Prevalence of psychological distress among parents of children with intellectual disabilities in Malawi

Charles Masulani-Mwale1, Felix Kauye2, Melissa Gladstone3, Don P. Mathanga2
1St. John of God Mental Health Services, Malawi, Box 744, Mzuzu, Malawi
2Department of Community Health, University of Malawi College of Medicine, P/Bag 860, Blantyre, Malawi
3UK Department of Women and Children’s Health, Institute of Translational Medicine, University of Liverpool, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK

Tóm tắt

Từ khóa


Tài liệu tham khảo

Schalock RL, Luckasson RA, Shogren KA. The renaming of mental retardation: understanding the change to the term intellectual disability. Intellect Dev Disabil. 2007;45(2):116–24.

Dave D, Mittal S, Tiwari D, Parmar M, Gedan S, Patel V. Study of anxiety and depression in caregivers of intellectually disabled children. J Res Med Dent Sci. 2017;2(1):8–13.

Zaman SS, Khan NZ, Islam S. Validity of the ten question for screening serious childhood disability: results from urban Bangladesh. Int J Epidemiol. 1992;19(3):613–20.

Mung'ala-Odera V, Meehan R, Njuguna P, Mturi N, Alcock KJ, Newton CR. Prevalence and risk factors of neurological disability and impairment in children living in rural Kenya. Int J Epidemiol. 2006;35(3):683–8.

Tataryn M, Polack S, Chokotho L, Mulwafu M, Kayange P, Banks LM, et al. Childhood disability in Malawi: a population based assessment using the key informant method. BMC Pediatr. 2017;17(198)

Dykens EM, Fisher MH, Taylor J, Lambert W, Miodrag N. Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics. 2014;134(2):54–63.

Hastings RP, Beck A. Practitioner review: stress intervention for parents of children with intellectual disabilities. J Child Psychiatry. 2004;45:1338–49.

Emerson E. Use of the strengths and difficulties questionnaire to assess the mental health needs of children and adolescents with intellectual disabilities. J Intellect Dev Disabil. 2005;30:14–23.

Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626–e36.

Mbugua MN, Kuria MW, Ndetei DM. The prevalence of depression among family caregivers of children with intellectual disability in a rural setting in Kenya. Int J Fam Med. 2011;2011

Fido A, Al Saad S. Psychological effects of parenting children with autism prospective study in Kuwait. Open J Psychiatry. 2013;3(02):5.

Al-Kuwari MG. Psychological health of mothers caring for mentally disabled children in Qatar. Neurosciences. 2007;12(4):312–7.

Cuzzocrea F, Larcan R, Westh F. Family and parental functioning in parents of disabled children. Nordic Psychology. 2013;65(3):271–87.

Santamaria F, Cuzzocrea F, Gugliandolo M, Larcan R. Marital satisfaction and attribution style in parents of children with autism spectrum disorder, Down syndrome and non-disabled children. Life Span Disability. 2012;15(1):19–37.

Wolfensberger W. Counseling the parents of the retarded. Quoted in: Baumeister BA, editor. Mental retardation: appraisal, education, and rehabilitation. Chicago: Aldene; 1969. p.329–400.

Witt WP, Riley AW, Coiro MJ. Childhood functional status, family stressors, and psychosocial adjustment among school-aged children with disabilities in the United States. Arch Paediatr Adolesc Med. 2003;157:687–95.

Green SE. “We’re tired, not sad”: benefits and burdens of mothering a child with a disability. Soc Sci Med. 2007;64(1):150–63.

Khamis V. Psychological distress among parents of children with mental retardation in the United Arab Emirates. Soc Sci Med. 2007;64(4):850–7.

Olsson MB, Hwang C. Depression in mothers and fathers of children with intellectual disability. J Intellect Disabil Res. 2001;45(6):535–43.

Merkaj V, Kika M, Simaku A. Symptoms of stress, depression and anxiety between parents of autistic children and parents of tipically developing children. AJIS. 2013;2(2):345.

Zeng Y, Zhou Y, Lin J. Perceived burden and quality of life in Chinese caregivers of people with serious mental illness: A path analysis. Int J Psychosoc Rehabil Vol 20 (1) 105. 2016;111.

Susman L. Effects of increased parental knowledge of development of children with disabilities: University of Illinois at Chicago; 2012.

Waters L. Protégé–mentor agreement about the provision of psychosocial support: the mentoring relationship, personality, and workload. J Vocat Behav. 2004;65(3):519–32.

