Responding to requests for hastened death in patients living with advanced neurologic disease
Tài liệu tham khảo
Alberta Health Services, 2016
Alberta Health Services, 2016
Alberta Health Services, 2017
Alberta Health Services
Back, 2002, Clinician-patient interactions about requests for physician-assisted suicide: a patient and family view, Arch Intern Med, 162, 1257, 10.1001/archinte.162.11.1257
Bernacki, 2014, Communication about serious illness care goals: a review and synthesis of best practices, JAMA Intern Med, 174, 1994, 10.1001/jamainternmed.2014.5271
Bernacki, 2019, Effect of the serious illness care program in outpatient oncology: a cluster randomized clinical trial, JAMA Intern Med, 179, 751, 10.1001/jamainternmed.2019.0077
Bernheim, 2008, Development of palliative care and legalisation of euthanasia: antagonism or synergy?, BMJ, 336, 864, 10.1136/bmj.39497.397257.AD
Beuthin, 2018, Cultivating compassion: the practice experience of a medical assistance in dying coordinator in Canada, Qual Health Res, 28, 1679, 10.1177/1049732318788850
Beuthin, 2018, Medical assistance in dying (MAiD): Canadian nurses' experiences, Nurs Forum, 53, 511, 10.1111/nuf.12280
Booker, 2020, Palliative sedation and medical assistance in dying: distinctly different or simply semantics?, Nurs Inq, 27, 10.1111/nin.12321
Braun, 2003, Development of a clinical practice guideline for palliative sedation, J Palliat Med, 6, 345, 10.1089/109662103322144655
British Broadcasting Company, 2020
Brock, 1999, A critique of three objections to physician-assisted suicide, Ethics, 109, 519, 10.1086/233920
Buchbinder, 2018, Choreographing death: a social phenomenology of medical aid-in-dying in the United States, Med Anthropol Q, 32, 481, 10.1111/maq.12468
Buchbinder, 2018, Caregivers' experiences with medical aid-in-dying in vermont: a qualitative study, J Pain Symptom Manage, 56, 936, 10.1016/j.jpainsymman.2018.08.010
Calati, 2019, Suicidal thoughts and behaviors and social isolation: a narrative review of the literature, J Affect Disord, 245, 653, 10.1016/j.jad.2018.11.022
Canadian Society of Palliative Care Physicians, 2019
Cellarius, 2014, The third wave of palliative care, J Palliat Care, 30, 287, 10.1177/082585971403000408
Chambaere, 2010, Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey, CMAJ, 182, 895, 10.1503/cmaj.091876
Chen, 2017, Clarity or confusion? Variability in uses of “allow natural death” in state POLST forms, J Palliat Med, 20, 695, 10.1089/jpm.2017.0064
Chen, 2020, Life lacks meaning without acceptance: ostracism triggers suicidal thoughts, J Pers Soc Psychol, 119, 1423, 10.1037/pspi0000238
Cherny, 2009, European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care, Palliat Med, 23, 581, 10.1177/0269216309107024
Chochinov, 2002, Dignity-conserving care—a new model for palliative care: helping the patient feel valued, JAMA, 287, 2253, 10.1001/jama.287.17.2253
Chochinov, 1999, Will to live in the terminally ill, Lancet, 354, 816, 10.1016/S0140-6736(99)80011-7
Chu, 2017, The interpersonal theory of suicide: a systematic review and meta-analysis of a decade of cross-national research, Psychol Bull, 143, 1313, 10.1037/bul0000123
Cieza, 2013, The psychosocial difficulties in brain disorders that explain short term changes in health outcomes, BMC Psychiatry, 13, 78, 10.1186/1471-244X-13-78
Clark, 2020, Mapping levels of palliative care development in 198 countries: the situation in 2017, J Pain Symptom Manage, 59, 794, 10.1016/j.jpainsymman.2019.11.009
College of Physicians and Surgeons of Alberta, 2016
Costanza, 2020, When sick brain and hopelessness meet: some aspects of suicidality in the neurological patient, CNS Neurol Disord Drug Targets, 19, 257, 10.2174/1871527319666200611130804
Court of Appeal for Ontario, 2019
Davies, 2019, Socioeconomic position and use of healthcare in the last year of life: a systematic review and meta-analysis, PLoS Med, 16
De Beurs, 2019, Exploring the psychology of suicidal ideation: a theory driven network analysis, Behav Res Ther, 120, 10.1016/j.brat.2019.103419
Dean, 2012, Framework for continuous palliative sedation therapy in Canada, J Palliat Med, 15, 870, 10.1089/jpm.2011.0498
Dees, 2011, 'Unbearable suffering': a qualitative study on the perspectives of patients who request assistance in dying, J Med Ethics, 37, 727, 10.1136/jme.2011.045492
