Quantifying the use of bioresources for promoting their sharing in scientific research

Oxford University Press (OUP) - Tập 2 - Trang 1-8 - 2013
Laurence Mabile1,2, Raymond Dalgleish3, Gudmundur A Thorisson3,4, Mylène Deschênes5, Robert Hewitt6, Jane Carpenter7, Elena Bravo8, Mirella Filocamo9, Pierre Antoine Gourraud10, Jennifer R Harris11, Paul Hofman12, Francine Kauffmann13,14, Maria Angeles Muñoz-Fernàndez15, Markus Pasterk16, Anne Cambon-Thomsen1,2
1Epidémiologie et analyses en santé publique, Faculté de médecine, UMR1027 INSERM-Université de Toulouse III, Toulouse Cedex 7, France
2UMR1027 INSERM-Université de Toulouse III-Paul Sabatier, Toulouse Cedex 9, France
3Department of Genetics, University of Leicester, Leicester, UK
4Faculty of Life and Environmental Sciences, University of Iceland, Reykjavik, Iceland
5P3G, Quebec, Canada
6European, African & Middle Eastern Society for Biopreservation and Biobanking, Aix-en-Provence, France
7Breast Cancer Tissue Bank, University of Sydney, Sydney, Australia
8Department of Cellular Biology and Neuroscience, Istituto Superiore di Sanità, Rome, Italy
9Lab Diagnosi Pre-Postnatale Malattie Metaboliche, Istituto G. Gaslini, Genoa, Italy
10Department of Neurology, Mission Bay campus, University of California, San Francisco, USA
11Division of Epidemiology, The Norwegian Institute of Public Health, Oslo, Norway
12“Cancéropôle PACA Biobank”, Centre Hospitalo-Universitaire Pasteur, Nice, France
13UMR1018 INSERM, Centre de Recherche en Epidémiologie et Santé des Populations, Villejuif Cedex, France
14UMR1018 INSERM-Université Paris Sud, Villejuif Cedex, France
15HIV HGM Spanish Biobank, Madrid, Spain
16International Prevention Research Institute, Lyon, France

Tóm tắt

An increasing portion of biomedical research relies on the use of biobanks and databases. Sharing of such resources is essential for optimizing knowledge production. A major obstacle for sharing bioresources is the lack of recognition for the efforts involved in establishing, maintaining and sharing them, due to, in particular, the absence of adequate tools. Increasing demands on biobanks and databases to improve access should be complemented with efforts of end-users to recognize and acknowledge these resources. An appropriate set of tools must be developed and implemented to measure this impact. To address this issue we propose to measure the use in research of such bioresources as a value of their impact, leading to create an indicator: Bioresource Research Impact Factor (BRIF). Key elements to be assessed are: defining obstacles to sharing samples and data, choosing adequate identifier for bioresources, identifying and weighing parameters to be considered in the metrics, analyzing the role of journal guidelines and policies for resource citing and referencing, assessing policies for resource access and sharing and their influence on bioresource use. This work allows us to propose a framework and foundations for the operational development of BRIF that still requires input from stakeholders within the biomedical community.

Tài liệu tham khảo

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