Survival Data and Predictors of Functional Outcome an Average of 15 Years after the Fontan Procedure: The Pediatric Heart Network Fontan Cohort

Congenital Heart Disease - Tập 10 Số 1 - Trang E30-E42 - 2015
Andrew M. Atz1, Victor Zak2, Lynn Mahony3, Karen Uzark4, Peter Shrader2, Dianne Gallagher2, Stephen M. Paridon5, Richard V. Williams6, Roger E. Breitbart7, Steven D. Colan7, Jonathan R. Kaltman8, Renée Margossian7, Sara K. Pasquali9, Kerstin Allen2, Wyman W. Lai10, Rosalind Korsin10, Bradley S. Marino11, Nicole Mirarchi5, Brian W. McCrindle12
1Department of Pediatrics; Medical University of South Carolina; Charleston SC USA
2New England Research Institutes, Watertown, Mass., USA
3Department of Pediatrics; University of Texas Southwestern Medical Center; Dallas Tex USA
4Department of Pediatrics, University of Michigan, Ann Arbor, Mich., USA
5Children's Hospital of Philadelphia, Philadelphia, Pa. USA
6Department of Pediatrics, University of Utah, Salt Lake City, Utah, USA
7Boston Children's Hospital; Boston Mass USA
8National Heart, Lung, and Blood Institute, Bethesda, MD USA
9Department of Pediatrics, Duke University Medical Center, Durham, NC, USA;
10Department of Pediatrics, Columbia University Medical Center, New York, NY, USA
11Cincinnati Children's Hospital Medical center, Cincinnati, Ohio USA
12The Hospital for Sick Children, University of Toronto, Toronto, Canada

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Mahle, 1999, Impact of early ventricular unloading on exercise performance in preadolescents with single ventricle Fontan physiology, J Am Coll Cardiol, 34, 1637, 10.1016/S0735-1097(99)00392-7

Rosenthal, 1995, Thromboembolic complications after Fontan operations, Circulation, 92, II287, 10.1161/01.CIR.92.9.287

Hirsch, 2008, Fontan operation in the current era: a 15-year single institution experience, Ann Surg, 248, 402, 10.1097/SLA.0b013e3181858286

Rychik, 2007, Protein-losing enteropathy after Fontan operation, Congenit Heart Dis, 2, 288, 10.1111/j.1747-0803.2007.00116.x

Hellstedt, 1994, Insurability issues facing the adolescent and adult with congenital heart disease, Nurs Clin North Am, 29, 331, 10.1016/S0029-6465(22)02736-0

Reid, 2004, Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects, Pediatrics, 113, e197, 10.1542/peds.113.3.e197

Marino, 2002, Outcomes after the Fontan procedure, Curr Opin Pediatr, 14, 620, 10.1097/00008480-200210000-00010

McCrindle, 2006, Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure, Circulation, 113, 1123, 10.1161/CIRCULATIONAHA.105.576660

Anderson, 2008, Contemporary outcomes after the Fontan procedure: a Pediatric Heart Network multicenter study, J Am Coll Cardiol, 52, 85, 10.1016/j.jacc.2008.01.074

Turner-Bowker, 2002, SF-36 Health Survey & SF Bibliography: Third Edition (1988-2000)

Varni, 2004, The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module, J Behav Med, 27, 297, 10.1023/B:JOBM.0000028500.53608.2c

Varni, 2002, The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making, J Behav Med, 25, 175, 10.1023/A:1014836921812

Landgraf, 1999, The CHQ User's Manual. Second Printing

Goossens, 2011, Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations, J Am Coll Cardiol, 57, 2368, 10.1016/j.jacc.2010.11.068

Khairy, 2008, Long-term survival, modes of death, and predictors of mortality in patients with Fontan surgery, Circulation, 117, 85, 10.1161/CIRCULATIONAHA.107.738559

Diller, 2010, Predictors of morbidity and mortality in contemporary Fontan patients: results from a multicenter study including cardiopulmonary exercise testing in 321 patients, Eur Heart J, 31, 3073, 10.1093/eurheartj/ehq356

D'Udekem, 2007, The Fontan procedure: contemporary techniques have improved long-term outcomes, Circulation, 116, I157

Paridon, 2008, A cross-sectional study of exercise performance during the first 2 decades of life after the Fontan operation, J Am Coll Cardiol, 52, 99, 10.1016/j.jacc.2008.02.081

Giardini, 2008, Natural history of exercise capacity after the Fontan operation: a longitudinal study, Ann Thorac Surg, 85, 818, 10.1016/j.athoracsur.2007.11.009

Trojnarska, 2009, Evaluation of exercise capacity with cardiopulmonary exercise test and B-type natriuretic peptide in adults with congenital heart disease, Cardiol J, 16, 133

Anderson, 2010, The Fontan patient: inconsistencies in medication therapy across seven pediatric heart network centers, Pediatr Cardiol, 31, 1219, 10.1007/s00246-010-9807-5

Atz, 2011, Late status of Fontan patients with persistent surgical fenestration, J Am Coll Cardiol, 57, 2437, 10.1016/j.jacc.2011.01.031

Gatzoulis, 2000, Definitive palliation with cavopulmonary or aortopulmonary shunts for adults with single ventricle physiology, Heart, 83, 51, 10.1136/heart.83.1.51

Moons, 2005, Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?, Heart, 91, 1193, 10.1136/hrt.2004.042234

Fekkes, 2001, Health-related quality of life in young adults with minor congenital heart disease, Psychol Health, 16, 239, 10.1080/08870440108405502

Lambert, 2009, Parent- vs. child-reported functional health status after the Fontan procedure, Pediatrics, 124, e942, 10.1542/peds.2008-1697

Idorn, 2013, Quality of life and cognitive function in Fontan patients, a population-based study, Int J Cardiol, 168, 3230, 10.1016/j.ijcard.2013.04.008

Fteropoulli, 2013, Quality of life of adult congenital heart disease patients: a systematic review of the literature, Cardiol Young, 23, 473, 10.1017/S1047951112002351