Quantitative evaluation of a pediatric rheumatology transition program
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Hamdani Y, Jetha A, Norman C. Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research. Child Care Health Dev. 2011;37(6):806–14.
Watson R, Parr JR, Joyce C, May C, Le Couteur AS. Models of transitional care for young people with complex health needs: a scoping review. Child Care Health Dev. 2011;37(6):780–91.
Bobo N, Butler S. National diabetes education program: the transition from pediatric to adult diabetes health care. NASN Sch Nurse. 2010;25(3):114–5.
Reid GJ, Irvine MJ, McCrindle BW, Sananes R, Ritvo PG, Siu SC, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 2004;113(3 Pt 1):e197–205.
Okumura MJ, Hersh AO, Hilton JF, Lotstein DS. Change in health status and access to care in young adults with special health care needs: results from the 2007 National Survey of Adult Transition and Health. J Adolscent Health. 2007;2013(52):413–8.
Cannell MB, Brumback BA, Bouldin ED, Hess J, Wood DL, Sloyer PJ, et al. Age group differences in healthcare access for people with disabilities: are young adults at increased risk? J Adolescent Health. 2011;49(2):219–21.
American Academy of Pediatrics. American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine: a consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 Pt 2):1304–6.
Lotstein DS, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P. Planning for health care transitions: results from the 2005–2006 National Survey of Children with Special Health Care Needs. Pediatrics. 2009;123(1):e145–52.
McManus MA, Pollack LR, Cooley WC, McAllister JW, Lotsteion D, Strickland B, et al. Current status of transition preparation among youth with special needs in the United States. Pediatrics. 2013;131:1090–7.
Prior M, McManus M, White P. Measuring the “triple aim” in transition care: a systematic review. Pediatrics. 2014;134:e1648–61.
Lugasi T, Achille M, Stevenson M. Patients’ perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolscent Health. 2011;48:429–40.
Chira P, Ronis T, Ardoin S, White P. Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada. J Rheumatol. 2014;41(4):768–79.
Katz J, Mamyrova G, Agarwal S, Jone O, Bollar H, Huber A, et al. Parents’ perception of self-advocacy of children with myositis: an anonymous online survey. Pediatr Rheumatol Online J. 2011;9(1):10. doi:10.1186/1546-0096-9-10.
Hilderson D, Eyckmans L, Van der Elst K, Westhovens R, Moons P. Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile ideopathic arthrits. Clin Rheumatol. 2013;32(5):575–83.
Hilderson D, Moons P, Westhovens R, Wouters C. Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatol Int. 2012;32(12):3887–96.
Hilderson D, Westhovens R, Wouters C, Van der Elst K, Goossens E, Moons P. Rationale, Design, and Baseline Data of a Mixed Methods Study Examining the Clinical Impact of a Brief Transition Programme for Young People with Juvenile Idiopathic Arthrits: The DON’T RETARD Project. BMJ Open. 2013;3(12):e003591. doi:10.1136/bmjopen-2013-003591.
McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology. 2007;46:161–8.
Chaudhry S, Keaton M, Nasr S. Evaluation of a cystic fibrosis transition program from pediatric to adult care. Pediatr Pulmonol. 2013;48:658–65.
Annunziato R, Baisley M, Arrato N, Barton C, Henderling F, Arnon R, et al. Strangers headed to a strange land? A pilot study of using a transition coordinoator to improve transfer from pediatric to adult services. J Pediatr. 2013;163(6):1628–33.
Donnelley M, Clauser J, Tractenberg R. A multicenter intervention to improve ambulatory care handoffs at the end of residency. J Grad Med Educ. 2014;6(1):112–6.
Grant C, Pan J. A comparison of five transition programmes for youth with chronic illness in Canada. Child Care Health Dev. 2011;37(6):815–20.
Kraus de Camargo O. Systems of care: transition from the bio-psycho-social perspective of the International classification of functioning, disability and health. Child Care Health Dev. 2011;37(6):792–9.
Kingsnorth S, Gall C, Beayni S, Rigby P. Parents as transition experts? Qualitative findings from a pilot parent-led peer support group. Child Care Health Dev. 2011;37(6):833–40.
Moola FJ, Norman ME. ‘Down the rabbit hole’: enhancing the transition process for youth with cystic fibrosis and congenital heart disease by re-imagining the future and time. Child Care Health Dev. 2011;37(6):841–51.
van Staa AL, Jedeloo S, van Meeteren J, Latour JM. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev. 2011;37(6):821–32.
Price CS, Corbett S, Lewis-Barned N, Morgan J, Oliver LE, Dovey-Pearce G. Implementing a transition pathway in diabetes: a qualitative study of the experiences and suggestions of young people with diabetes. Child Care Health Dev. 2011;37(6):852–60.
Ridosh M, Braun P, Roux G, Bellin M, Sawin K. Transition in young adults with spina bifida: a qualitative study. Child Care Health Dev. 2011;37(6):866–74.
Berg Kelly K. Sustainable transition process for young people with chronic conditions: a narrative summary on achieved cooperation between paediatric and adult medical teams. Child Care Health Dev. 2011;37(6):800–5.
Pape L, Lammermuhle J, Oldhafer M, Blume C, Weiss R, Ahlensteil T. Different models of transition to adult care after pediatric kidney transplantation: a comparitive study. Pediatr Transplant. 2013;6:518–24.
Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between pediatric and adult healthcare: a systematic review. Arch Dis Child. 2011;96:548–53.