Mạng xã hội dành cho những người sống sót sau ung thư vú: một đánh giá tài liệu

Springer Science and Business Media LLC - Tập 11 - Trang 808-821 - 2017
Angela L. Falisi1, Kara P. Wiseman1, Anna Gaysynsky2, Jennifer K. Scheideler1, Daniel A. Ramin1, Wen-ying Sylvia Chou1
1Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, USA
2ICF International, Rockville, USA

Tóm tắt

Mạng xã hội có thể cung cấp hỗ trợ cho những cá nhân đang đối mặt với trải nghiệm phức tạp và khó khăn của bệnh ung thư. Một khối lượng tài liệu ngày càng tăng đã được công bố trong thập kỷ qua nghiên cứu về cách mà những người sống sót sau ung thư sử dụng mạng xã hội. Nghiên cứu này nhằm cung cấp một tổng hợp có hệ thống của tài liệu hiện tại nhằm thông tin đến thực hành giao tiếp sức khỏe ung thư và nghiên cứu về sự sống sót sau ung thư. Sử dụng hướng dẫn PRISMA, bốn cơ sở dữ liệu điện tử đã được tìm kiếm để thu thập các ấn phẩm về ung thư vú và mạng xã hội được xuất bản từ năm 2005 đến 2015. Mẫu cuối cùng bao gồm 98 ấn phẩm (13 bài bình luận và tổng quan, 47 nghiên cứu mô tả, và 38 nghiên cứu can thiệp). Các nghiên cứu can thiệp được đánh giá theo các đặc điểm chính và các biện pháp kết quả. Các nghiên cứu sử dụng phân tích nội dung được đánh giá thêm về mặt định tính. Nhóm hỗ trợ trực tuyến là nền tảng được nghiên cứu nhiều nhất, tiếp theo là bảng tin tương tác và diễn đàn web. Nghiên cứu hạn chế tập trung vào các quần thể không phải người da trắng. Sự an lành tâm lý xã hội là kết quả được đo lường phổ biến nhất. Trong khi sự tham gia mạng xã hội đã được đánh giá, ít biện pháp chuẩn hóa nào được xác định. Phân tích nội dung của các tương tác trên mạng xã hội phổ biến, mặc dù ít bài báo nào liên kết nội dung với kết quả sức khỏe. Tài liệu hiện tại làm nổi bật tác động và tiềm năng của mạng xã hội đối với những người sống sót sau ung thư vú. Các nghiên cứu trong tương lai nên xem xét việc kết nối sự tham gia và nội dung trên mạng xã hội với các kết quả tâm lý xã hội, hành vi, và sức khỏe thể chất. Các nhóm và cộng đồng trực tuyến có thể cải thiện sự an lành của những người sống sót sau ung thư vú bằng cách tạo cơ hội kết nối với các mạng xã hội rộng hơn, liên kết với những người khác đang đối mặt với những trải nghiệm ung thư tương tự, và thu thập thông tin liên quan đến ung thư. Các nhà nghiên cứu nên xem xét vai trò tiềm năng của mạng xã hội trong việc đáp ứng những nhu cầu chưa được đáp ứng của những người sống sót sau ung thư vú, và đặc biệt là những hệ quả đối với thực hành lâm sàng và sức khỏe cộng đồng.

Từ khóa

#mạng xã hội #ung thư vú #nghiên cứu #sức khỏe tâm lý xã hội #cộng đồng trực tuyến #sống sót sau ung thư

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