Dees, 2013, Perspectives of decision-making in requests for euthanasia: a qualitative research among patients, relatives and treating physicians in the Netherlands, Palliat Med, 27, 27, 10.1177/0269216312463259
Department of Justice Canada
Department of Justice Canada, 2020
Downar, 2020, Early experience with medical assistance in dying in Ontario, Canada: a cohort study, CMAJ, 192, E173, 10.1503/cmaj.200016
Downie, 2004, Unilateral withholding and withdrawal of potentially life-sustaining treatment: a violation of dignity under the law in Canada, J Palliat Care, 20, 143, 10.1177/082585970402000305
Drake, 2019
Dykhuis, 2020
Emanuel, 2016, Attitudes and practices of euthanasia and physician-assisted suicide in the United States, Canada, and Europe, JAMA, 316, 79, 10.1001/jama.2016.8499
Evenblij, 2019, Factors associated with requesting and receiving euthanasia: a nationwide mortality follow-back study with a focus on patients with psychiatric disorders, dementia, or an accumulation of health problems related to old age, BMC Med, 17, 39, 10.1186/s12916-019-1276-y
Fraser Health
Fujioka, 2018, Implementation of medical assistance in dying: a scoping review of health care providers' perspectives, J Pain Symptom Manage, 55, 1564, 10.1016/j.jpainsymman.2018.02.011
Gamondi, 2015, Exploring the experiences of bereaved families involved in assisted suicide in Southern Switzerland: a qualitative study, BMJ Support Palliat Care, 5, 146, 10.1136/bmjspcare-2013-000483
Ganzini, 2009, Mental health outcomes of family members of Oregonians who request physician aid in dying, J Pain Symptom Manage, 38, 807, 10.1016/j.jpainsymman.2009.04.026
Gerson, 2019, When is hastened death considered suicide? A systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal, BMC Palliat Care, 18, 75, 10.1186/s12904-019-0451-4
Government of Canada
Government of Canada, 2020
Government of Canada
Goy, 2003, Oregon hospice nurses and social workers' assessment of physician progress in palliative care over the past 5 years, Palliat Support Care, 1, 215, 10.1017/S1478951503030384
Griep, 2020, Does nonsuicidal self-injury predict later suicidal attempts? A review of studies, Arch Suicide Res, 1
Hannig, 2019, AUTHOR(IZ)ING DEATH: medical aid-in-dying and the morality of suicide, Cult Anthropol, 34, 53, 10.14506/ca34.1.08
Harris
Health Canada, 2020
Herx, 2020, The “normalization” of euthanasia in Canada: the cautionary tale continues, World Med J, 66, 28
Hesdorffer, 2016, Comorbidity between neurological illness and psychiatric disorders, CNS Spectr, 21, 230, 10.1017/S1092852915000929
Holmes, 2018, Exploring the experience of supporting a loved one through a medically assisted death in Canada, Can Fam Physician, 64, e387
Kearney, 2009, Self-care of physicians caring for patients at the end of life: “being connected... a key to my survival”, JAMA, 301, 1155, 10.1001/jama.2009.352
Keown, 2018
Khoshnood, 2018, Exploring Canadian physicians' experiences providing medical assistance in dying: a qualitative study, J Pain Symptom Manage, 56, 222, 10.1016/j.jpainsymman.2018.05.006
Kim, 2016, Euthanasia and assisted suicide of patients with psychiatric disorders in the Netherlands 2011 to 2014, JAMA Psychiatry, 73, 362, 10.1001/jamapsychiatry.2015.2887
Klonsky, 2018, Ideation-to-action theories of suicide: a conceptual and empirical update, Curr Opin Psychol, 22, 38, 10.1016/j.copsyc.2017.07.020
Krakauer, 2000, Sedation for intractable distress of a dying patient: acute palliative care and the principle of double effect, Oncologist, 5, 53, 10.1634/theoncologist.5-1-53
Lowers, 2020, Comparison of the experience of caregiving at end of life or in hastened death: a narrative synthesis review, BMC Palliat Care, 19, 154, 10.1186/s12904-020-00660-8
Lyketsos, 2007, Psychiatric manifestations of neurologic disease: where are we headed?, Dialogues Clin Neurosci, 9, 111, 10.31887/DCNS.2007.9.2/clyketsos
Macleod, 2012, Assisted or hastened death: the healthcare practitioner's dilemma, Global J Health Sci, 4, 87, 10.5539/gjhs.v4n6p87
Mantwill, 2019, Health literacy and health disparities: a global perspective
Mora, 2020
Muscat, 2016, Can adults with low literacy understand shared decision making questions? A qualitative investigation, Patient Educ Couns, 99, 1796, 10.1016/j.pec.2016.05.008
