Psychological flexibility of parents of children with disabilities: A systematic literature review

Andrews, 2021, Effects of acceptance and commitment training plus behavior parent training on parental implementation of autism treatment, The Psychological Record, 1 Batool, 2015, Factors associated with stress among parents of children with autism, Journal of the College of Physicians and Surgeons Pakistan, 25, 752 Bawalsah, 2016, Stress and coping strategies in parents of children with physical, mental, and hearing disabilities in Jordan, International Journal of Education, 8, 1, 10.5296/ije.v8i1.8811 Bearss, 2015, Parent training in autism spectrum disorder: What’s in a name?, Clinical Child and Family Psychology Review, 18, 170, 10.1007/s10567-015-0179-5 Birdsey, 2021, Piloting the circle of security parenting (COS-P) group with parents of children with a learning disability: An exploratory case study, British Journal Of Learning Disabilities, 1 Blackledge, 2006, Using acceptance and commitment training in the support of parents of children diagnosed with autism, Child & Family Behavior Therapy, 28, 1, 10.1300/J019v28n01_01 Bodden, 2021, A pilot study examining the effect of acceptance and commitment therapy as parent counseling, Journal of Child and Family Studies, 30, 978, 10.1007/s10826-021-01926-2 Bond, 2003, The role of acceptance and job control in mental health, job satisfaction, and work performance, Journal of Applied Psychology, 88, 1057, 10.1037/0021-9010.88.6.1057 Bond, 2011, Preliminary psychometric properties of the acceptance and action questionnaire–II: A revised measure of psychological inflexibility and experiential avoidance, Behavior Therapy, 42, 676, 10.1016/j.beth.2011.03.007 Bourque-Cardona, 2017 Boykin, 2020, The moderating effect of psychological flexibility on event centrality in determining trauma outcomes, Psychological Trauma: Theory, Research, Practice, and Policy, 12, 193, 10.1037/tra0000490 Brassell, 2016, Parent’s psychological flexibility: Associations with parenting and child psychosocial well-being, Journal of Contextual Behavioral Science, 5, 111, 10.1016/j.jcbs.2016.03.001 Braun, 2012 Brown, 2014, Improving child and parenting outcomes following paediatric acquired brain injury: A randomised controlled trial of stepping stones triple P plus acceptance and commitment therapy, Journal of Child Psychology and Psychiatry, and Allied Disciplines, 55, 1172, 10.1111/jcpp.12227 Brown, 2015, Parental experiential avoidance as a potential mechanism of change in a parenting intervention for parents of children with pediatric acquired brain injury, Journal of Pediatric Psychology, 40, 464, 10.1093/jpepsy/jsu109 Brown, 2015 Brown, 2017, Employed parents of children with disabilities and work family life balance: A literature review, Child & Youth Care Forum, 46, 857, 10.1007/s10566-017-9407-0 Burke, 2015, Development of the parental psychological flexibility questionnaire, Child Psychiatry & Human Development, 46, 548, 10.1007/s10578-014-0495-x Cheron, 2009, Assessment of parental experiential avoidance in a clinical sample of children with anxiety disorders, Child Psychiatry and Human Development, 40, 383, 10.1007/s10578-009-0135-z Cherry, 2021, Defining and measuring “psychological flexibility”: A narrative scoping review of diverse flexibility and rigidity constructs and perspectives, Clinical Psychology Review, 84, 101, 10.1016/j.cpr.2021.101973 Committee on the Rights of Persons with Disabilities (2012). Concluding observations on the initial report of Hungary, CRPD/C/HUN/CO/1. 〈https://tbinternet.ohchr.org/_layouts/15/treatybodyexternal/Download.aspx?symbolno=CRPD/C/HUN/CO/1〉. Egger, 2001, Problems and limitations in conducting systematic reviews, Systematic Reviews in Health Care Meta-Analysis in Context, 43, 10.1002/9780470693926.ch3 Ellen Selman, 2018, ‘You are labelled by your children’s disability’–a community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom, Ethnicity & Health, 23, 781, 10.1080/13557858.2017.1294663 Emerson, 2021, The distinguishing characteristics of parents seeking a mindful parenting intervention in child mental health care, Journal of Child and Family Studies, 30, 881, 10.1007/s10826-020-01890-3 Fogle, 2018 Fonseca, 2020, Uncovering