Perceived stress and social support needs among primary family caregivers of ICU Patients in Taiwan

Heart and Lung: Journal of Acute and Critical Care - Tập 50 - Trang 491-498 - 2021
Pei-Yu Chang1,2, Tsai-Hsiu Chang3, Jung-Min Yu1
1Taichung Tzu Chi Hospital, Buddhist Tzu Chi Medical Foundation, Taichung, Taiwan
2School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan
3School of Nursing, Hungkuang University, Taichung, Taiwan

Tài liệu tham khảo

Chang, 2018, Stress, stress-related symptoms and social support among Taiwanese primary family caregivers in intensive care units, Intens Crit Care Nurs, 49, 37, 10.1016/j.iccn.2018.05.002 De Beer, 2017, The experiences of family members during critical illness of a loved one admitted to an intensive care unit, Afr J Nurs Midwifery, 19, 56, 10.25159/2520-5293/1446 Komachi, 2015, Acute stress symptoms in families of patients admitted to the intensive care unit during the first 24 hours following admission in Japan, Open J Nurs, 5, 325, 10.4236/ojn.2015.54035 Iverson, 2014, Factors affecting stress experienced by surrogate decision makers for critically ill patients: implications for nursing practice, Intens Crit Care Nurs, 30, 77, 10.1016/j.iccn.2013.08.008 Matt, 2017, Relatives' perception of stressors and psychological outcomes–Results from a survey study, J Crit Care, 39, 172, 10.1016/j.jcrc.2017.02.036 Lazarus, 1984 English, 2015, The stress of studying in China: primary and secondary coping interaction effects, Springerplus, 4, 755, 10.1186/s40064-015-1540-3 Kuo, 2013, Collectivism and coping: current theories, evidence, and measurements of collective coping, Int J Psychol, 48, 374, 10.1080/00207594.2011.640681 Turner-Cobb, 2016, The acute psychobiological impact of the intensive care experience on relatives, Psychol Health Med, 21, 20, 10.1080/13548506.2014.997763 Blom, 2013, Participation and support in intensive care as experienced by close relatives of patients—A phenomenological study, Intens Crit Care Nurs, 29, 1, 10.1016/j.iccn.2012.04.002 Pedro, 2008, Social support and social network in family nursing: reviewing concepts, Rev Lat Am Enfermagem, 16, 324, 10.1590/S0104-11692008000200024 Aldwin C M, Culture, coping and resilience to stress. Paper presented at the Proceedings of the First International Conference on Operationalization of Gross National Happiness, Thimphu. 2004. Retrieved from http://www.bhutanstudies.org.bt/gross-national-happiness-and-development/. Kuo, 2018, The mediating role of cultural coping behaviours on the relationships between academic stress and positive psychosocial well-being outcomes, Int J Psychol, 53, 27, 10.1002/ijop.12421 Casarini, 2009, Coping by relatives of critical care patients, Heart Lung, 38, 217, 10.1016/j.hrtlng.2008.05.003 Schenker, 2013, It hurts to know… and it helps”: exploring how surrogates in the ICU cope with prognostic information, J Palliat Med, 16, 243, 10.1089/jpm.2012.0331 Hutchison, 2016, Dimensions and role-specific mediators of surrogate trust in the ICU, Crit Care Med, 44, 2208, 10.1097/CCM.0000000000001957 Khatri Chhetri, 2018, Perception of nurses on needs of family members of patient admitted to critical care units of teaching hospital, Chitwan Nepal: a Cross-Sectional Institutional Based Study, Nurs Res Pract, 2018 Hinkle, 2015, Factors associated with family satisfaction with End-of-life care in the ICU, Chest, 147, 82, 10.1378/chest.14-1098 Hwang, 2014, Assessment of satisfaction with care among family members of survivors in a neuroscience intensive care unit. The Journal of neuroscience nursing, J Am Assoc Neurosci Nurs, 46, 106, 10.1097/JNN.0000000000000038 Moore, 2012, The effect of a family support intervention on physician, nurse, and family perceptions of care in the surgical, neurological, and medical intensive care units, Crit Care Nurs Q, 35, 378, 10.1097/CNQ.0b013e318268fde3 Carlson, 2015, Care and caring in the intensive care unit: family members' distress and perceptions about staff skills, communication, and emotional support, J