Recommendations for peer-to-peer support for NICU parents
Tóm tắt
Từ khóa
Tài liệu tham khảo
Bracht M, O’Leary L, Lee S, O’Brien K . Implementing family-integrated care in the NICU: a parent education and support program. Adv Neonatal Care 2013; 13 (2): 115–126.
American Academy of Pediatrics Committee on Hospital Care Institute for Patient- and Family-Centered Care. Patient- and family-centered care and the pediatrician’s role. Pediatrics 2012; 129: 394–404.
Singer L, Salvator A, Guo S, Collin M, Lilien L, Baley J . Maternal psychological distress and parenting stress after the birth of a very low-birth-weight infant. JAMA 1999; 281: 799–805.
Miles S, Holditch-Davis D, Schwartz T, Scher M . Depressive symptoms in mothers of prematurely born infants. J Dev Behav Pediatr 2007; 28: 36–44.
Rogers C, Kidokoro H, Wallendorf M, Inder T . Identifying mothers of very preterm infants at-risk for postpartum depression and anxiety before discharge. J Perinatol 2013; 33: 171–176.
Callahan J, Borja S, Hynan M . Modification of the Perinatal PTSD Questionnaire to enhance clinical utility. J Perinatol 2006; 26: 533–539.
DeMier R, Hynan M, Harris H, Manniello R . Perinatal stressors as predictors of symptoms of posttraumatic stress in mothers of infants at high risk. J Perinatol 1996; 16: 276–280.
Bernard-Bonnin A . Psychosocial Paediatrics Committee of Canadian Society of Pediatrics, Canadian Paediatric Society. Maternal depression and child development. Pediatr Child Health 2004; 9: 575–583.
Huhtala M, Korja R, Lehtonen L, Haataha L, Lapinleimu P, Rautava P et al. Parental psychological well-being and behavioral outcome of very low birth weight infants at 3 years. Pediatrics 2012; 129: e937–e944.
Ardal F, Sulman J, Fuller-Thomson E . Support like a walking stick: parent-buddy matching for language and culture in the NICU. Neonatal Netw 2011; 30: 89–98.
Feldman-Reichman S, Miller A, Gordon R, Hendricks-Munoz K . Stress appraisal and coping in mothers of NICU infants. Child Health Care 1998; 29: 279–293.
Kerr S, McIntosh J . Coping when a child has a disability: exploring the impact of parent-to-parent support. Child Care Health Dev 2000; 26: 309–322.
Bennett D, Slade P . Infants born at risk: consequences for maternal postpartum adjustment. Br J Med Psychol 1991; 64: 159–172.
Humphreys K, Wing S, McCarty D, Chappel J, Gallant L, Haberle B et al. Self-help organizations for alcohol and drug problems: toward evidence-based practice and policy. Psychiatry Res 2004; 26: 151–158.
Dixon L, Lucksted A, Stewart B, Burland J, Brown C, Postrado L et al. Outcomes of the peer-taught 12-week family-to-family education program for severe mental illness. Acta Psychiatr Scand 2004; 109: 207–215.
Preyde M, Ardal F . Effectiveness of a parent ‘buddy’ program for mothers of very preterm infants in a neonatal intensive care unit. CMAJ 2003; 168: 969–973.
Nottage SL . Parents’ use of nonmedical support services in the Neonatal Intensive Care Unit. Issues Compr Pediatr Nurs 2005; 28: 257–273.
Ainbinder J, Blanchard L, Singer G, Sullivan M, Powers L, Marquis J et al. A qualitative study of parent to parent support for parents of children with special needs. J Pediatr Psychol 1998; 23: 99–109.
Santelli B, Turnbull A, Higgins C . Parent to parent support and health care. Pediatr Nurs 1997; 23: 303–306.
Jarrett M . Parent partners: a parent-to-parent support program in the NICU. Part II: program implementation. Pediatr Nurs 1996; 22: 142–149.
