Reduced quality of life in ICU survivors - the story behind the numbers: A mixed methods study

Journal of Critical Care - Tập 65 - Trang 36-41 - 2021
Wytske W. Geense1, Mirjam de Graaf1, Hester Vermeulen2,3, Johannes van der Hoeven1, Marieke Zegers1, Mark van den Boogaard1
1Radboud university medical center, Radboud Institute for Health Sciences, Department of Intensive Care Medicine, Nijmegen, the Netherlands
2Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare, Nijmegen, The Netherlands
3HAN University of Applied Science, Faculty of Health and Social Studies, Nijmegen, the Netherlands

Tài liệu tham khảo

Soliman, 2015, Single-center large-cohort study into quality of life in Dutch intensive care unit subgroups, 1 year after admission, using EuroQoL EQ-6D-3L, J Crit Care, 30, 181, 10.1016/j.jcrc.2014.09.009 Hofhuis, 2015, ICU survivors show no decline in health-related quality of life after 5 years, Intensive Care Med, 41, 495, 10.1007/s00134-015-3669-5 Dowdy, 2005, Quality of life in adult survivors of critical illness: a systematic review of the literature, Intensive Care Med, 31, 611, 10.1007/s00134-005-2592-6 Fontela, 2018, Quality of life in survivors after a period of hospitalization in the intensive care unit: a systematic review, Rev Bras Ter Intensiva, 30, 496, 10.5935/0103-507X.20180071 Gerth, 2019, Changes in health-related quality of life after discharge from an intensive care unit: a systematic review, Anaesthesia, 74, 100, 10.1111/anae.14444 Hofhuis, 2008, The impact of critical illness on perceived health-related quality of life during ICU treatment, hospital stay, and after hospital discharge: a long-term follow-up study, Chest, 133, 377, 10.1378/chest.07-1217 Oeyen, 2010, Quality of life after intensive care: a systematic review of the literature, Crit Care Med, 38, 2386, 10.1097/CCM.0b013e3181f3dec5 Cuthbertson, 2010, Quality of life in the five years after intensive care: a cohort study, Crit Care, 14, R6, 10.1186/cc8848 Harvey, 2016, Postintensive care syndrome: right care, right now...and later, Crit Care Med, 44, 381, 10.1097/CCM.0000000000001531 Turnbull, 2020, Curb your enthusiasm: definitions, adaptation, and expectations for quality of life in ICU survivorship, Ann Am Thorac Soc, 17, 406, 10.1513/AnnalsATS.201910-772IP Douglas, 2012, Neglect of quality-of-life considerations in intensive care unit family meetings for long-stay intensive care unit patients, Crit Care Med, 40, 461, 10.1097/CCM.0b013e318232d8c4 Nelson, 2005, When critical illness becomes chronic: informational needs of patients and families, J Crit Care, 20, 79, 10.1016/j.jcrc.2004.11.003 Angus, 2003, Surviving intensive care: a report from the 2002 Brussels roundtable, Intensive Care Med, 29, 368, 10.1007/s00134-002-1624-8 Detsky, 2018, Patients’ perceptions and ICU clinicians predictions of quality of life following critical illness, J Crit Care, 48, 352, 10.1016/j.jcrc.2018.09.034 Griffith, 2018, Determinants of health-related quality of life after ICU: importance of patient demographics, previous comorbidity, and severity of illness, Crit Care Med, 46, 594, 10.1097/CCM.0000000000002952 Ramsay, 2011, Health-related quality of life: implications for critical care interventional studies and why we need to collaborate with patients, Curr Opin Crit Care, 17, 510, 10.1097/MCC.0b013e32834a4bd4 Hofhuis, 2009, Health-related quality of life in critically ill patients: how to score and what is the clinical impact?, Curr Opin Crit Care, 15, 425, 10.1097/MCC.0b013e32833079e4 Lim, 2016, Conceptualizing and measuring health-related quality of life in critical care, J Crit Care, 31, 183, 10.1016/j.jcrc.2015.10.020 Karimi, 2016, Health, health-related quality of life, and quality of life: what is the difference?, Pharmacoeconomics, 34, 645, 10.1007/s40273-016-0389-9 Dinglas, 2018, Perspectives of survivors, families and researchers on key outcomes for research in acute respiratory failure, Thorax, 73, 7, 10.1136/thoraxjnl-2017-210234 Rapkin, 2004, Toward a theoretical model of quality-of-life appraisal: implications of findings from studies of response shift, Health Qual Life Outcomes, 2, 14, 10.1186/1477-7525-2-14 Hashem, 2016, Patient outcomes