the links between parenting stress and parenting styles: The role of psychological flexibility within parenting and global psychological flexibility, Journal of Contextual Behavioral Science, 18, 59, 10.1016/j.jcbs.2020.08.004 Francis, 2016, The development and validation of the Comprehensive assessment of Acceptance and Commitment Therapy processes (CompACT), Journal of Contextual Behavioral Science, 5, 134, 10.1016/j.jcbs.2016.05.003 Fung, 2018, ACT processes in group intervention for mothers of children with autism spectrum disorder, Journal of Autism and Developmental Disorders, 48, 2740, 10.1007/s10803-018-3525-x Ganjiwale, 2016, Quality of life and coping strategies of caregivers of children with physical and mental disabilities, Journal of Family Medicine and Primary Care, 5, 343, 10.4103/2249-4863.192360 Garivani, 2020, The effectiveness of treatment based on acceptance and commitment to psychological flexibility, and perfectionism in mothers of children with tic disorders, Journal of Fundamentals of Mental Health, 22, 349 Gharashi, 2019, The effects of the acceptance and commitment therapy on the experiential avoidance and intolerance of uncertainty of mothers with hearing-impaired children, Auditory and Vestibular Research, 28, 256 Gloster, 2021, Psy-Flex: A contextually sensitive measure of psychological flexibility, Journal of Contextual Behavioral Science, 22, 13, 10.1016/j.jcbs.2021.09.001 Gloster, 2017, Psychological flexibility as a malleable public health target: Evidence from a representative sample, Journal of Contextual Behavioral Science, 6, 166, 10.1016/j.jcbs.2017.02.003 Gloster, 2020, The empirical status of acceptance and commitment therapy: A review of meta-analyses, Journal of Contextual Behavioral Science, 18, 181, 10.1016/j.jcbs.2020.09.009 Gona, 2016, Challenges and coping strategies of parents of children with autism on the Kenyan coast, Rural and Remote Health, 16, 3517 Gould, 2018, Evaluating the effects of acceptance and commitment training on the overt behavior of parents of children with autism, Journal of Contextual Behavioral Science, 7, 81, 10.1016/j.jcbs.2017.06.003 Greene, 2015, Development and validation of the parental acceptance questionnaire (6-PAQ), Journal of Contextual Behavioral Science, 4, 170, 10.1016/j.jcbs.2015.05.003 Gupta, 2012, Parental stress in raising a child with disabilities in India, Disability, CBR & Inclusive Development, 23, 10.5463/dcid.v23i2.119 Gur, 2020, Parents’ psychological, social and financial outcomes as related to the transition of their offspring with ID from adolescence to adulthood, Research in Developmental Disabilities, 105, 10.1016/j.ridd.2020.103740 Gur, 2022, Facilitators of sense of belonging among people with intellectual and developmental disabilities: A systematic review, Journal of Intellectual Disabilities Hahs, 2019, Randomized controlled trial of a brief acceptance and commitment training for parents of individuals diagnosed with autism spectrum disorders, Journal of Contextual Behavioral Science, 12, 154, 10.1016/j.jcbs.2018.03.002 Hayes, 2019 Hayes, 2013, The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder, Journal of Autism and Developmental Disorders, 43, 629, 10.1007/s10803-012-1604-y Hayes, 2003 Hayes, 2004, Measuring experiential avoidance: A preliminary test of a working model, The Psychological Record, 54, 553, 10.1007/BF03395492 Hernández-López, 2021, Psychological inflexibility and mental health symptoms during the COVID-19 lockdown in Spain: A longitudinal study, Journal of Contextual Behavioral Science, 19, 42, 10.1016/j.jcbs.2020.12.002 Huang, 2012, Fathers of children with disabilities: Encounters with health professionals in a Chinese context, Journal of Clinical Nursing, 21, 198, 10.1111/j.1365-2702.2011.03826.x Hughes, 2017, Acceptance and commitment therapy (ACT) for chronic pain, The Clinical Journal of Pain, 33, 552, 10.1097/AJP.0000000000000425 Hutchison, 2016, Relations between parenting stress, parenting style, and child executive functioning for children with ADHD or autism, Journal of Child and Family Studies, 25, 3644, 10.1007/s10826-016-0518-2 Jaiswal, 2018, Psychopathology and coping mechanisms in parents of children with intellectual disability, Indian Journal