Nicol, 2019
Nissim, 2009, The desire for hastened death in individuals with advanced cancer: a longitudinal qualitative study, Soc Sci Med, 69, 165, 10.1016/j.socscimed.2009.04.021
Nuhn, 2018, Experiences and perspectives of people who pursued medical assistance in dying: qualitative study in Vancouver, BC, Can Fam Physician, 64, e380
Ohnsorge, 2019, Wishes to die at the end of life and subjective experience of four different typical dying trajectories. A qualitative interview study, PLoS One, 14, 10.1371/journal.pone.0210784
Oregon Health Authority, 2020
Pasman, 2013, What happens after a request for euthanasia is refused? Qualitative interviews with patients, relatives and physicians, Patient Educ Couns, 92, 313, 10.1016/j.pec.2013.06.007
Penner, 2017, Patient stigma, medical interactions, and health care disparities: a selective review
Quill, 2016, Responding to patients requesting physician-assisted death: physician involvement at the very end of life, JAMA, 315, 245, 10.1001/jama.2015.16210
Quill, 2018, Voluntarily stopping eating and drinking among patients with serious advanced illness-clinical, ethical, and legal aspects, JAMA Intern Med, 178, 123, 10.1001/jamainternmed.2017.6307
Reichlin, 2014, On the ethics of withholding and withdrawing medical treatment, Multidiscip Respir Med, 9, 39, 10.1186/2049-6958-9-39
Respecting Choices
Rietjens, 2009, Two decades of research on euthanasia from the Netherlands. What have we learnt and what questions remain?, J Bioeth Inq, 6, 271, 10.1007/s11673-009-9172-3
Robinson, 2017, The relationship between poor quality of life and desire to hasten death: a multiple mediation model examining the contributions of depression, demoralization, loss of control, and low self-worth, J Pain Symptom Manage, 53, 243, 10.1016/j.jpainsymman.2016.08.013
Rollnick, 2008
Rosenberg, 2016, Ethics, emotions, and the skills of talking about progressing disease with terminally ill adolescents: a review, JAMA Pediatr, 170, 1216, 10.1001/jamapediatrics.2016.2142
Russell, 2018, Physician-hastened-death in patients with progressive neurodegenerative or neuromuscular disorders, Semin Neurol, 38, 522, 10.1055/s-0038-1668080
Russell, 2018, Lawful physician-hastened death: AAN position statement, Neurology, 90, 420, 10.1212/WNL.0000000000005012
Saunders, 2001, The evolution of palliative care, J R Soc Med, 94, 430, 10.1177/014107680109400904
Shariff, 2012, Assisted death and the slippery slope-finding clarity amid advocacy, convergence, and complexity, Curr Oncol, 19, 143, 10.3747/co.19.1095
Shaw, 2007, The body as unwarranted life support: a new perspective on euthanasia, J Med Ethics, 33, 519, 10.1136/jme.2006.020073
Sinanović, 2020, Psychiatric disorders in neurological diseases
Starks, 2007, Family member involvement in hastened death, Death Stud, 31, 105, 10.1080/07481180601100483
Supreme Court of Canada
Swarte, 2003, Effects of euthanasia on the bereaved family and friends: a cross sectional study, BMJ, 327, 189, 10.1136/bmj.327.7408.189
The Royal Society of Canada Expert Panel, 2011
Thienpont, 2015, Euthanasia requests, procedures and outcomes for 100 Belgian patients suffering from psychiatric disorders: a retrospective, descriptive study, BMJ Open, 5, 10.1136/bmjopen-2014-007454
Trouton, 2020, Attitudes and expectations regarding bereavement support for patients, family members, and friends: findings from a survey of MAID providers, BC Med J, 62, 18
United Nations, 2006
Vulnerable Persons Standard
Wang, 2016, Death with dignity in Washington patients with amyotrophic lateral sclerosis, Neurology, 87, 2117, 10.1212/WNL.0000000000003335
Wasylenko, 2017, Becoming dead: two solitudes?, Healthc Manage Forum, 30, 262, 10.1177/0840470417714886
Weisbrod, 2019, Addressing and managing requests to hasten death
Wilson, 2007, Desire for euthanasia or physician-assisted suicide in palliative cancer care, Health Psychol, 26, 314, 10.1037/0278-6133.26.3.314
Wilson, 2016, Mental disorders and the desire for death in patients receiving palliative care for cancer, BMJ Support Palliat Care, 6, 170, 10.1136/bmjspcare-2013-000604
World Health Organization, 2020
Wright, 2017, Engaging with patients who desire death: interpretation, presence, and constraint, Can Oncol Nurs J, 27, 56, 10.5737/236880762715664