Ten years of living with an injured spinal cord: A qualitative longitudinal study

Sanne Angel1
1Research unit of nursing and healthcare, Department of Public Health. Aarhus University. Denmark

Tài liệu tham khảo

Aaby, 2020, The associations of acceptance with quality of life and mental health following spinal cord injury: a systematic review, Spinal Cord, 58, 130, 10.1038/s41393-019-0379-9 Angel, 2009, Rehabilitation as a fight. A narrative case study of the first year after a spinal cord injury, Int. J. Qual. Stud. Health Well-being, 4, 28, 10.1080/17482620802393724 Angel, 2009, Getting on with life following a spinal cord injury: regaining meaning through six phases, Int. J. Qual. Stud. Health Well-being, 4, 39, 10.1080/17482620802393492 Angel, 2011, Rehabilitation after spinal cord injury and the influence of the professionals’ support (or lack thereof), JCN, 20, 1713 Angel, 2012, Placing rehabilitation and recovery after spinal cord injury into a biographical context. A U.S. versus Danish case comparison, J. Neurosci. Nurs, 44, 298, 10.1097/JNN.0b013e31826830a6 Angel, 2020, Sex life during the first ten years after spinal cord injury: a qualitative exploration, Sex Disabil, 38, 107, 10.1007/s11195-020-09620-9 Angel, 2019, Narrativ tilgang - adgang til at forstå patienten og støtte til patientens forståelse. (A narrative approach. A path towards understanding the patient and supporting the patient's understanding), Klinisk Sygepleje, 33, 284, 10.18261/issn.1903-2285-2019-04-03 Angel, 2020, Living a good life despite limitations 5 years post spinal cord injury, Spine Surg, 2, 1, 10.31487/j.SSG.2020.01.02 Barclay, 2019, The experiences of social and community participation of people with non-traumatic spinal cord injury, Aust. Occup. Ther. J, 66, 61, 10.1111/1440-1630.12522 Bourke, 2015, Attending to biographical disruption: the experience of rehabilitation following tetraplegia due to spinal cord injury, Disabil. Rehabil, 37, 296, 10.3109/09638288.2014.918188 Calman, 2013, A Developing longitudinal qualitative designs: lessons learned and recommendations for health services research, BMC Med. Res. Methodol, 13, 1, 10.1186/1471-2288-13-14 Chen, 2008, Living with a spinal cord injury: a grounded theory approach, J. Nurs. Healthc. Chronic Illn, 17, 116 Craig, 2017, Theory of adjustment following severe neurological injury: evidence supporting the spinal cord injury adjustment model, Horizons Neurosci. Res, 29, 117 Craig, 1994, Longitudinal investigation into anxiety and depression in the first 2 years following a spinal cord injury, Paraplegia, 32, 675 Dorsett, 2004, Depression and adjustment after spinal cord injury: a three-year longitudinal study, TSCIR, 9, 43 Dorsett, 2001 Grossoehme, 2016, Analyzing longitudinal qualitative data: the application of trajectory and recurrent cross‑sectional approaches, BMC Res. Notes, 9, 1 Hammell, 2004, Quality of life among people with high spinal cord injury living in the community, Spinal Cord, 42, 607, 10.1038/sj.sc.3101662 Hammell, 2007, Quality of life after spinal cord injury: a meta-synthesis of qualitative findings, Spinal Cord, 45, 124, 10.1038/sj.sc.3101992 Hancock, 1993, Anxiety and depression over the first year of spinal cord injury: a longitudinal study, Paraplegia, 31, 349 Kennedy, 2013, Perceptions of gain following spinal cord injury: a qualitative analysis, TSCIR, 19, 202 Kennedy, 2000, Anxiety and depression after spinal cord injury: a longitudinal analysis, Arch. Phys. Med. Rehabil, 81, 932, 10.1053/apmr.2000.5580 Koriat, 2000, Toward a psychology of memory accuracy, Annu. Rev. Psychol., 51, 481, 10.1146/annurev.psych.51.1.481 Laskiwski, 1993, The patient with spinal cord injury: the modification of hope and expressions of despair, Can. J. Rehabil., 6, 143 Lohne, 2004, Hope and despair: the awakening of hope following acute spinal cord injury-an interpretative study, IJNS, 41, 881 Lohne, 2005, Patients' experiences of hope and suffering during the first year following acute spinal cord injury, JCN, 14, 285 Lohne, 2009, Back to life again–patients’ experiences of hope three to four years after a spinal cord injury–a longitudinal study, Can. J. Neurosci. Nurs, 31, 20 Lohne, 2009, The incomprehensible injury - interpretations of patients’ narratives concerning experiences with an acute and dramatic spinal cord injury, Scand. J. Caring Sci, 23, 67, 10.1111/j.1471-6712.2007.00591.x Meade, 2015, It's all of the above: benefits of working for individuals with spinal cord injury, TSCIR, 21, 1 Morse J.M., O'Brian B. Preserving self: from victim, to patient, to disabled person. JAN. 1995;21(5):886–896. Morse, 1997, Responding to threats to integrity of self, ANS, 19, 21 Noe, 2017, The influence of clarification and threats on life situations: patients’ experiences 1 year after, Spinal Cord Ser. Cases, 6, 17006 Paul, 2013, Socioeconomic outcomes following spinal cord injury and the role of no-fault compensation: longitudinal study, Spinal Cord, 51, 919, 10.1038/sc.2013.110 Pretz, 2016, Trajectories of life satisfaction after spinal cord injury, Arch. Phys. Med. Rehabil, 97, 1706, 10.1016/j.apmr.2016.04.022 Ricoeur, 1976 Ricoeur, 1983 Ricoeur, 1986, Life: a story in search of a narrator, 121 Ricoeur, 1991, The model of the text: meaningful action considered as a text. Chapter 7, 144 Ricoeur, 1991, Explanation and understanding. Chapter 5, 105 Ricoeur, 1991, Life in quest of narrative, 20 Santo-Madeya, 2006, The meaning of living with spinal cord injury 5 to 10 years after the injury, West J. Nurs. Res., 28, 265, 10.1177/0193945905283178 Weitzner, 2011, Getting on with life: positive experiences of living with spinal cord injury, Qual. Health Res., 21, 1455, 10.1177/1049732311417726 Williams, 2018, Exploring narratives of physical activity and disability over time: a novel integrated qualitative methods approach, Psychol. Sport Exerc, 37, 10.1016/j.psychsport.2017.09.004