Quality of life in young adults with cerebral palsy

Stanley, 2000, 14 Hutton, 2008, Outcome in cerebral palsy: life-expectancy, Paediatr Child Health, 18, 419, 10.1016/j.paed.2008.05.014 2008 1995, The World Health Organization Quality of Life Assessment (WHOQOL): position paper from the World Health Organization, Soc Sci Med, 41, 1403, 10.1016/0277-9536(95)00112-K Varni, 2006, The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the generic core scales and cerebral palsy module, Dev Med Child Neurol, 48, 442, 10.1017/S001216220600096X Vargus-Adams, 2006, Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy, Dev Med Child Neurol, 48, 343, 10.1017/S0012162206000752 Wake, 2003, Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire, Dev Med Child Neurol, 45, 194, 10.1111/j.1469-8749.2003.tb00930.x Dickinson, 2007, Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study, Lancet, 369, 2171, 10.1016/S0140-6736(07)61013-7 Bjornson, 2008, Self-reported health status and quality of life in youth with cerebral palsy and typically developing youth, Arch Phys Med Rehabil, 89, 121, 10.1016/j.apmr.2007.09.016 Shelly, 2008, The relationship between quality of life and functioning for children with cerebral palsy, Dev Med Child Neurol, 50, 199, 10.1111/j.1469-8749.2008.02031.x Albrecht, 1999, The disability paradox: high quality of life against all odds, Soc Sci Med, 48, 977, 10.1016/S0277-9536(98)00411-0 Salkever, 2000, Activity status, life satisfaction and perceived productivity for young adults with developmental disabilities, J Rehabil, 66, 4 Young, 2010, The health and quality of life outcomes among youth and young adults with cerebral palsy, Arch Phys Med Rehabil, 91, 143, 10.1016/j.apmr.2009.08.152 Jahnsen, 2004 Fugl-Meyer, 1991, Happiness and domain-specific life satisfaction in adult northern Swedes, Clin Rehabil, 5, 25, 10.1177/026921559100500105 Furukawa, 2001, A study on the subjective well-being of adult patients with cerebral palsy, J Phys Ther Sci, 13, 31, 10.1589/jpts.13.31 Kinney, 1992, Predicting life satisfaction among adults with physical disabilities, Arch Phys Med Rehabil, 73, 863 McCarthy, 2002, Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy, Dev Med Child Neurol, 44, 468, 10.1111/j.1469-8749.2002.tb00308.x Pirpiris, 2006, Function and well-being in ambulatory children with cerebral palsy, J Pediatr Orthop, 26, 119, 10.1097/01.bpo.0000191553.26574.27 Vargus-Adams, 2005, Health-related quality of life in childhood cerebral palsy, Arch Phys Med Rehabil, 86, 940, 10.1016/j.apmr.2004.10.036 Kennes, 2002, Health status of school-aged children with cerebral palsy: information from a population-based sample, Dev Med Child Neurol, 44, 240, 10.1017/S0012162201002018 Leger, 2008, Functional independence, health-related quality of life, parental stress in adolescents with disabilities. (Scientific Posters), Dev Med Child Neurol, 50, 46 Chen, 2004, Construction and validation of a quality of life instrument for young adults, Qual Life Res, 13, 747, 10.1023/B:QURE.0000021700.42478.ab Palisano, 1997, Developmental and reliability of a system to classify gross motor function in children with cerebral palsy, Dev Med Child Neurol, 39, 214, 10.1111/j.1469-8749.1997.tb07414.x Jahnsen, 2006, Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating, Dev Med Child Neurol, 48, 734, 10.1017/S0012162206001575 Sandstrom, 2004, Descriptions of functioning and health and relations to a gross motor classification in adults with cerebral palsy, Disabil Rehabil, 26, 1023, 10.1080/09638280410001703503 Morris, 2004, Reliability of family report for the gross motor function classification system, Dev Med Child Neurol, 46, 455, 10.1111/j.1469-8749.2004.tb00505.x Morris, 2006, Who best to make the assessment? Professionals' and families' classifications of gross motor function in cerebral palsy are highly consistent, Arch Dis Child, 91, 675, 10.1136/adc.2005.090597 Mahoney, 1965, Functional evaluation: the Barthel Index, Maryland State Med J, 14, 61 Wyller, 1995, The Barthel ADL Index one-year after stroke – comparison between relatives and occupational therapists scores, Age Ageing, 24, 398, 10.1093/ageing/24.5.398 Finch, 2002, 87 Collin, 1988, The Barthel ADL Index: a reliability study, Int Disabil Stud, 10, 61, 10.3109/09638288809164103 2004 Eiser, 2001, Can parents rate their child's health-related quality of life? Results of a systematic review, Qual Life Res, 10, 347, 10.1023/A:1012253723272 Jokovic, 2004, How well do parents know their children? Implications for proxy reporting of child health-related quality of life, Qual Life Res, 13, 1297, 10.1023/B:QURE.0000037480.65972.eb Armstrong, 1992, Self-perceived social function among disabled children in regular classrooms, J Dev Behav Pediatr, 13, 11, 10.1097/00004703-199202000-00004 Ellerton, 1996, Social support in children with a chronic condition, Can J Nurs Res, 28, 15 Skär, 2003, Peer and adult relationships of adolescents with disabilities, J Adolesc, 26, 635, 10.1016/S0140-1971(03)00061-7 Waters, 2007, Psychometric properties of the quality of life questionnaire for children with CP, Dev Med Child Neurol, 49, 49, 10.1017/S0012162207000126.x Davis, 2007, Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance, Qual Life Res, 16, 863, 10.1007/s11136-007-9187-3 Schneider, 2001, Health-related quality of life and functional outcome measures for children with cerebral palsy, Dev Med Child Neurol, 43, 601, 10.1017/S0012162201001098 Majnemer, 2007, Determinants of life quality in school-age children with cerebral palsy, J Pediatr, 151, 470, 10.1016/j.jpeds.2007.04.014 Rosenbaum, 2007, Quality of life and health-related quality of life of adolescents with cerebral palsy, Dev Med Child Neurol, 49, 516, 10.1111/j.1469-8749.2007.00516.x Maher, 2008, Self-reported quality of life in adolescents with cerebral palsy, Phys Occup Ther Pediatr, 28, 41, 10.1300/J006v28n01_04 King, 2000, Success in life for older adolescents with cerebral palsy, Qual Health Res, 10, 734, 10.1177/104973200129118796 McNaughton, 2002, “Getting your wheel in the door”: successful full-time employment experiences of individuals with cerebral palsy who use augmentative and alternative communication, Augment Altern Commun, 18, 59, 10.1080/07434610212331281171