Crit Care, 30, 557, 10.1016/j.jcrc.2015.01.012 Kim, 2008, Culture and social support, Am Psychol, 63, 518, 10.1037/0003-066X Hwang, 2012 Mojaverian, 2013, Interpreting a helping hand: cultural variation in the effectiveness of solicited and unsolicited social support, Personality and Social Psychology Bulletin, 39, 88, 10.1177/0146167212465319 Wu, 2003, The development of the Chinese version of Impact of Event Scale–Revised (CIES-R), Soc Psychiatry Psychiatr Epidemiol, 38, 94, 10.1007/s00127-003-0611-x Chan, 2004, Social support and coping in Chinese patients undergoing cancer surgery, Cancer Nurs, 27, 230, 10.1097/00002820-200405000-00009 Leung, 2010, Three versions of perceived stress scale: validation in a sample of Chinese cardiac patients who smoke, BMC Public Health, 10, 513, 10.1186/1471-2458-10-513 Knaus, 1985, APACHE II: a severity of disease classification system, Crit Care Med, 13, 818, 10.1097/00003246-198510000-00009 Niewiński, 2014, Prognostic scoring systems for mortality in intensive care units—The APACHE model, Anaesthesiol Intensive Ther, 46, 46, 10.5603/AIT.2014.0010 Cohen, 1983, A global measure of perceived stress, J Health Soc Behav, 24, 385, 10.2307/2136404 1997 Horowitz, 1979, Impact of Event Scale: a measure of subjective stress, Psychosom Med, 41, 209, 10.1097/00006842-197905000-00004 Creamer, 2003, Psychometric properties of the impact of event scale—Revised, Behav Res Ther, 41, 1489, 10.1016/j.brat.2003.07.010 Norbeck, 1981, The development of an instrument to measure social support, Nurs Res, 30, 264, 10.1097/00006199-198109000-00003 Norbeck, 1983, Further development of the Norbeck Social Support Questionnaire: normative data and validity testing, Nurs Res, 32, 4, 10.1097/00006199-198301000-00002 Gigliotti, 2011, Use of averaged norbeck social support questionnaire scores, Int Scholarly Res Netw Nurs, 232, 957 Falcón, 2009, Social support, life events, and psychological distress among the Puerto Rican population in the Boston area of the United States, Aging Mental Health, 13, 863, 10.1080/13607860903046552 Hynynen, 2011, The incidence of stress symptoms and heart rate variability during sleep and orthostatic test, Eur J Appl Physiol, 111, 733, 10.1007/s00421-010-1698-x Kell, 2019, A randomised placebo controlled clinical trial on the efficacy of Caralluma fimbriata supplement for reducing anxiety and stress in healthy adults over eight weeks, J Affect Disord, 246, 619, 10.1016/j.jad.2018.12.062 Taylor, 2013, The role of sleep in predicting college academic performance: is it a unique predictor?, Behav Sleep Med, 11, 159, 10.1080/15402002.2011.602776 Yeung, 2018, Perceived stress as a mediator between social support and posttraumatic growth among Chinese American breast cancer survivors, Cancer Nurs, 41, 53, 10.1097/NCC.0000000000000422 Petrinec, 2015, Coping strategies and posttraumatic stress symptoms in post-ICU family decision makers, Crit Care Med, 43, 1205, 10.1097/CCM.0000000000000934 Trevick, 2017, Post-traumatic stress disorder and complicated grief are common in caregivers of neuro-ICU patients, Neurocrit Care, 26, 436, 10.1007/s12028-016-0372-5 Petersen, 2013, Stress vulnerability and the effects of moderate daily stress on sleep polysomnography and subjective sleepiness, J Sleep Res, 22, 50, 10.1111/j.1365-2869.2012.01034.x Chen, 2018, Age differences in stress and coping: problem-focused strategies mediate the relationship between age and positive affect, Int J Aging aHum Dev, 86, 347, 10.1177/0091415017720890 Au, 2018, A multicenter observational study of family participation in ICU rounds, Crit Care Med, 46, 1255, 10.1097/CCM.0000000000003193 Jacob, 2016, Needs of patients’ family members in an intensive care unit with continuous visitation, Am J Crit Care, 25, 118, 10.4037/ajcc2016258 Gaeeni, 2015, Informational support to family members of intensive care unit patients: the perspectives of families and nurses, Glob J Health Sci, 7, 8 Kynoch, 2016, The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update, JBI Evid Synth, 