Promoting Wellness in People with Intellectual and Developmental Disabilities Through Relationships
Tóm tắt
Social ties are essential to the health and wellness of people with intellectual and developmental disabilities (IDD); however, a better understanding of factors that promote and support the development of social relationships is needed to develop effective policies and interventions to promote wellness. Three factors that influence the formation and maintenance of social ties for people with IDD are individual capacity, interpersonal supports, and organizational or community supports. The benefits of a strong social network and the dangers of isolation have been well established in people with and without IDD. Yet, there is a lack of research and planning around how best to support people with IDD in developing and maintaining social relationships. Policy and organizational changes as well as increased research attention is needed to promote the health and wellness of people with IDD by nurturing relationships.
Tài liệu tham khảo
Helliwell JF, Putnam RD. The social context of well-being. Philos Trans R Soc B Biol Sci. 2004;359(1449):1435–46.
Cohen S, Wills TA. Stress, social support, and the buffering hypothesis. Psychol Bull. 1985;98(2):310–57.
Berkman LF, Syme SL. Social networks, host resistance and mortality: a nine-year follow-up study of Alameda County residents. Am J Epidemiol. 1979;109:186–204.
Broadhead WE, Kaplan BH, James SA, Wagner EH, Schoenbach VJ, Grimson R, et al. The epidemiologic evidence for a relationship between social support and health. Am J Epidemiol. 1983;117(5):521–37.
George LK, Blazer DG, Hughes DC, Fowler N. Social support and the outcome of major depression. Br J Psychiatry. 1989;154(4):478–85.
Olstad R, Sexton H, Søgaard AJ. The Finnmark study. A prospective population study of the social support buffer hypothesis, specific stressors and mental distress. Soc Psychiatry Psychiatr Epidemiol. 2001;36(12):582–9.
Vogt TM, Mullooly JP, Ernst D, Pope CR, Hollis JF. Social networks as predictors of ischemic heart disease, cancer, stroke and hypertension: incidence, survival and mortality. J Clin Epidemiol. 1992;45(6):659–66.
Leavy RL. Social support and psychological disorder: a review. J Community Psychol. 1983;11(1):3–21.
Cohen S. Social relationships and health. Am Psychol. 2004;59(8):676–84.
Lyyra TM, Heikkinen RL. Perceived social support and mortality in older people. J Gerontol Ser B Psychol Sci Soc Sci. 2006;61(3):S147–52.
Kawachi I, Berkman LF. Social ties and mental health. J Urban Health. 2001;78(3):458–67.
Kessler RC, Price RH, Wortman CB. Social factors in psychopathology: stress, social support, and coping processes. Annu Rev Psychol. 1985;36(1):531–72.
Kroenke CH, Kubzansky LD, Schernhammer ES, Holmes MD, Kawachi I. Social networks, social support, and survival after breast cancer diagnosis. J Clin Oncol. 2006;24(7):1105–11.
Tomaka J, Thompson S, Palacios R. The relation of social isolation, loneliness, and social support to disease outcomes among the elderly. J Aging Health. 2006;18(3):359–84.
Uchino BN. Social support and physical health: understanding the health consequences of relationships. Yale University Press; 2004.
Holt-Lunstad J, Smith TB, Layton JB. Social relationships and mortality risk: a meta-analytic review. PLoS Med. 2010;7(7):e1000316.
Siedlecki KL, Salthouse TA, Oishi S, Jeswani S. The relationship between social support and subjective well-being across age. Soc Indic Res. 2014;117(2):561–76.
Lunsky Y, Benson BA. Association between perceived social support and strain, and positive and negative outcome for adults with mild intellectual disability. J Intellect Disabil Res. 2001;45(2):106–14.
Meins W. Prevalence and risk factors for depressive disorders in adults with intellectual disability. Aust N Z J Dev Disabil. 1993;18(3):147–56.
Scott HM, Havercamp SM. Mental health for people with intellectual disability: the impact of stress and social support. Am J Intellect Dev Disabil. 2014;119(6):552–64.
Simplican SC, Leader G, Kosciulek J, Leahy M. Defining social inclusion of people with intellectual and developmental disabilities: an ecological model of social networks and community participation. Res Dev Disabil. 2015;38:18–29.
Taheri A, Perry A, Minnes P. Examining the social participation of children and adolescents with intellectual disabilities and autism spectrum disorder in relation to peers. J Intellect Disabil Res. 2016;60(5):435–43.
