The Attitudes and Intention to Participate in Hemoglobinopathy Carrier Screening in The Netherlands among Individuals from Turkish, Moroccan, and Surinamese Descent

Journal of Environmental and Public Health - Tập 2013 - Trang 1-8 - 2013
Sylvia van der Pal1, N.M.C. van Kesteren2, J.P. van Wouwe1, Paula van Dommelen2, Symone Detmar1
1Department of Child Health, Netherlands Organization for Applied Scientific Research (TNO), P.O. Box 2215, 2301 CE Leiden, The Netherlands.
2Department of Life Style, Netherlands Organization for Applied Scientific Research (TNO), P.O. Box 2215, 2301 CE Leiden, The Netherlands.

Tóm tắt

Objective. To explore factors that influence intention to participate in hemoglobinopathy (HbP) carrier screening under Dutch subjects at risk, since HbP became more common in The Netherlands.Method. Structured interviews with 301 subjects from Turkish, Moroccan, or Surinamese ethnicity.Results. Half of the participants were familiar with HbP, 27% with carrier screening. Only 55% correctly answered basic knowledge items. After balanced information, 83% percent of subjects express intention to participate in HbP carrier screening. Intention to participate was correlated with (1) anticipated negative feelings, (2) valuing a physician's advice, and (3) beliefs on significance of carrier screening. Risk perception was a significant determinant, while respondents were unaware of HbP as endemic in their country of birth. Respondents preferred screening before pregnancy and at cost < 50€.Conclusion. These findings show the importance of informing those at risk by tailored health education. We propose easy access at no costs for those willing to participate in HbP carrier screening.

Từ khóa


Tài liệu tham khảo

10.1258/096914107781261882

10.1080/03630260802004269

2004, British Medical Journal, 329, 1134, 10.1136/bmj.329.7475.1134

10.1159/000091486

10.1111/j.1751-553X.2006.00836.x

2006, Turkish Journal of Hematology, 23, 84

10.1089/gte.2007.0066

10.1097/GIM.0b013e318065a9e8

10.1080/03630260701297204

10.1080/00365510601046557

10.1080/13557858.2010.541902

10.1016/j.clinbiochem.2009.06.027

10.1097/01.gim.0000232461.11153.9a

10.1097/GIM.0b013e318188d04c

2009, Nederlands Tijdschrift voor Geneeskunde, 153, 854

2009, Nederlands Tijdschrift voor Geneeskunde, 153, 858

10.1089/gtmb.2010.0232

2009, Tijdschrift voor Gezondheidswetenschappen, 87, 118, 10.1007/BF03082195

10.1038/ejhg.2009.173

2004, Cochrane Database of Systematic Reviews, 18

10.1037//0278-6133.11.3.170

1991, Organizational Behavior and Human Decision Processes, 50, 179, 10.1016/0749-5978(91)90020-T

1984, Health Education Quarterly, 11, 1, 10.1177/109019818401100101

10.1177/1359105304045383

10.1037/0278-6133.18.5.532

10.1089/gte.2004.8.80

10.1159/000314643

10.1016/j.socscimed.2005.08.041

2007, Molecular Genetics and Metabolism, 90, 353, 10.1016/j.ymgme.2006.11.001

10.1016/j.midw.2013.04.001

10.1002/pd.1391

Thông tin
Thông tin xuất bản

Journal of Environmental and Public Health

Tập 2013

1-8

Thông tin tác giả