Social-environmental phenotypes of rapid cystic fibrosis lung disease progression in adolescents and young adults living in the United States

Andrinopoulou, 2020, Integrating latent classes in the Bayesian shared parameter joint model of longitudinal and survival outcomes, Stat. Methods Med. Res., 29, 3294, 10.1177/0962280220924680 Baker, 2021, Tobacco smoke exposure limits the therapeutic benefit of tezacaftor/ivacaftor in pediatric patients with cystic fibrosis, J. Cyst. Fibros., 20, 612, 10.1016/j.jcf.2020.09.011 Blayac, 2022, The impact of air pollution on the course of cystic fibrosis: a review, Front. Physiol., 13, 10.3389/fphys.2022.908230 Brokamp, 2019, Material community deprivation and hospital utilization during the first year of life: an urban population-based cohort study, Ann. Epidemiol., 30, 37, 10.1016/j.annepidem.2018.11.008 Collaco, 2010, Quantification of the relative contribution of environmental and genetic factors to variation in cystic fibrosis lung function, J. Pediatr., 157, 802, 10.1016/j.jpeds.2010.05.018 Cox, 2018, Big data: some statistical issues, Stat. Probab. Lett., 136, 111, 10.1016/j.spl.2018.02.015 Cromwell, 2023, Cystic fibrosis prevalence in the United States and participation in the Cystic Fibrosis Foundation Patient Registry in 2020, J. Cyst. Fibros., 22, 436, 10.1016/j.jcf.2023.02.009 Cystic Fibrosis Foundation, (2022). Cystic Fibrosis Foundation Patient Registry: 2021 Annual Data Report. Retrieved 13 November 2023 from www.cff.org/medical-professionals/patient-registry. Denaro, 2020, Quantifying disease severity of cystic fibrosis using quantile regression methods, J. Data Sci., 18, 148 Doiron, 2019, Air pollution, lung function and COPD: results from the population-based UK Biobank study, Eur. Respir. J., 54, 10.1183/13993003.02140-2018 Federal Bureau of Investigation (2018). Crime Data Explorer, 2014-2017, Most Current Estimates and Projections. Retrieved 15 December 2022 from https://cde.ucr.cjis.gov. Gecili, 2023, Built environment factors predictive of early rapid lung function decline in cystic fibrosis, Pediatr. Pulmonol., 58, 1501, 10.1002/ppul.26352 Goeminne, 2013, Impact of air pollution on cystic fibrosis pulmonary exacerbations: a case-crossover analysis, Chest, 143, 946, 10.1378/chest.12-1005 Goss, 2004, Effect of ambient air pollution on pulmonary exacerbations and lung function in cystic fibrosis, Am. J. Respir. Crit. Care Med., 169, 816, 10.1164/rccm.200306-779OC Guarnieri, 2014, Outdoor air pollution and asthma, Lancet, 383, 1581, 10.1016/S0140-6736(14)60617-6 Hansel, 2016, The effects of air pollution and temperature on COPD, COPD, 13, 372, 10.3109/15412555.2015.1089846 Harun, 2016, A systematic review of studies examining the rate of lung function decline in patients with cystic fibrosis, Paediatr. Respir. Rev., 20, 55 James, 2020, HEPA filtration improves asthma control in children exposed to traffic-related airborne particles, Indoor Air, 30, 235, 10.1111/ina.12625 Jiang, 2010, Adjusted functional principal components analysis for longitudinal data, Ann. Stat., 38, 1194, 10.1214/09-AOS742 Jin, 2019, Overall methodology design for the United States National Land cover database 2016 products, Remote. Sens., 11, 10.3390/rs11242971 Khreis, 2023, Urban policy interventions to reduce traffic-related emissions and air pollution: A systematic evidence map, Environ. Int., 172, 10.1016/j.envint.2023.107805 Knapp, 2016, The cystic fibrosis foundation patient registry. Design and methods of a national observational disease registry, Ann. Am. Thorac. Soc., 13, 1173, 10.1513/AnnalsATS.201511-781OC Konstan, 2007, Risk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosis, J. Pediatr., 151, 134, 10.1016/j.jpeds.2007.03.006 Louisias, 2019, The effects of the environment on asthma disease activity, Immunol. Allergy Clin. N. Am., 39, 163, 10.1016/j.iac.2018.12.005 McArdle, 2023, Asthma-associated emergency department visits during the Canadian wildfire smoke