World Health Organization W. A user’s guide to the Self Reporting Questionnaire (SRQ). Geneva: World Health Organization; 1994. p. 1–84.

Stewart RC, Kauye F, Umar E, Vokhiwa M, Bunn J, Fitzgerald M, et al. Validation of a Chichewa version of the self-reporting questionnaire (SRQ) as a brief screening measure for maternal depressive disorder in Malawi, Africa. J Affect Disord. 2009;112(1):126–34.

Teri L. The use of the Beck depression inventory with adolescents. J Abnorm Child Psychol. 1982;10(2):277–84.

Azeem MW, Dogar IA, Shah S, Cheema MA, Asmat A, Akbar M, et al. Anxiety and depression among parents of children with intellectual disability in Pakistan. J Can Acad Child Adolesc Psychiatry. 2013;22(4):290.

Dave D, Mittal S, Tiwari D, Parmar M, Gedan S, Patel V. Study of anxiety and depression in caregivers of intellectually disabled children. J Res Med Den Sci. 2014;2(1):8–13.

Sanders JL, Morgan SB. Family stress and adjustment as perceived by parents of children with autism or Down syndrome: implications for intervention. Child Family Behav Ther. 1997;19(4):15–32.

Omran AR. The epidemiologic transition: a theory of the epidemiology of population change. Milbank Q. 2005;83(4):731–57.

Hartley OP, Baguwemu A, Ddamulira M, Chavuta A. How do carers of disabled children cope? The Ugandan perspective. Child Care Health Dev. 2005;31(2):167–80.

Lwanga-Ntale C. Chronic poverty and disability in Uganda. Ithaca: Cornell University ILR School; 2003.

Groce N, Kett M, Lang R, Train J. Disability and poverty: the need for a more nuanced understanding of implications for development policy and practice. Third World Q. 2011;32(8):1493–513.

ACPF. The African Report on Children with Disabilities: Promising starts and persisting challenges. Addis Ababa: The African Child Policy Forum (ACPF); 2014.

Sharby N. Health and behavior, the interplay of biological, behavioral and societal influences. J Phys Ther Educ. 2005;19(2):71.

Pellmar TC, Brandt EN Jr, Baird MA. Health and behavior: the interplay of biological, behavioral, and social influences: summary of an Institute of Medicine report. Am J Health Promot. 2002;16(4):206–19.

Hastings R, Beck A. Practitioner review: stress intervention for parents of children with intellectual disabilities. J Child Psychol Psychiatry. 2004:1338–49.

Weiss JA, Sullivan A, Diamond T. Parent stress adaptive functioning of individuals with developmental disabilities. J Dev Disabil. 2003;10:129–35.

Webster-Stratton C, Hammond M. Conduct problems and level of social competence in head start children: prevalence, pervasiveness, and associated risk factors. Clin Child Fam Psychol Rev. 1998;1:101–24.

Pakenham KI, Sofronoff K, Samios C. Finding meaning in parenting a child with Asperger syndrome: correlates of sense making and benefit finding. Res Dev Disabil. 2004;25(3):245–64.

Sofronoff K, Farbotko M. The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. Autism. 2002;6(3):271–86.

Miller AC, Gordon RM, Daniele RJ, Diller L. Stress, appraisal, and coping in mothers of disabled and nondisabled children. J Pediatr Psychol. 1992;17(5):587–605.

Kuhn JC, Carter AS. Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. Am J Orthopsychiatry. 2006;76(4):564–75.

McIntyre LL. Adapting Webster-Stratton’s incredible years parent training for children with developmental delay: findings from a treatment group only study. J Intellect Disabil Res. 2008;52:1176–92.

Elgar FJ, Mills RS, McGrath PJ, Waschbusch DA, Brownridge DA. Maternal and paternal depressive symptoms and child maladjustment: the mediating role of parental behavior. J Abnorm Child Psychol. 2007;35(6):943–55.

Kriegsman DM, Penninx BW, Van Eijk JTM, Boeke AJP, Deeg DJ. Self-reports and General practitioner information on the presence of chronic diseases in community dwelling elderly: a study on the accuracy of patients' self-reports and on determinants of inaccuracy. J Clin Epidemiol. 1996;49(12):1407–17.

Ritter PL, Stewart AL, Kaymaz H, Sobel DS, Block DA, Lorig KR. Self-reports of health care utilization compared to provider records. J Clin Epidemiol. 2001;54(2):136–41.