Heiman T. Friendship quality among children in three educational settings. J Intellect Dev Disabil. 2000;25(1):1–12.
Lippold T, Burns J. Social support and intellectual disabilities: a comparison between social networks of adults with intellectual disability and those with physical disability. J Intellect Disabil Res. 2009;53(5):463–73.
Kamstra A, Putten AA, Vlaskamp C. The structure of informal social networks of persons with profound intellectual and multiple disabilities. J Appl Res Intellect Disabil. 2015;28(3):249–56.
Bigby C, Knox M, Beadle-Brown J, Bould E. Identifying good group homes: qualitative indicators using a quality of life framework. Intellect Dev Disabil. 2014;52(5):348–66.
Fulford C, Cobigo V. Friendships and intimate relationships among people with intellectual disabilities: a thematic synthesis. J Appl Res Intellect Disabil. 2018;31(1):e18–35.
Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Rep. 2004;119(4):418–26.
Havercamp SM, Scott HM. National health surveillance of adults with disabilities, adults with intellectual and developmental disabilities, and adults with no disabilities. Disabil Health J. 2015;8(2):165–72.
Verdonschot MM, De Witte LP, Reichrath E, Buntinx WH, Curfs LM. Community participation of people with an intellectual disability: a review of empirical findings. J Intellect Disabil Res. 2009;53(4):303–18.
Firth H, Rapley M. From acquaintance to friendship: Issues for people with learning disabilities. Kidderminster: BIMH Publications; 1990.
Swango-Wilson A. Meaningful sex education programs for individuals with intellectual/developmental disabilities. Sex Disabil. 2011;29(2):113–8.
Hughes C, Kaplan L, Bernstein R, Boykin M, Reilly C, Brigham N, et al. Increasing social interaction skills of secondary school students with autism and/or intellectual disability: a review of interventions. Res Pract Persons Severe Disabil. 2012;37(4):288–307.
McGaw S, Ball K, Clark A. The effect of group intervention on the relationships of parents with intellectual disabilities. J Appl Res Intellect Disabil. 2002;15(4):354–66.
Ward KM, Atkinson JP, Smith CA, Windsor R. A friendships and dating program for adults with intellectual and developmental disabilities: a formative evaluation. Intellect Dev Disabil. 2013;51(1):22–32.
Ward KM, Windsor R, Atkinson JP. A process evaluation of the friendships and dating program for adults with developmental disabilities: measuring the fidelity of program delivery. Res Dev Disabil. 2012;33(1):69–75.
Asselt-Goverts AE, Embregts PJ, Hendriks AH, Frielink N. Experiences of support staff with expanding and strengthening social networks of people with mild intellectual disabilities. J Community Appl Soc Psychol. 2014;24(2):111–24.
Wilson NJ, Jaques H, Johnson A, Brotherton ML. From social exclusion to supported inclusion: adults with intellectual disability discuss their lived experiences of a structured social group. J Appl Res Intellect Disabil. 2017;30(5):847–58.
Braddock DL, Hemp R, Tanis ES, Wu J, Haffer L. The state of the states in intellectual and developmental disabilities, 2017. American Association on Intellectual and Developmental Disabilities; 2017.
Sigstad HMH. Significance of friendship for quality of life in adolescents with mild intellectual disability: a parental perspective. J Intellect Develop Disabil. 2016;41(4):289–98.
Mailick Seltzer M, Wyngaarden Krauss M. Quality of life of adults with mental retardation/developmental disabilities who live with family. Dev Disabil Res Rev. 2001;7(2):105–14.
Bane G, Deely M, Donohoe B, Dooher M, Flaherty J, Iriarte EG, et al. Relationships of people with learning disabilities in Ireland. Br J Learn Disabil. 2012;40(2):109–22.
Krauss MW, Seltzer MM, Goodman SJ. Social support networks of adults with mental retardation who live at home. Am J Ment Retard. 1992.
Bigby C. When parents relinquish care: informal support networks of older people with intellectual disability. J Appl Res Intellect Disabil. 1997;10(4):333–44.
Kamstra A, Putten AA, Post WJ, Vlaskamp C. Informal social networks of people with profound intellectual and multiple disabilities: relationship with age, communicative abilities and current living arrangements. J Appl Res Intellect Disabil. 2015;28(2):159–64.