episodes - United States, April- August 2023, MMWR Morb. Mortal. Wkly. Rep., 72, 926, 10.15585/mmwr.mm7234a5 McGarry, 2017, Pulmonary function disparities exist and persist in Hispanic patients with cystic fibrosis: a longitudinal analysis, Pediatr. Pulmonol., 52, 1550, 10.1002/ppul.23884 Morgan, 2013, Probability of treatment following acute decline in lung function in children with cystic fibrosis is related to baseline pulmonary function, J. Pediatr., 163, 1152, 10.1016/j.jpeds.2013.05.013 Nichols, 2021, Clinical effectiveness of elexacaftor/tezacftor/ivacaftor in people with cystic fibrosis: A clinical trial, Am. J. Respir. Crit. Care Med., 205, 529, 10.1164/rccm.202108-1986OC Oates, 2021, Cessation of smoke exposure improves pediatric CF outcomes: Longitudinal analysis of CF Foundation Patient Registry data, J. Cyst. Fibros., 20, 618, 10.1016/j.jcf.2021.06.014 Oates, 2020, Tobacco smoke exposure and socioeconomic factors are independent predictors of pulmonary decline in pediatric cystic fibrosis, J. Cyst. Fibros., 19, 783, 10.1016/j.jcf.2020.02.004 Oates, 2016, Socioeconomic status and health outcomes: cystic fibrosis as a model, Expert Rev. Respir. Med., 10, 967, 10.1080/17476348.2016.1196140 Park, 2021, The effect of particulate matter reduction by indoor air filter use on respiratory symptoms and lung function: a systematic review and meta-analysis, Allergy Asthma Immunol. Res., 13, 719, 10.4168/aair.2021.13.5.719 Pfeffer, 2021, Air pollution and asthma: mechanisms of harm and considerations for clinical interventions, Chest, 159, 1346, 10.1016/j.chest.2020.10.053 Quanjer, 2012, Multi-ethnic reference values for spirometry for the 3-95-yr age range: the global lung function 2012 equations, Eur. Respir. J., 40, 1324, 10.1183/09031936.00080312 Schechter, 2018, Impact of a program ensuring consistent response to acute drops in lung function in children with cystic fibrosis, J. Cyst. Fibros., 17, 769, 10.1016/j.jcf.2018.06.003 Schechter, 2008, Patient registry analyses: seize the data, but caveat lector, J. Pediatr., 153, 733, 10.1016/j.jpeds.2008.09.011 Schechter, 2011, Nongenetic influences on cystic fibrosis outcomes, Curr. Opin. Pulm. Med., 17, 448, 10.1097/MCP.0b013e32834ba899 Schechter, 1998, Relationship between socioeconomic status and disease severity in cystic fibrosis, J. Pediatr., 132, 260, 10.1016/S0022-3476(98)70442-1 Schechter, 2001, The association of socioeconomic status with outcomes in cystic fibrosis patients in the United States, Am. J. Respir. Crit. Care Med., 163, 1331, 10.1164/ajrccm.163.6.9912100 Schluchter, 2006, Classifying severity of cystic fibrosis lung disease using longitudinal pulmonary function data, Am. J. Respir. Crit. Care Med., 174, 780, 10.1164/rccm.200512-1919OC Szczesniak, 2023, Lung function decline in cystic fibrosis: impact of data availability and modeling strategies on clinical interpretations, Ann. Am. Thorac. Soc., 20, 958, 10.1513/AnnalsATS.202209-829OC Szczesniak, 2020, Influences of environmental exposures on individuals living with cystic fibrosis, Expert Rev. Respir. Med., 14, 737, 10.1080/17476348.2020.1753507 Szczesniak, 2017, Phenotypes of rapid cystic fibrosis lung disease progression during adolescence and young adulthood, Am. J. Respir. Crit. Care Med., 196, 471, 10.1164/rccm.201612-2574OC Szczesniak, 2013, A semiparametric approach to estimate rapid lung function decline in cystic fibrosis, Ann. Epidemiol., 23, 771, 10.1016/j.annepidem.2013.08.009 United States Department of Commerce (2018). TIGER/Line Shapefiles. Retrieved 15 December 2022 from www.census.gov/geographies/mapping-files/time-series/geo/tiger-line-file.html. United States Environmental Protection Agency, (2015-2019). “EJScreen: environmental justice screening and mapping tool.” Retrieved December 2020, 2020, from www.epa.gov/ejscreen. Vandenbranden, 2012, Lung function decline from adolescence to young adulthood in cystic fibrosis, Pediatr. Pulmonol., 47, 135, 10.1002/ppul.21526