of Psychiatry, 60, 312, 10.4103/psychiatry.IndianJPsychiatry_259_17 Jansen, 2017, Psychological flexibility as a buffer against caregiver distress in families with psychosis, Frontiers in Psychology, 8, 10.3389/fpsyg.2017.01625 Juhásová, 2015, Comparison of quality of life of families with children with disability and families with children without disability, Procedia – Social and Behavioral Sciences, 174, 3378, 10.1016/j.sbspro.2015.01.1007 Kanstrup, 2016, A clinical pilot study of individual and group treatment for adolescents with chronic pain and their parents: Effects of acceptance and commitment therapy on functioning, Children, 3, 10.3390/children3040030 Kmet, 2004 Kulasinghe, 2021, Mental health, broad autism phenotype and psychological inflexibility in mothers of young children with autism spectrum disorder in Australia: A cross-sectional survey, Autism, 25, 1187, 10.1177/1362361320984625 Lappalainen, 2021, Supporting parents of children with chronic conditions: A randomized controlled trial of web-based and self-help ACT interventions, Internet Interventions, 24, 10.1016/j.invent.2021.100382 Lee, 2013, Maternal stress, well-being, and impaired sleep in mothers of children with developmental disabilities: A literature review, Research in Developmental Disabilities, 34, 4255, 10.1016/j.ridd.2013.09.008 Leeming, 2016, Parents are people too: The importance of parental psychological flexibility, Clinical Psychology: Science and Practice, 23, 158 Marino, 2021, The effect of acceptance and commitment therapy for improving psychological well-being in parents of individuals with autism spectrum disorders: A randomized controlled trial, Brain Sciences, 11, 10.3390/brainsci11070880 McCracken, 2021, The role of psychological flexibility in the context of COVID-19: Associations with depression, anxiety, and insomnia, Journal of Contextual Behavioral Science, 28, 10.1016/j.jcbs.2020.11.003 McCracken, 2011, Role of psychological flexibility in parents of adolescents with chronic pain: Development of a measure and preliminary correlation analyses, PAIN®, 152, 780, 10.1016/j.pain.2010.12.001 Metzler, 2008 Moreno Méndez, 2020, Psychological inflexibility and adherence to the therapy among parents of autistic children, Avances Enōsis Psicología Latinoamericana, 38, 146 Moyer, 2015, The role of psychological flexibility in the relationship between parent and adolescent distress, Journal of Child and Family Studies, 24, 1406, 10.1007/s10826-014-9947-y Muñoz, 2015, Pediatric hearing aid use: Parent-reported challenges, Ear and Hearing, 36, 279, 10.1097/AUD.0000000000000111 Muñoz, 2016, Pediatric hearing aid management: Parent-reported needs for learning support, Ear and Hearing, 37, 703, 10.1097/AUD.0000000000000338 Norlin, 2013, Parents of children with and without intellectual disability: Couple relationship and individual well-being, Journal of Intellectual Disability Research: JIDR, 57, 552, 10.1111/j.1365-2788.2012.01564.x Ong, 2019, Measuring psychological inflexibility in adult and child hearing loss, International Journal of Audiology, 58, 643, 10.1080/14992027.2019.1630759 Page, 2021, The PRISMA 2020 statement: an updated guideline for reporting systematic reviews, BMJ, 372, n71, 10.1136/bmj.n71 Palaganas, 2017, Reflexivity in qualitative research: A journey of learning, Qualitative Report, 22, 426 Paster, 2009, A comparison of coping strategies used by parents of children with disabilities and parents of children without disabilities, Research in Developmental Disabilities, 30, 1337, 10.1016/j.ridd.2009.05.010 Patel, D. & Brown, K. A. (2017). An overview of the conceptual framework and definitions of disability. Undefined. 