after critical illness: a systematic review of qualitative studies following hospital discharge, Crit Care, 20, 345, 10.1186/s13054-016-1516-x Konig, 2019, What matters most to sepsis survivors: A qualitative analysis to identify specific health-related quality of life domains, Quality of Life Research, 28, 10.1007/s11136-018-2028-8 Nelliot, 2019, Acute respiratory failure Survivors’ physical, cognitive, and mental health outcomes: quantitative measures versus Semistructured interviews, Ann Am Thorac Soc, 16, 731, 10.1513/AnnalsATS.201812-851OC Ivankova, 2006, Using mixed-methods sequential explanatory design: from theory to practice, Field Methods, 18, 3, 10.1177/1525822X05282260 Geense, 2017, MONITOR-IC study, a mixed methods prospective multicentre controlled cohort study assessing 5-year outcomes of ICU survivors and related healthcare costs: a study protocol, BMJ Open, 7, 10.1136/bmjopen-2017-018006 Creswell, 2007, Choosing a mixed methods design, 58 Ware, 1992, The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection, Med Care, 30, 473, 10.1097/00005650-199206000-00002 Tong, 2007, Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups, International J Qual Health Care, 19, 349, 10.1093/intqhc/mzm042 Eakin, 2017, Patients’ outcomes after acute respiratory failure: a qualitative study with the PROMIS framework, Am J Crit Care, 26, 456, 10.4037/ajcc2017834 Cella, 2010, The patient-reported outcomes measurement information system (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008, J Clin Epidemiol, 63, 1179, 10.1016/j.jclinepi.2010.04.011 Chaboyer, 2000, Health-related quality of life of ICU survivors: review of the literature, Intensive Crit Care Nurs, 16, 88, 10.1054/iccn.1999.1582 Needham, 2012, Improving long-term outcomes after discharge from intensive care unit: report from a stakeholders’ conference, Crit Care Med, 40, 502, 10.1097/CCM.0b013e318232da75 Jutte, 2015, Physical, cognitive, and psychological disability following critical illness: what is the risk?, Semin Respir Crit Care Med, 36, 943, 10.1055/s-0035-1566002 Kang, 2021, The effect of postintensive care syndrome on the quality of life of intensive care unit survivors: a secondary analysis, Aust Crit Care, 34, 246, 10.1016/j.aucc.2020.08.006 Langerud, 2018, Health-related quality of life in intensive care survivors: associations with social support, comorbidity, and pain interference, PLoS One, 13, 10.1371/journal.pone.0199656 Yuan, 2020, Post-intensive care syndrome: a concept analysis, Int J Nurs Stud, 114, 103814, 10.1016/j.ijnurstu.2020.103814 Gajic, 2018, Outcomes of critical illness: what is meaningful?, Curr Opin Crit Care, 24, 394, 10.1097/MCC.0000000000000530 Kamdar, 2017, Joblessness and lost earnings after acute respiratory distress syndrome in a 1-year National Multicenter Study, Am J Respir Crit Care Med, 196, 1012, 10.1164/rccm.201611-2327OC Orwelius, 2010, Pre-existing disease: the most important factor for health related quality of life long-term after critical illness: a prospective, longitudinal, multicentre trial, Crit Care, 14, R67, 10.1186/cc8967 Baldwin, 2009, Quality of life and persisting symptoms in intensive care unit survivors: implications for care after discharge, BMC Res Notes, 2, 160, 10.1186/1756-0500-2-160 Mikkelsen, 2020, Post-intensive care syndrome (PICS) and strategies to mitigate PICS, ICU Liberation, 97 Haines, 2017, The conceptualisation of health-related quality of life in decision-making by intensive care physicians: a qualitative inquiry, Aust Crit Care, 30, 152, 10.1016/j.aucc.2016.08.004 King, 2019, Identifying patients’ support needs following critical illness: a scoping review of the qualitative literature, Crit Care, 23, 187, 10.1186/s13054-019-2441-6 Sharma, 2017, Pros and cons of different sampling techniques, Int J Appl Res, 3, 749 Sturges, 2004, Comparing telephone and face-to-face qualitative interviewing: a research note, Qualitative Research, 4, 107, 10.1177/1468794104041110 Cella, 2002, Clinical significance consensus meeting G. group vs individual approaches to understanding the clinical significance of differences or changes in quality of life, Mayo Clin Proc, 77, 384, 10.4065/77.4.384