Cooper L, Gooding J, Gallagher J, Sternesky L, Ledsky R, Berns S . Impact of a family-centered care initiative on NICU care, staff and families. J Perinatol 2007; 27: S32–S37.
Singer G, Marquis J, Powers L, Blanchard L, Divenere N, Santelli B et al. A multi-site evaluation of parent to parent programs for parents of children with disabilities. J Early Interv 1999; 22: 217–229.
Roman L, Lindsay J, Boger R, DeWys M, Beaumont E, Jones A et al. Parent-to-parent support initiated in the neonatal intensive care unit. Res Nurs Health 1995; 18: 385–394.
Boukydis C . Support services and peer support for parents of at-risk infants: an international perspective. Child Health Care 2000; 29: 129–145.
Minde K, Shosenberg N, Marton P, Thompson J, Ripley J, Burns S . Self-help groups in a premature nursery—a controlled evaluation. J Pediatr 1980; 96: 933–940.
Nearing G, Salas A, Granado-Villar D, Chandler B, Soliz A . Psychosocial parental support programs and short-term clinical outcomes in extremely low-birth-weight infants. J Matern Fetal Neonatal Med 2012; 25: 89–93.
Dunham P, Hurshman A, Litwin E, Gusella J, Ellsworth C, Dodd P . Computer-mediated social support: single young mothers as a model system. Am J Community Psychol 1998; 26: 281–306.
Ireys H, Chernoff R, DeVet K, Kim Y . Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Arch Pediatr Adolesc Med 2001; 155: 771–777.
Hurst I . One size does not fit all: parent’s evaluation of a support program in a newborn intensive care nursery. J Perinat Neonatal Nurs 2006; 20: 252–261.
Lindsay J, Roman L, DeWys M, Eager M, Levick J, Quinn M . Creative caring in the NICU: parent-to-parent support. Neonatal Netw 1993; 12: 37–44.
Bracht M, Ardal F, Bot A . Initiation and maintenance of a hospital-based parent group for parents of premature infants: key factors for success. Neonatal Netw 1998; 17 (3): 33–37.
Thome M, Alder B . A telephone intervention to reduce fatigue and symptom distress in mothers with difficult infants in the community. J Adv Nurs 1999; 29 (1): 128–137.
Galinsky M, Schopler J, Abell M . Connecting group members through telephone and computer groups. Health Soc Work 1997; 22 (3): 181–188.
Smith K, Gabard D, Dale D, Drucker A . Parental opinions about attending parent support groups. Child Health Care 1994; 23 (2): 127–136.
Dennis C-L, Hodnett E, Kenton L, Weston J, Zupancic J, Stewart D et al. Effect of peer support on prevention of postnatal depression among high risk women: multisite randomised controlled trial. BMJ 2009; 338: 280–284.
Dobbins N, Bohlig C, Sutphen J . Partners in growth: implementing family-centered changes in the neonatal intensive care unit. Child Health Care 1994; 23 (2): 115–126.
Scharer K . Internet social support for parents: the state of science. J Child Adolesc Psychiatr Nurs 2005; 18: 26–35.
McNamara D . Health-oriented telecommunication: a community resource. Nurs Manage 1994; 25 (12): 40–41.
Kiesler S, Siegel J, McGuire T . Social psychological aspects of computer mediated communication. Am Psychol 1984; 39 (10): 1123–1134.
Santelli B, Parent to Parent USA. Guidance for Recruiting and Training Support Parents. Parent to Parent USA Guidance for Recruiting And Training Support Parents, 2010. Available from: http://www.p2pusa.org/p2pusa/P2P%20Documents/Guidance%20for%20Recruiting%20and%20Training%20Support%20Parents-1.doc.pdf (date last accessed 24 March 2015).
Jarrett M . Parent partners: a parent-to-parent support program in the NICU. Part 1: program development. Pediatr Nurs 1996; 22 (1): 60–63.