Psychological and family functioning and quality of life in adolescents with cystic fibrosis
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Tài liệu tham khảo
Cystic Fibrosis Foundation, Patient Registry 2001 Annual Report, Bethesda, Maryland.
Quittner, 1998, Measurement of quality of life in cystic fibrosis, Curr Opin Pulm Med, 4, 326, 10.1097/00063198-199811000-00003
Kotwicki, 2001, Assessing the quality of life in children with cystic fibrosis, WMJ, 100, 50
Cadman, 1987, Chronic illness, disability and mental and social wellbeing: findings of the Ontario Child Health Study, Pediatrics, 79, 705, 10.1542/peds.79.5.805
Cappelli, 1989, Chronic disease and its impact: the adolescents perspective, J Adolesc Health Care, 10, 283, 10.1016/0197-0070(89)90058-2
Lask, 1995, Psychological aspects of cystic fibrosis
Boyle, 1976, Emotional adjustment of adolescent and young adults with cystic fibrosis, J Pediatr, 88, 318, 10.1016/S0022-3476(76)81011-6
Zeltzer, 1980, Psychologic effects of illness in adolescence. II—impact of illness in adolescence—crucial issues and coping styles, J Pediatr, 97, 132, 10.1016/S0022-3476(80)80153-3
Blair, 1994, Psychosocial functioning of young adults with cystic fibrosis and their families, Thorax, 49, 798, 10.1136/thx.49.8.798
Anderson, 2001, Psychosocial functioning of adults with cystic fibrosis, Chest, 119, 1079, 10.1378/chest.119.4.1079
Abbott, 2003, Coping with cystic fibrosis, J R Soc Med, 96, 42
Ievers, 1996, Family and parental functioning in cystic fibrosis, J Dev Behav Pediatr, 17, 48, 10.1097/00004703-199602000-00008
Graetz, 2000, An Australian study of adolescents with cystic fibrosis: perceived supportive and non-supportive behaviour from families and friends and psychological adjustment, J Adolesc Health, 26, 64, 10.1016/S1054-139X(99)00026-9
Pendleton, 2002, Religious/spiritual coping in childhood cystic fibrosis: a qualitative study, Pediatrics, 109, E8, 10.1542/peds.109.1.e8
Goodyer, 1995, Risk and resilience processed in childhood and adolescence
Nunn, 1996, Personal hopefulness: a conceptual review of the relevance of the perceived future to psychiatry, Br J Med Psychol, 69, 227, 10.1111/j.2044-8341.1996.tb01866.x
Gudas, 1991, Perceptions of medical compliance in children and adolescents with cystic fibrosis, J Dev Behav Pediatr, 12, 236, 10.1097/00004703-199108000-00004
Hubble, 1999
Swanston, 1999, Hoping and coping in young people who have been sexually abused, Eur Child Adolesc Psychiatry, 8, 134, 10.1007/s007870050094
Quittner AL, Buu A, Watrous M, Davis MA. Cystic Fibrosis Questionnaire: a health-related quality of life measure. Unpublished User Manual (English Version 1.0); 2000.
Quittner, 2000, Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis, J Pediatr Psychol, 25, 403, 10.1093/jpepsy/25.6.403
Moos, 1994
Piotrowski, 1999, Use of tests and measures in marital and family research, Psychol Rep, 84, 1251, 10.2466/pr0.1999.84.3c.1251
Moos, 1990, Conceptual and empirical approaches to developing family-based assessment procedures: resolving the case of the family environment scale, Fam Process, 29, 199, 10.1111/j.1545-5300.1990.00199.x
Derogatis, 1994
Nunn, 1996, The construction and characteristics of an instrument to measure personal hopefulness, Psychol Med, 26, 531, 10.1017/S0033291700035613
Shwachman, 1958, Clinical evaluation and grading criteria for patients with cystic fibrosis, Am J Dis Child, 6, 96
Polgar, 1971, Standards in pulmonary function tests
Munro, 2002
Sawyer, 2001, The mental health of young people in Australia: key findings from the child and adolescent component of the national survey of mental health and well-being, Aust N Z J Psychiatry, 35, 806, 10.1046/j.1440-1614.2001.00964.x
Cystic Fibrosis Australia. Cystic Fibrosis in Australia and New Zealand 2000: Annual Report of the Australasian Cystic Fibrosis Data Registry. North Ryde, New South Wales; 2002.
Landolt, 2003, Incidence and associations of parental and child posttraumatic stress symptoms in pediatric patients, J Child Psychol Psychiatry, 44, 1199, 10.1111/1469-7610.00201
Waters, 1999, Clinical outcomes of newborn screening for cystic fibrosis, Arch Dis Child Fetal Neonatal Ed, 80, F1, 10.1136/fn.80.1.F1
Wainwright, 2003, Age appropriate pubertal development in cystic fibrosis, 118
Beck AT, Cognitive models of depression. In: Clinical advances in cognitive psychotherapy: theory and applications. In: Leahy RL, Dowd ET (eds), New York: Springer Publishing Co.
Czajkowski, 1986, Predicting medical compliance among adolescents with cystic fibrosis, Health Psychol, 5, 297, 10.1037/0278-6133.5.3.297
Drotar, 1994, Preliminary report: age differences in parent and child responsibilities for management of cystic fibrosis and insulin dependent diabetes mellitus, J Dev Behav Pediatr, 15, 367, 10.1097/00004703-199408000-00008
Patterson, 1990, The impact of family functioning on health changes in children with cystic fibrosis, Soc Sci Med, 31, 291, 10.1016/0277-9536(90)90057-Y
Blum, 1992, Chronic illness and disability in adolescence, J Adolesc Health, 13, 364, 10.1016/1054-139X(92)90029-B
Wolman, 1994, Emotional well-being among adolescents with and without chronic conditions, J Adolesc Health, 15, 199, 10.1016/1054-139X(94)90504-5
Staab, 1998, Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?, Thorax, 53, 727, 10.1136/thx.53.9.727
Boekaerts, 1999, Stress, coping and adjustment in children with a chronic disease: a review of the literature, Disabil Rehabil, 21, 311, 10.1080/096382899297576
Henry, 2003, Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients, Qual Life Res, 12, 63, 10.1023/A:1022037320039
Wenninger, 2003, The revised German cystic fibrosis questionnaire: validation of a disease-specific health-related quality of life instrument, Qual Life Res, 12, 77, 10.1023/A:1022011704399