Shared patient and provider values in end-stage renal disease decision making: Identifying the tensions

Makoul, 2006, An integrative model of shared decision making in medical encounters, Patient Educ. Couns., 60, 301, 10.1016/j.pec.2005.06.010 Stacey, 2010, Shared decision making models to inform an interprofessional perspective on decision making: a theory analysis, Patient Educ. Couns., 80, 164, 10.1016/j.pec.2009.10.015 Sandelowski, 2008, Variations in meanings of the personal core value ‘health’, Patient Educ. Couns., 73, 347, 10.1016/j.pec.2008.07.029 Rothert, 1997, An educational intervention as decision support for menopausal women, Res. Nurs. Health, 20, 377, 10.1002/(SICI)1098-240X(199710)20:5<377::AID-NUR2>3.0.CO;2-L United States Renal Data System, 2017 Murray, 2013, Whose choice is it? Shared decision making in nephrology care, Semin. Dial., 26, 169, 10.1111/sdi.12056 Légaré, 2014, An interprofessional approach to shared decision making: an exploratory case study with family caregivers of one IP home care team, BMC Geriatr., 14, 83, 10.1186/1471-2318-14-83 Wuerth, 2002, Patients’ descriptions of specific factors leading to modality selection of chronic peritoneal dialysis or hemodialysis, Perit. Dial. Int., 22, 184, 10.1177/089686080202200204 Morton, 2010, The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies, BMJ, 340, c112, 10.1136/bmj.c112 Gordon, 2001, ‘They don’t have to suffer for me’: why dialysis patients refuse offers of living donor kidneys, Med. Anthropol. Q., 15, 245, 10.1525/maq.2001.15.2.245 Rokeach, 1973 Resnicow, 2001, A motivational interviewing intervention to increase fruit and vegetable intake through black churches: results of the Eat for Life Trial, Am. J. Public Health, 91, 1686, 10.2105/AJPH.91.10.1686 Schwartz, 1988, Value self-confrontation as a method to aid in weight loss, J. Pers. Soc. Psychol., 54, 396, 10.1037/0022-3514.54.3.396 Hullett, 2006, Using functional theory to promote HIV testing: the impact of value-expressive messages, uncertainty, and fear, Health Commun., 20, 57, 10.1207/s15327027hc2001_6 Karel, 2000, The assessment of values in medical decision making, J. Aging Stud., 14, 403, 10.1016/S0890-4065(00)80005-5 Katz, 1970, Progress in development of the index of ADL, Gerontologist, 10, 20, 10.1093/geront/10.1_Part_1.20 Lawton, 1969, Assessment of older people: self-maintaining and instrumental activities of daily living, Gerontologist, 9, 179, 10.1093/geront/9.3_Part_1.179 Peel, 2005, Assessing mobility in older adults: the UAB Study of Aging life-space assessment, Phys. Ther., 85, 1008, 10.1093/ptj/85.10.1008 Guralnik, 1994, A short physical performance battery assessing lower extremity function: association with self-reported disability and prediction of mortality and nursing home admission, J. Gerontol., 49, M85, 10.1093/geronj/49.2.M85 Tinetti, 1990, Falls efficacy as a measure of fear of falling, J. Gerontol., 45, 239, 10.1093/geronj/45.6.P239 Hays, 1994, Development of The Kidney Disease Quality of Life (KDQOL) instrument, Qual. Life Res., 3, 329, 10.1007/BF00451725 Braun, 2006, Using thematic analysis in psychology, Qual. Res. Psychol., 3, 77, 10.1191/1478088706qp063oa Moyo, 2016, Healthcare practitioners’ personal and professional values, Adv. Health Sci. Educ. Theory Pract., 21, 257, 10.1007/s10459-015-9626-9 World Health Organization, 2002, Towards a Common Language for Functioning Beauchamp, 2016, The principle of beneficence in applied ethics Centers for Medicare & Medicaid Services, ESRD Quality Incentive Program. Available at https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/ESRDQIP/ (Accessed June 6, 2018). Renal Physicians Association, Shared Decision-Making in the Appropriate Initiation and Withdrawal from Dialysis: Clinical Practice Guideline, 2nd Ed. Available at https://cdn.ymaws.com/www.renalmd.org/resource/resmgr/Store/Shared_Decision_(asMaking_Recom.pdf (Accessed October 20, 2018). Ladin, 2018, Characterizing approaches to dialysis decision making with older adults, Clin. J. Am. Soc. Nephrol., 13, 1188, 10.2215/CJN.01740218 Singh, 2014, The elderly patient on dialysis: geriatric considerations, Nephrol. Dial. Transplant., 29, 990, 10.1093/ndt/gft246 Russ, 2005, ‘Is there life on dialysis?’: Time and aging in a clinically sustained existence, Med. Anthropol., 24, 297, 10.1080/01459740500330639 Urquhard-Secord, 2016, Patient and caregiver priorities for outcomes in hemodialysis: an international nominal group technique study, Am. J. Kidney Dis., 68, 444, 10.1053/j.ajkd.2016.02.037 Allen, 2011, ‘Non-compliance’ as illness management: hemodialysis patients’ descriptions of adversarial patient-clinician interactions, Soc. Sci. Med., 73, 129, 10.1016/j.socscimed.2011.05.018 Krespi, 2004, Haemodialysis patients’ beliefs about renal failure and its treatment, Patient Educ. Couns., 53, 189, 10.1016/S0738-3991(03)00147-2 Hibbard, 2013, What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs, Health Affair, 32, 207, 10.1377/hlthaff.2012.1061