moral, P. A. (2011). Subjective burden and cultural motives for caregiving in informal caregivers of older people. Journal of Nursing Scholarship, 43, 282–291.
Dykens, E., Leckman, J., Riddle, M., Hardin, M., Schwartz, S., & Cohen, D. (1990). Intellectual, academic, and adaptive functioning of Tourette syndrome children with and without attention deficit disorder. Journal of Abnormal Child Psychology, 18, 107–115.
Eapen, V., & Crncec, R. (2009). Tourette Syndrome in children and adolescents: special considerations. Journal of Psychosomatic Research, 67, 525–532.
Eapen, V., & Sachdev, P. (2008). Managing tic disorders: an update on Tourette Syndrome. Medicine Today, 9, 14–21.
Eapen, V., Robertson, M., Zeitlin, H., & Kurlan, R. (1997). Gilles de la Tourette’s syndrome in special education schools: a United Kingdom study. Journal of Neurology, 244, 378–382.
Eddy, C. M., Cavanna, A. E., Gulisano, M., Agodi, A., Barchitta, M., Cali, P., et al. (2011a). Clinical correlates of quality of life inTourette Syndrome. Movement Disorders, 26, 735–738.
Eddy, C. M., Rizzo, R., Gulisano, M., Agodi, A., Barchitta, M., Cali, P., et al. (2011b). Quality of life in young people with Tourette syndrome: a controlled study. Journal of Neurology, 258, 291–301.
Edell-Fisher, B. H., & Motta, R. W. (1990). Tourette syndrome: relation to children and parents’ self-concepts. Psychological Reports, 66, 539–545.
Elstner, K., Selai, C. E., Trimble, M. R., & Robertson, M. M. (2001). Quality of life (QOL) of patients with Gilles de la Tourette’s syndrome. Acta Psychiatrica Scandinavica, 103, 52–59.
Ghanizadeh, A., & Mosallaei, S. (2009). Psychiatric disorders and behavioral problems in children and adolescents with Tourette syndrome. Brain & Development, 31, 15–19.
Glogowska, M., & Campbell, R. (2004). Parental views of surveillance of early speech and language difficulties. Children & Society, 18, 266–277.
Gorman, D. A., Thompson, N., Plessen, K. J., Robertson, M. M., Leckman, J. F., & Peterson, B. S. (2010). Psychosocial outcome and psychiatric comorbidity in older adolescents with Tourette syndorme: controlled study. The British Journal of Psychiatry, 197, 36–44.
Jin, R., Zheng, R. Y., Huang, W. W., Xu, H. Q., Shao, B., Chen, H., et al. (2005). Epidemiological survey of tourette syndrome in children and adolescents in Wenzhou of P.R. China. European Journal of Epidemiology, 20, 925–927.
Kadejsö, B., & Gillberg, C. (2000). Tourette’s disorder: epidemiology and comorbidity in primary school children. Journal of the American Academy of Child and Adolescent Psychiatry, 38, 548–555.
Kenney, C., Kuo, S. H., & Jimenez-Shahed, J. (2008). Tourette’s syndrome. American Family Physician, 77, 651–658.
Lanzi, G., Zambrino, C. A., Termine, C., Palestra, M., Ferrari Ginevra, O., Orcesi, S., et al. (2004). Prevalence of tics disorders among primary school students in the city of Pavia, Italy. Archives of Diseases in Childhood, 89, 45–47.
Leckman, J. F. (2006). Phenomenology of tics and natural history of tic disorders. Brain & Development, 99, 1–16.
Leckman, J. F., Zhang, H., Vitale, A., Lahnin, F., Lynch, K., & Bondi, C. (1998). Course of tic severity in Tourette syndrome: the first two decades. Pediatrics, 102, 14–19.
Leckman, J. F., Bloch, M. H., Scahill, L., & King, K. A. (2006). Tourette syndrome: the self under siege. Journal of Child Neurology, 21, 642–649.
Lee, M. Y., Chen, Y. C., Wang, H. S., & Chen, D. R. (2007). Parenting stress and related factors in parents of children with Tourette Syndrome. The Journal of Nursing Research, 15, 165–174.
Losada, A., Knight, B. G., & Márquez, M. (2003). Cognitive barriers against caregiving to elderly dependent individuals. The influence of sociocultural variables. Revista Española de Geriatría y Gerontología, 38, 116–123.
Maya Jariego, I. (2009). Sentido de la comunidad y potenciación comunitaria. Miriada, 3, 69–109.
Morse, J. M., & Field, P. A. (1995). Qualitative research methods health professionals. Thousand Oaks: Sage Publications.
O’Brien, R., Wineman, N. M., & Nealon, N. R. (1995). Correlates of the caregiving process in multiple sclerosis. Scholarly Inquiry for Nursing Practice, 9, 323–342.