14, 181 Junior, 2018, Flexible versus restrictive visiting policies in ICUs: a systematic review and meta-analysis, Crit Care Med, 46, 1175, 10.1097/CCM.0000000000003155 Khaleghparast, 2019, New visiting policy: a step toward nursing ethics, Nurs Ethics, 26, 293, 10.1177/0969733017703701 Mitchell, 2017, Flexible visiting positively impacted on patients, families and staff in an Australian Intensive Care Unit: a before-after mixed method study, Aust Crit Care, 30, 91, 10.1016/j.aucc.2016.01.001 Kozub, 2017, Improving Nurse Satisfaction With Open Visitation in an Adult Intensive Care Unit, Crit Care Nurs Q, 40, 144, 10.1097/CNQ.0000000000000151 Ludmir, 2019 Matud, 2003, Structural gender differences in perceived social support, Pers Individ Dif, 35, 1919, 10.1016/S0191-8869(03)00041-2 Burkert, 2015, Gender differences in social support in persons with epilepsy, Epilepsy Behav, 46, 205, 10.1016/j.yebeh.2015.02.041 Chui, 2007, Stress and coping of Hong Kong Chinese family members during a critical illness, J Clin Nurs, 16, 372, 10.1111/j.1365-2702.2005.01461.x Petrinec, 2018, Post-intensive care syndrome symptoms and health-related quality of life in family decision-makers of critically ill patients, Palliat Support Care, 16, 719, 10.1017/S1478951517001043 Hwang, 2003, The relationship between individualism-collectivism, face, and feedback and learning processes in Hong Kong, Singapore, and the United States, J Cross Cult Psychol, 34, 72, 10.1177/0022022102239156 Chang, 2015, The interplay between collectivism and social support processes among Asian and Latino American college students, Asian Am J Psychol, 6, 4, 10.1037/a0035820 Morling, 2015, Social support in two cultures: everyday transactions in the US and empathic assurance in Japan, PLoS One, 10, 10.1371/journal.pone.0127737 Sevinç, 2016, Expectations of relatives of Syrian patients in intensive care units in a state hospital in Turkey, J Clin Nurs, 25, 2232, 10.1111/jocn.13254 Wong, 2019, The impact of social support networks on family resilience in an australian intensive care unit: a constructivist grounded theory, J Nurs Scholarsh, 51, 68, 10.1111/jnu.12443 Shavitt, 2016, Culture moderates the relation between perceived stress, social support, and mental and physical health, J Cross Cult Psychol, 47, 956, 10.1177/0022022116656132 Wang, 2015, Mutual and non-mutual social support: cultural differences in the psychological, behavioral, and biological effects of support seeking, J Cross Cult Psychol, 46, 916, 10.1177/0022022115592967 Tweed, 2004, Culture, stress, and coping: internally-and externally-targeted control strategies of European Canadians, East Asian Canadians, and Japanese, J Cross Cult Psychol, 35, 652, 10.1177/0022022104270109 Frías, 2014, Individualism and collectivism as moderators of the association between attachment insecurities, coping, and social support, J Soc Pers Relat, 31, 3, 10.1177/0265407513484631 Ågren, 2019, The health promoting conversations intervention for families with a critically ill relative: a pilot study, Intens Crit Care Nurs, 50, 103, 10.1016/j.iccn.2018.04.007 Chhetri, 2018, Perception of nurses on needs of family members of patient admitted to critical care units of teaching hospital, Chitwan Nepal: a cross-sectional institutional based study, Nurs Res Pract, 2018, 1, 10.1155/2018/1369164 Fortunatti, 2014, Most important needs of family members of critical patients in light of the critical care family needs inventory, Invest Educ Enferm, 32, 306, 10.17533/udea.iee.v32n2a13 McKiernan, 2010, Family members’ lived experience in the intensive care unit: a phemenological study, Intens Crit Care Nurs, 26, 254, 10.1016/j.iccn.2010.06.004 Egerod, 2011, Constructing the illness narrative: a grounded theory exploring patients' and relatives' use of intensive care diaries, Crit Care Med, 39, 1922, 10.1097/CCM.0b013e31821e89c8 Johansson, 2018, Family members' experiences with intensive care unit diaries when the patient does not survive, Scand J Caring Sci, 32, 233, 10.1111/scs.12454