Quality of the Finnish Hospital Discharge Register: A systematic review

Scandinavian Journal of Public Health - Tập 40 Số 6 - Trang 505-515 - 2012
Reijo Sund1
1National Institute for Health and Welfare, Helsinki, Finland

Tóm tắt

Aims: The Finnish Hospital Discharge Register (FHDR) is one of the oldest individual level hospital discharge registers and has been intensively used for research purposes. The aim of this study was to gather information concerning the quality of FHDR into one place in terms of a systematic review of validation studies that compare data to external information. Methods: Several reference databases were searched for validity articles published until January 2012. For each included study, focus of validation, register years examined, number of compared observations, external source(s) of data, summary of validation results, and conclusions concerning the validity of FHDR were extracted. Results: In total, 32 different studies comparing FHDR data to external information were identified. Most of the studies examined validity in the case of vascular disease, mental disorders or injuries. More than 95% of discharges could be identified from the register. Positive predictive value (PPV) for common diagnoses was between 75 and 99%. Conclusions: Completeness and accuracy in the register seem to vary from satisfactory to very good in the register as long as the recognised limitations are taking into account. Poor recording of subsidiary diagnoses and secondary operations and other rarely used items are the most obvious limitations in validity, but do not compromise the value of data in FHDR in being used in studies that are not feasible to conduct otherwise.

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Tài liệu tham khảo

Sund R, 2003, Intelligent Data Analysis, 7, 501, 10.3233/IDA-2003-7602

10.1093/ije/25.2.435

10.1186/1471-2458-11-450

10.1177/1403494811401482

Varho H, 1993, Tietotekniikan alkuvuodet Suomessa

National Board of Health, 1966, Yleissairaaloiden käyttö Suomessa vuonna 1960

10.1097/00005650-196709000-00001

Härö AS, 1969, Ajankohtaisia näkökohtia terveydenhuoltopolitiikasta

Härö AS, 1969, Methods Inf Med Suppl, 4, 277

Salmela R, 1995, Sairaala, 57, 34

Kekomäki M, 1992, Suom Lääkärilehti, 47, 540

Ruotsalainen P, 1994, Dialogi, 4, 8

Nylander O, 1995, Suom Lääkärilehti, 50, 2833

Salmela R, 1996, Suom Lääkärilehti, 51, 595

10.1007/s00127-005-0951-9

Aro S, 1990, Duodecim, 106, 1443

Keskimäki I, 1991, Int J Health Sciences, 2, 15

10.1080/14034940410028235

10.1177/140349488701500306

Gummerus M, 1987, Duodecim, 103, 761

Honkanen R, 1990, Community Health Statistics and Reviews 1/1990

Mönkkönen R, Poikonen M, Honkanen R. Vammojen tilastollisten indikaattoreiden käytön luotettavuus [Reliability of statistical indicators for nonfatal injuries]. Community Health Statistics and Reviews 1/1989. University of Kuopio, 1989.

Heliövaara M, 1984, Acta Med Scand, 1984, 309, 10.1111/j.0954-6820.1984.tb03809.x

10.1007/BF00789044

10.1177/140349489202000204

10.1017/S0924270800035535

10.1111/j.1651-2227.2010.01835.x

10.1023/A:1007504310431

10.3109/0284186X.2011.593547

10.3109/17453679508995533

10.1016/j.injury.2008.05.007

10.1007/s00127-003-0638-z

Mähönen M, 1993, Poistoilmoitusrekisteri sepelvaltimotaudin epidemiologisen tutkimuksen tietolähteenä. Sairaaloiden poistoilmoitusrekisterin ja FINMONICA-sydäninfarktirekisterin vertailu.