Packer, L. E. (2005). Tic-related school problems: impact on functioning, accommodations, and interventions. Behavior Modification, 29, 876–899.
Pappert, E. J., Goetz, C. G., Louis, E. D., Blasucci, L., & Leurgans, S. (2003). Objective assessments of longitudinal outcome n Gilles de la Tourette’s syndrome. Neurology, 61, 936–940.
Perlick, D. A., Nelson, A. H., Mattias, K., Selzer, J., Kalvin, C., Wilber, C. H., et al. (2011). In our own voice-family companion: reducing self-stigma of family members of persons with serious mental illness. Psychiatric Services, 62, 1456–1462.
Pinazo, S. H., & Ferrero, C. (2003). Impacto psicosocial del acogimiento familiar en familia extensa. El caso de las abuelas y abuelos acogedores. Revista Multidisciplinar de Gerontología, 13, 89–101.
Pringsheim, T., Lang, A., Kurlan, R., Pearce, M., & Sandor, P. (2009). Understanding disability in Tourette syndrome. Developmental Medicine and Child Neurology, 51, 468–472.
Quine, S. (1999). Focus groups. In: C. B. Kerr, J. R. Taylor, & G. S. Heard (Eds.) Handbook of public health methods. Sydney: McGraw-Hill/Spanish Imports: 527–532. Third edition. London: Sage Publications.
Rindner, E. C. (2007). Living with Tourette’s Syndrome. Journal of Psychosocial Nursing and Mental Health Services, 45, 19–23.
Rivera-Navarro, J., Cubo, E., & Almazán, J. (2009). The diagnosis of Tourette’s Syndrome: communication and impact. Clinical Child Psychology and Psychiatry, 14, 13–23.
Roessner, V., Becker, A., Banaschewski, T., Freeman, R. D., & Rothenberger, A. (2007). Developmental pscychopathology of children and adolescents with Tourette syndrome –impact of ADHD. European Child & Adolescent Psychiatry, 16(Suppl. 1), 24–35.
Sandelowski, M. (2000). Focus on research methods. Whatever happened to qualitative description? Research in Nursing & Health, 23, 334–340.
Schapiro, N. A. (2002). Dude you don’t have Tourette’s: “Tourette’s syndrome, beyond the tics. Pediatric Nursing, 28(243–246), 249–253.
Serketich, W. J., & Dumas, J. E. (1996). The effectiveness of behavioral parents training to modify antisocial behaviour in children. A meta analysis. Behavior Therapy, 27, 171–186.
Shady, G. A., Fulton, W. A., & Champion, L. M. (1998). Tourette syndrome and educational problems in Canada. Neuroscience and Biobehavioral Reviews, 12, 263–265.
Stefl, M. S., & Rubin, M. (1985). Tourette Syndrome in the classroom: special problems, special needs. The Journal of School Health, 55, 72–75.
Stokes, A., Bawden, H. N., Camfield, P. R., Backman, J. E., & Dooley, J. M. (1991). Peer problems in Tourette’s disorder. Pediatrics, 87, 936–942.
Storch, E. A., Merlo, L. J., Lack, C., Milson, V. A., Geffken, G. R., Goodman, W. K., et al. (2007a). Quality of life in youth with Tourette’s syndrome and chronic tic disorder. Journal of Clinical Child and Adolescent Psychology, 36, 217–227.
Storch, E. A., Murphy, T. K., Chase, R. M., Keeley, M., Goodman, W. K., Murray, M., et al. (2007b). Peer victimization in youth with Tourette’s Syndrome and chronic tic disorder: relations with tic severity and internalizing symptoms. Journal of Psychopathology and Behavioral Assessment, 29, 211–219.
Suárez, M. R., Olarte, S. M., Ana, M. F., & González, U. C. (2005). Is What I have just a cold or just is ti dengue? Addressing the gap between the politics of dengue control and daily life in Villavicencio-Colombia? Social Science & Medicine, 61, 495–502.
Tanner, C. M., & Goldman, S. M. (1997). Epidemiology of Tourette syndrome. Neurological Clinics, 15, 395–402.
Wanderer, S., Roessner, V., Freeman, R., Bock, N., Rothenberger, A., & Becker, A. (2012). Relationship of obsessive-compulsive disorder to age-related comorbidity in children and adolescents with Tourette syndrome. Journal of Developmental and Behavioral Pedriatics, 33, 124–133.
Wilson, K. A., Dowling, A. J., Abdolell, M., & Tannock, I. F. (2000). Perception of quality of life by patients, partners and treating physicians. Quality of Life Research, 9, 1041–1052.
Woods, D. W., & Marcks, B. A. (2005). Controlled evaluation of an educational intervention used to modify peer attitudes and behavior toward persons with Tourette’s Syndrome. Behavior Modification, 29, 900–912.