Rossetti Z, Hall S. Adult sibling relationships with brothers and sisters with severe disabilities. Res Pract Persons Severe Disabil. 2015;40(2):120–37.
Floyd FJ, Costigan CL, Richardson SS. Sibling relationships in adolescence and early adulthood with people who have intellectual disability. Am J Intellect Dev Disabil. 2016;121(5):383–97.
Kramer J, Hall A, Heller T. Reciprocity and social capital in sibling relationships of people with disabilities. Ment Retard. 2013;51(6):482–95.
Lunsky Y, Neely LC. Extra-individual sources of social support as described by adults with mild intellectual disabilities. Ment Retard. 2002;40(4):269–77.
NASDDDS and HSRI 2015 National Core Indicators Staff Stability Survey Report. A collaboration on the National Association of State Directors of Developmental Disability Services and Human Services Research Institute 2016. 47 p. Available from: https://www.hsri.org/files/uploads/publications/2015_Staff_Stability_Survey_Report_V2.pdf .
Gaventa BC. Spirituality, quality of life, and pathways to inclusion and belonging (invited presentation), topics in developmental disabilities. Columbus: The Ohio State University Nisonger Center; 2018.
Lunsky Y. Individual differences in interpersonal relationships for persons with mental retardation. Int Rev Res Men Retarda. 2006;31:117–61.
Mason P, Timms K, Hayburn T, Watters C. How do people described as having a learning disability make sense of friendship? J Appl Res Intellect Disabil. 2013;26(2):108–18.
Wiener J, Tardif CY. Social and emotional functioning of children with learning disabilities: does special education placement make a difference? Learn Disabil Res Pract. 2004;19(1):20–32.
Siperstein GN, Leffert JS, Wenz-Gross M. The quality of friendships between children with and without learning problems. Am J Ment Retard. 1997;102(2):111–25.
Friedman C, Rizzolo MC. Friendship, quality of life, and people with intellectual and developmental disabilities. J Dev Phys Disabil. 2018;30(1):39–54.
Bigby C. Known well by no-one: trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. J Intellect Dev Disabil. 2008;33(2):148–57.
McConkey R, Collins S. The role of support staff in promoting the social inclusion of persons with an intellectual disability. J Intellect Disabil Res. 2010;54(8):691–700.
McConkey R, Dowling S, Hassan D, Menke S. Promoting social inclusion through unified sports for youth with intellectual disabilities: a five-nation study. J Intellect Disabil Res. 2013;57(10):923–35.
Fish TR, Rabidoux P. Next chapter book club: a model community literacy program for people with intellectual disabilities. Woodbine House; 2009.
Fish TR, Rabidoux P, Ober J, Graff VL. Community literacy and friendship model for people with intellectual disabilities. Ment Retard. 2006;44:443–6.
Hollins S, Egerton J, Carpenter B. Book clubs for people with intellectual disabilities: the evidence and impact on wellbeing and community participation of reading wordless books. Adv Ment Health Intellect Disabil. 2016;10(5):275–83. https://doi.org/10.1108/AMHID-08-2016-0020.
Lunsky Y, Benson BA. Reliability of ratings of consumers with mental retardation and their staff on multiple measures of social support. Am J Ment Retard. 1997;102(3):280–4.
Scott HM, Havercamp SM. Comparisons of self and proxy report on health-related factors in people with intellectual disability. J Appl Res Intellect Disabil. 2018.
Venema E, Otten S, Vlaskamp C. The efforts of direct support professionals to facilitate inclusion: the role of psychological determinants and work setting. J Intellect Disabil Res. 2015;59(10):970–9.
Mansell J, Beadle-Brown J. Person-centred planning or person-centred action? Policy and practice in intellectual disability services. J Appl Res Intellect Disabil. 2004;17(1):1–9.
Kamstra A, van der Putten AA, Vlaskamp C. Efforts to increase social contact in persons with profound intellectual and multiple disabilities: analysing individual support plans in the Netherlands. J Intellect Disabil. 2017;21(2):158–74.
Bigby C, Beadle-Brown J. Improving quality of life outcomes in supported accommodation for people with intellectual disability: what makes a difference? J Appl Res Intellect Disabil. 2018;31(2):e182–200.
van Asselt-Goverts AE, Embregts PJ, Hendriks AH. Evaluation of a social network intervention for people with mild to borderline intellectual disabilities. J Appl Res Intellect Disabil. 2018;31(2):e229–43.