Mähönen M, 1993, Suom Lääkärilehti, 48, 3575

10.3109/07853899509002467

10.1023/A:1007306110822

10.1023/A:1007697720131

Mähönen M, 2012, Eur J Prev Cardiol

10.1016/S0924-9338(98)80019-9

Niemi M-L, 1985, Occupational hazards and reproduction, 237

10.1093/ije/17.3.568

Nikiforov O, 1984, Yleissairaalahoito Suomessa 1960- ja 1970-luvulla

Linnakko E, Sairaalaliitto tiedottaa, 1982, 33

Pajunen P, 2005, Suom Lääkärilehti, 60, 3883

Pajunen P, 2005, Eur J Cardiovasc Prev Rehabil, 12, 132

10.1001/archpsyc.64.1.19

10.3109/07853899708999343

10.1080/08039480801983596

Poikolainen K, 1982, Duodecim, 98, 461

10.1016/0376-8716(83)90002-9

10.1023/A:1007380408729

Salmela R, 1987, Sairaala, 49, 480

Salmela R, 1991, Yleissairaaloiden vuodeosastohoidon käyttö Suomessa vuosina 1980–1985

Sund R, 2007, Methods Inf Med, 46, 558, 10.1160/ME0382

10.1111/j.1755-3768.1987.tb07046.x

10.1097/01.hjr.0000239466.26132.f2

Härö AS, 1981, Planning information services for health. decision-simulation-approach

10.1504/IJHTM.2002.002425

Sund R, 2004, Yhteiskuntapolitiikka, 69, 372

Kaprio J, 1978, Sairaaloiden poistoilmoitusrekisterin oikeellisuustarkistukset

Hokkanen E, 1993, Poistoprojektin loppuraportti

Vauramo E, 1989, Suom Lääkärilehti, 44, 3511

Nouko-Juvonen S, 1998, Suom Lääkärilehti, 53, 3547

Järvelin J, 2004, Suom Lääkärilehti, 59, 1283

Rauhala A, 2007, Suom Lääkärilehti, 62, 2785

10.1177/1403494808089565

Rintanen H, 2010, Suom Lääkärilehti, 65, 1117

Kauppinen S, 1999, Statistical report 31/1999

Sund R, 2005, Sos Laaketiet Aikak, 42, 137

Eronen H, Gissler M, Ritvanen A. Steriloimisten rekisteröiminen Suomessa. Steriloimisrekisterin ja hoitoilmoitusrekisterin steriloimistietojen vertailu ja aineistojen laadun analysointi vuosilta 2000–2003. Stakesin työpapereita 12/2006. Helsinki: National Research and Developmen Centre for Welfare and Health, 2006.

Gissler M, 2007, Suom Lääkärilehti, 62, 2251

Pukkala E, 1994, Suom Lääkärilehti, 49, 836

10.3109/02841869409098430

10.1002/tera.1420480306

10.3109/17453670902947432

10.1017/S0266462300009661

10.1016/S1078-5884(98)80137-8

10.1016/j.ejvs.2007.10.023

10.1245/s10434-010-1514-1

10.1023/A:1026599805969

Sund R, 2010, Finnish Journal of eHealth and eWelfare, 2, 136

10.1111/j.1365-2788.2007.00970.x

10.1001/archpsyc.55.1.67

10.1111/j.0954-6820.1982.tb03229.x

10.2105/AJPH.73.1.32

Kauppinen S, 1999, Dementia Suomessa 1995.

10.1097/00007632-199811010-00017

10.1080/j.1600-0412.1999.781008.x

10.1378/chest.93.1.114

Palomäki P, 1989, Sydäninfarkti ja sepelvaltimotautikuolema Kuopion läänissä vuonna 1983. Diagnoosikäytäntö ja epidemiologia

10.1080/080394899427052

10.1080/08039480151108507

10.1176/ps.49.3.384

Pakaslahti A, 1986, Principles and practices in diagnosing schizophrenia

Pakaslahti A, 1987, Psychiatr Fenn, 18, 63

Nieminen S, 2001, Health and wealth through knowledge. information system solutions in the health care sector, 9

10.1016/S8756-3282(98)00182-3

Honkanen R, 1984, Finnish accident registration project (FARP)

10.1186/1742-5573-4-2

Sund R, 2008, Methodological perspectives for register-based health system performance assessment. Developing a hip fracture monitoring system in Finland

10.3109/07853890.2011.586364

Kajantie M, 2006, How to carry out register-based health services research in Finland? Compiling complex study data in the REDD project

Sund R, 2009, On the register-based measurement of the prevalence and incidence of diabetes and its long-term complications. A technical report