〈https://www.semanticscholar.org/paper/An-Overview-of-the-Conceptual-Framework-and-of-Patel-Brown/d1f863715752bdfce1d698a22e2dd5f873894963〉. Petrongolo, 2014, Stress in mothers of newly diagnosed children with autism spectrum disorders: Barriers to care, use of support services, and child behavior, PCOM Psychology Dissertations Purssell, 2021, Undertaking qualitative reviews in nursing and education-A method of thematic analysis for students and clinicians, International Journal of Nursing Studies Advances, 3, 10.1016/j.ijnsa.2021.100036 Richardson, 2019, Psychological flexibility as a mediator of the association between early life trauma and psychological symptoms, Personality and Individual Differences, 141, 101, 10.1016/j.paid.2018.12.029 Rolffs, 2018, Disentangling components of flexibility via the hexaflex model: Development and validation of the multidimensional psychological flexibility inventory (MPFI), Assessment, 25, 458, 10.1177/1073191116645905 Ruiz, 2013, Measuring experiential avoidance and psychological inflexibility: The Spanish version of the Acceptance and Action Questionnaire-II, Psicothema, 25, 123 Ryan, 2018, Whoever shouts the loudest: Listening to parents of children with disabilities, Journal of Applied Research in Intellectual Disabilities, 31, 203, 10.1111/jar.12354 Sairanen, 2018, Psychological inflexibility explains distress in parents whose children have chronic conditions, PLOS ONE, 13, 10.1371/journal.pone.0201155 Sairanen, 2022, Effects of an online acceptance and commitment therapy intervention on children’s quality of life, Journal of Child and Family Studies, 31, 1079, 10.1007/s10826-022-02234-z Sairanen, 2019, Effectiveness of a web-based acceptance and commitment therapy intervention for wellbeing of parents whose children have chronic conditions: A randomized controlled trial, Journal of Contextual Behavioral Science, 13, 94, 10.1016/j.jcbs.2019.07.004 San Miguel, 2022, Moderators and predictors in a parent hearing aid management eHealth program, International Journal of Audiology, 0, 1, 10.1080/14992027.2022.2142161 Scherer, 2019, Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis, PLoS One, 14, 10.1371/journal.pone.0219888 Sheikh, 2018, Psychiatric morbidity, perceived stress and ways of coping among parents of children with intellectual disability in Lahore, Pakistan, Cureus, 10 Takuri, 2017, Stress and coping mechanism among the parents of intellectual disable children, Journal of Advanced Academic Research, 10.3126/jaar.v1i2.16589 Tellegen, 2013, Stepping stones triple P-positive parenting program for children with disability: A systematic review and meta-analysis, Research in Developmental Disabilities, 34, 1556, 10.1016/j.ridd.2013.01.022 Tyndall, 2019, The acceptance and action questionnaire-II (AAQ-II) as a measure of experiential avoidance: Concerns over discriminant validity, Journal of Contextual Behavioral Science, 12, 278, 10.1016/j.jcbs.2018.09.005 Vernhet, 2019, Coping strategies of parents of children with autism spectrum disorder: A systematic review, European Child & Adolescent Psychiatry, 28, 747, 10.1007/s00787-018-1183-3 Waddington, 2021, A human rights approach to disability assessment, Journal of International and Comparative Social Policy, 37, 1, 10.1017/ics.2020.21 Wallace, 2015, The role of parent psychological flexibility in relation to adolescent chronic pain: Further instrument development, The Journal of Pain, 16, 235, 10.1016/j.jpain.2014.11.013 Whiting, 2017, Cognitive and psychological flexibility after a traumatic brain injury and the implications for treatment in acceptance-based therapies: A conceptual review, Neuropsychological Rehabilitation, 27, 263, 10.1080/09602011.2015.1062115 Whittingham, 2014, Interventions to reduce behavioral problems in children with cerebral palsy: An RCT, Pediatrics, 133, e1249, 10.1542/peds.2013-3620 Whittingham, 2019, Parenting intervention combined with acceptance and commitment therapy: Processes of change, Journal of Child and Family Studies, 28, 1673, 10.1007/s10826-019-01386-9 Whittingham, 2022, Parenting acceptance and commitment therapy: An RCT of an online course with families of children with CP, Behaviour Research and Therapy, 155, 10.1016/j.brat.2022.104129 Whittingham, 2013, Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy, Child: Care, Health and Development, 39, 366, 10.1111/j.1365-2214.2012.01396.x Wolgast, 2014, What does the acceptance and action questionnaire (AAQ-II) really measure, Behavior Therapy, 45, 831, 10.1016/j.beth.2014.07.002 World Report on Disability Summary (2022). 〈https://www.who.int/publications-detail-redirect/WHO-NMH-VIP-11.01〉. Zhou, 2014, Parenting styles and parents’ perspectives on how their own emotions affect the functioning of children with autism spectrum disorders, Family Process, 53, 67, 10.1111/famp.12058