The Illusion of Patient Choice in End-of-Life Decisions

The American Journal of Geriatric Psychiatry - Tập 10 - Trang 365-372 - 2002
Mark D. Sullivan1
1University of Washington Dept. of Psychiatry and Behavioral Sciences, Medical History, and Ethics

Tài liệu tham khảo

Orentlicher, 1992, The illusion of patient choice in end-of-life decisions, JAMA, 267, 2101, 10.1001/jama.1992.03480150107047 1997, 48 Emanuel, 1998, The promise of a good death, Lancet, 351, 21, 10.1016/S0140-6736(98)90329-4 Fann, 2000, The epidemiology of delirium: a review of studies and methodological issues, Semin Clin Neuropsychiatry, 5, 2 Gostin, 1997, Deciding life and death in the courtroom: from Quinlan to Cruzan, Glucksberg, and Vacco—a brief history and analysis of constitutional protection of the “right to die.”, JAMA, 278, 1523, 10.1001/jama.1997.03550180073041 Firlik, 1991, Margo's logo (letter), JAMA, 265, 201, 10.1001/jama.1991.03460020055013 Dworkin, 1993, 226 Dresser, 1995, Dworkin on dementia: elegant theory, questionable policy, Hastings Center Report, 25, 36, 10.2307/3527839 O'Neill, 1984, Paternalism and partial autonomy, J Med Ethics, 10, 173, 10.1136/jme.10.4.173 Allan, 1994, Traditions and transitions, Psychoanal Rev, 81, 79 Singer, 1999, Quality end-of-life care: patients' perspectives, JAMA, 281, 163, 10.1001/jama.281.2.163 The SUPPORT Principal Investigators, 1995, A controlled trial to improve care for seriously ill hospitalized patients: the study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT), JAMA, 274, 1591, 10.1001/jama.1995.03530200027032 Murphy, 2000, Description of the SUPPORT intervention, J Am Geriatr Soc, 48, S154, 10.1111/j.1532-5415.2000.tb03125.x Lynn, 2000, Ineffectiveness of the SUPPORT intervention: review of explanations, J Am Geriatr Soc, 48, S206, 10.1111/j.1532-5415.2000.tb03134.x Teno, 1997, Advance directives for seriously ill hospitalized patients: effectiveness with the Patient Self-Determination Act and the SUPPORT intervention. SUPPORT Investigators: Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment, J Am Geriatr Soc, 45, 500, 10.1111/j.1532-5415.1997.tb05178.x Hofmann, 1997, Patient preferences for communication with physicians about end-of-life decisions. SUPPORT investigators: Study to Understand Prognoses and Preference for Outcomes and Risks of Treatment, Ann Intern Med, 127, 1, 10.7326/0003-4819-127-1-199707010-00001 Molloy, 2000, Systematic Implementation of an advance directive program in nursing homes: a randomized, controlled trial, JAMA, 283, 1437, 10.1001/jama.283.11.1437 Suhl, 1994, Myth of substituted judgment: surrogate decision-making regarding life support is unreliable, Arch Intern Med, 154, 90, 10.1001/archinte.1994.00420010122014 Layde, 1995, Surrogates' predictions of seriously ill patients' resuscitation preferences, Arch Fam Med, 4, 518, 10.1001/archfami.4.6.518 Mattimore, 1997, Surrogate and physician understanding of patients' preferences for living permanently in a nursing home, J Am Geriatr Soc, 45, 818, 10.1111/j.1532-5415.1997.tb01508.x Covinsky, 1996, Is economic hardship on the families of the seriously ill associated with patient and surrogate care preferences? SUPPORT investigators, Arch Intern Med, 156, 1737, 10.1001/archinte.1996.00440140177019 Emanuel, 1992, Proxy decision-making for incompetent patients, JAMA, 267, 2067, 10.1001/jama.1992.03480150073040 Pritchard, 1998, Influence of patient preferences and local health system characteristics on the place of death. SUPPORT investigators: Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment, J Am Geriatr Soc, 46, 1242, 10.1111/j.1532-5415.1998.tb04540.x Annas, 1995, How we lie, Hastings Center Report, 25, S12, 10.2307/3527850 Lynn, 2000, Rethinking fundamental assumptions: SUPPORT's implications for future reform, J Am Geriat Soc, 48, S214, 10.1111/j.1532-5415.2000.tb03135.x Phillips, 2000, Findings from SUPPORT and HELP: an introduction. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Hospitalized Elderly Longitudinal Project, J Am Geriatr Soc, 48, S1, 10.1111/j.1532-5415.2000.tb03118.x Callahan, 1995, Once again, reality: now where do we go?, Hastings Center Report, 25, S33, 10.2307/3527857 Lynn, 1997, Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT investigators: Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment, Ann Intern Med, 126, 97, 10.7326/0003-4819-126-2-199701150-00001 Quill, 1996, Physician recommendations and patient autonomy: finding a balance between physician power and patient choice, Ann Intern Med, 125, 763, 10.7326/0003-4819-125-9-199611010-00010 Terry, 1999, End-of-life decision-making: when patients and surrogates disagree, J Clin Ethics, 10, 286, 10.1086/JCE199910403 Johnston, 1998, Patient and physician roles in end-of-life decision-making, J Gen Intern Med, 13, 43, 10.1046/j.1525-1497.1998.00008.x AMA Council on Ethical and Judicial Affairs, 1999, Medical futility in end-of-life care, JAMA, 281, 937, 10.1001/jama.281.10.937 Patrick, 1993 Stewart, 1999, The concept of quality of life of dying persons in the context of health care, J Pain Symptom Manage, 17, 93, 10.1016/S0885-3924(98)00131-6 Neuhaus, 1993, Commentary, 214 Lynn, 1997, Measuring quality of care at the end of life: a statement of principles, J Am Geriatr Soc, 45, 526, 10.1111/j.1532-5415.1997.tb05184.x Liao, 2000, Quality of the last year of life of older adults: 1986 vs. 1993, JAMA, 283, 512, 10.1001/jama.283.4.512 Covinsky, 1999, Health status versus quality of life in older patients: does the distinction matter?, Am J Med, 106, 435, 10.1016/S0002-9343(99)00052-2 Tsevat, 1998, Health values of hospitalized patients 80 years or older. HELP investigators: Hospitalized Elderly Longitudinal Project, JAMA, 279, 371, 10.1001/jama.279.5.371 Fowler, 1999, Methodological challenges for measuring quality of care at the end of life, J Pain Symptom Manage, 17, 114, 10.1016/S0885-3924(98)00133-X Struttmann, 1999, Quality-of-life assessment in the old using the WHOQOL 100: differences between patients with senile dementia and patients with cancer, Int Psychogeriatr, 11, 273, 10.1017/S1041610299005839 Brod, 1999, Conceptualization and measurement of quality of life in dementia: the Dementia Quality of Life instrument (DQoL), Gerontologist, 39, 25, 10.1093/geront/39.1.25 Teno, 1997, Defining and measuring outcomes in end-stage dementia, Alzheimer Dis Assoc Disord, 11, S25 Finucane, 1999, Tube-feeding in patients with advanced dementia: a review of the evidence, JAMA, 282, 1365, 10.1001/jama.282.14.1365