Psychometric validation of the MIND Youth Questionnaire (MY-Q) to assess quality of life in Spanish patients with type 1 diabetes between 12 and 25 years old

Endocrinologia, Diabetes y Nutricion - Tập 70 - Trang 4-13 - 2023
David Rudilla1, Elena García2, Ángel M. Ortiz-Zúñiga3, María Clemente León4, Lía Nattero-Chávez5, Andrés Mingorance6, Ana Prado7, Laura Galiana8, Amparo Oliver8, Olga Simó-Servat3
1Air Liquide Healthcare Spain, Madrid, Spain
2Endocrinology Service, University Hospital 12 de Octubre, Madrid, Spain
3Endocrinology Service, University Hospital Vall d’Hebrón, Barcelona, Spain
4Pediatric Endocrinology Unit, University Hospital Vall d’Hebrón, Barcelona, Spain
5Endocrinology Service, University Hospital Ramón y Cajal, Madrid, Spain
6Endocrinology Service, University General Hospital of Alicante, Alicante, Spain
7Endocrinology Service, University Hospital Teresa Herrera, A Coruña, Spain
8Faculty of Psychology, University of Valencia, València, Spain

Tài liệu tham khảo

Barbara, 2017, Factors associated with diabetes-specific health-related quality of life in youth with type 1 diabetes: the global TEENs study, Diabetes Care, 40, 1002, 10.2337/dc16-1990 Testa, 1996, Assesment of quality-of-life outcomes, N Eng J Med, 334, 835, 10.1056/NEJM199603283341306 Delamater, 2007, Psychological care of children and adolescents with diabetes, Pediatr Diabetes, 8, 340, 10.1111/j.1399-5448.2007.00318.x De Wit, 2008, Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial, Diabetes Care, 31, 1521, 10.2337/dc08-0394 Aanstoot, 2009, Outcomes of the DAWN youth summits of 2007 and 2008, Pediatr Diabetes, 10, 21, 10.1111/j.1399-5448.2009.00611.x Skinner, 2006, A short form of the diabetes quality of life for youth questionnaire: exploratory and confirmatory analysis in a sample of 2,077 young people with type 1 diabetes mellitus, Diabetologia, 49, 621, 10.1007/s00125-005-0124-0 de Wit, 2012, Assessing diabetes-related quality of life of youth with type 1 diabetes in routine clinical care: the MIND youth questionnaire (MY-Q), Pediatric Diabetes, 13, 638, 10.1111/j.1399-5448.2012.00872.x Boomsma, 1982, Robustness of LISREL against small sample sizes in factor analysis models, 149 Kline, 2015 de Wit, 2007, Validation of the WHO-5 well-being index in adolescents with type 1 diabetes, Diabetes Care, 30, 2003, 10.2337/dc07-0447 Varni, 2013, Content validity of the PedsQL 3.2 diabetes module in newly diagnosed patients with type 1 diabetes mellitus ages 8–45, Qual. Life Res., 22, 2169, 10.1007/s11136-012-0339-8 Hu, 1999, Cutoff criteria for fit indexes in covariance structure analysis: conventional criteria versus new alternatives, Struct Equ Model, 6, 1, 10.1080/10705519909540118 Muthén, 1998 IBM Corp., 2020 de Wit, 2009, Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice, Pediatric Diabetes, 10.1111/j.1399-5448.2009.00543.x de Wit, 2008, Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psycho- social well-being: a randomized controlled trial, Diabetes Care, 31, 1521, 10.2337/dc08-0394 Skovlund, 2019, Can the routine use of patient-reported outcome measures improve the delivery of person-centered diabetes care? A review of recent developments and a case study, Curr Diab Rep, 19, 84, 10.1007/s11892-019-1190-x Delamater, 2018, ISPAD Clinical Practice Consensus Guidelines 2018: psychological care of children and adolescents with type 1 diabetes, Pediatr Diabetes, 19, 237, 10.1111/pedi.12736 Mattson, 2019, Committee on psychosocial aspects of C, Family H, council on children with D. Psychosocial factors in children and youth with special health care needs and their families, Pediatrics, 143, 10.1542/peds.2018-3171 Young-Hyman, 2016, Psychosocial care for people with diabetes: a position statement of the American Diabetes Association, Diabetes Care, 39, 2126, 10.2337/dc16-2053 Skinner, 2006, A short form of the Diabetes Quality of Life for Youth questionnaire: exploratory and confirmatory analysis in a sample of 2,077 young people with type 1 diabetes mellitus, Diabetologia, 49, 621, 10.1007/s00125-005-0124-0 Cassarino-Perez, 2014, Health-related quality of life and social support in adolescents with type 1 diabetes, Spanish J Psychol, 17, E108, 10.1017/sjp.2014.101