Patient Education and Support During CKD Transitions: When the Possible Becomes Probable

Advances in Chronic Kidney Disease - Tập 23 - Trang 231-239 - 2016
Jamie A. Green1, L. Ebony Boulware1
1Nephrology Department and Center for Health Research, Geisinger Medical Center, Danville, PA; and Department of Medicine, Division of General Internal Medicine, Duke University School of Medicine, Durham, NC

Tài liệu tham khảo

2013, KDIGO 2012 clinical practice guideline for the evaluation and management of chronic kidney disease, Kidney Int, 3, 134 Finkelstein, 2008, Perceived knowledge among patients cared for by nephrologists about chronic kidney disease and end-stage renal disease therapies, Kidney Int, 74, 1178, 10.1038/ki.2008.376 Levin, 2008, Variability and risk factors for kidney disease progression and death following attainment of stage 4 CKD in a referred cohort, Am J Kidney Dis, 52, 661, 10.1053/j.ajkd.2008.06.023 Hsu, 2009, Nonrecovery of kidney function and death after acute on chronic renal failure, Clin J Am Soc Nephrol, 4, 891, 10.2215/CJN.05571008 O'Hare, 2012, Trajectories of kidney function decline in the 2 years before initiation of long-term dialysis, Am J Kidney Dis, 59, 513, 10.1053/j.ajkd.2011.11.044 Weis, 2013, Renal function can improve at any stage of chronic kidney disease, PloS One, 8, e81835, 10.1371/journal.pone.0081835 Schell, 2012, Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study, Am J Kidney Dis, 59, 495, 10.1053/j.ajkd.2011.11.023 Davison, 2010, End-of-life care preferences and needs: perceptions of patients with chronic kidney disease, Clin J Am Soc Nephrol, 5, 195, 10.2215/CJN.05960809 Bansal, 2015, Development and validation of a model to predict 5-year risk of death without ESRD among older adults with CKD, Clin J Am Soc Nephrol, 10, 363, 10.2215/CJN.04650514 Tangri, 2013, Risk prediction models for patients with chronic kidney disease: a systematic review, Ann Intern Med, 158, 596, 10.7326/0003-4819-158-8-201304160-00004 Tangri, 2011, A predictive model for progression of chronic kidney disease to kidney failure, J Am Med Assoc, 305, 1553, 10.1001/jama.2011.451 O'Hare, 2007, When to refer patients with chronic kidney disease for vascular access surgery: should age be a consideration?, Kidney Int, 71, 555, 10.1038/sj.ki.5002078 Tangri, 2016, Multinational assessment of accuracy of equations for predicting risk of kidney failure: a meta-analysis, J Am Med Assoc, 315, 164, 10.1001/jama.2015.18202 Carson, 2009, Is maximum conservative management an equivalent treatment option to dialysis for elderly patients with significant comorbid disease?, Clin J Am Soc Nephrol, 4, 1611, 10.2215/CJN.00510109 Singh, 2014, The elderly patient on dialysis: geriatric considerations, Nephrol Dial Transpl, 29, 990, 10.1093/ndt/gft246 Kurella Tamura, 2009, Functional status of elderly adults before and after initiation of dialysis, N Engl J Med, 361, 1539, 10.1056/NEJMoa0904655 Murtagh, 2007, Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5, Nephrol Dial Transpl, 22, 1955, 10.1093/ndt/gfm153 Alfaadhel, 2015, Frailty and mortality in dialysis: evaluation of a clinical frailty scale, Clin J Am Soc Nephrol, 10, 832, 10.2215/CJN.07760814 Bao, 2012, Frailty, dialysis initiation, and mortality in end-stage renal disease, Arch Intern Med, 172, 1071, 10.1001/archinternmed.2012.3020 McAdams-DeMarco, 2013, Frailty as a novel predictor of mortality and hospitalization in individuals of all ages undergoing hemodialysis, J Am Geriatr Soc, 61, 896, 10.1111/jgs.12266 Moss, 2008, Utility of the “surprise” question to identify dialysis patients with high mortality, Clin J Am Soc Nephrol, 3, 1379, 10.2215/CJN.00940208 Cohen, 2010, Predicting six-month mortality for patients who are on maintenance hemodialysis, Clin J Am Soc Nephrol, 5, 72, 10.2215/CJN.03860609 Couchoud, 2015, Development of a risk stratification algorithm to improve patient-centered care and decision making for incident elderly patients with end-stage renal disease, Kidney Int, 88, 1178, 10.1038/ki.2015.245 Thamer, 2015, Predicting early death among elderly dialysis patients: development and validation of a risk score to assist shared decision making for dialysis initiation, Am J Kidney Dis, 66, 1024, 10.1053/j.ajkd.2015.05.014 Rockwood, 2005, A global clinical measure of fitness and frailty in elderly people, Can Med Assoc J, 173, 489, 10.1503/cmaj.050051 Binik, 1993, Live and learn: patient education delays the need to initiate renal replacement therapy in end-stage renal disease, J Nerv Ment Dis, 181, 371, 10.1097/00005053-199306000-00006 Devins, 2003, Predialysis psychoeducational intervention and coping styles influence time to dialysis in chronic kidney disease, Am J Kidney Dis, 42, 693, 10.1016/S0272-6386(03)00835-7 Devins, 2005, Predialysis psychoeducational intervention extends survival in CKD: a 20-year follow-up, Am J Kidney Dis, 46, 1088, 10.1053/j.ajkd.2005.08.017 Kurella Tamura, 2014, Educational programs improve the preparation for dialysis and survival of patients with chronic kidney disease, Kidney Int, 85, 686, 10.1038/ki.2013.369 Manns, 2005, The impact of education on chronic kidney disease patients' plans to initiate dialysis with self-care dialysis: a randomized trial, Kidney Int, 68, 1777, 10.1111/j.1523-1755.2005.00594.x Rasgon, 1993, An intervention for employment maintenance among blue-collar workers with end-stage renal disease, Am J Kidney Dis, 22, 403, 10.1016/S0272-6386(12)70143-9 Levin, 1997, Multidisciplinary predialysis programs: quantification and limitations of their impact on patient outcomes in two Canadian settings, Am J Kidney Dis, 29, 533, 10.1016/S0272-6386(97)90334-6 Young, 2011, The rationale, implementation, and effect of the Medicare CKD education benefit, Am J Kidney Dis, 57, 381, 10.1053/j.ajkd.2010.10.056 Davis, 2013, Implementing patient education in the CKD clinic, Adv Chronic Kidney Dis, 20, 320, 10.1053/j.ackd.2013.04.004 Fadem, 2011, Satisfaction with renal replacement therapy and education: the American Association of Kidney Patients survey, Clin J Am Soc Nephrol, 6, 605, 10.2215/CJN.06970810 Prochaska, 2010 Prakash, 2015, Behavioral stage of change and dialysis decision-making, Clin J Am Soc Nephrol, 10, 197, 10.2215/CJN.05560614 Porter, 2013, Education for patients with progressive CKD and acute-start dialysis, Adv Chronic Kidney Dis, 20, 302, 10.1053/j.ackd.2013.04.002 Sanders, 2013, Motivational interviewing for patients with chronic kidney disease, Semin Dial, 26, 175, 10.1111/sdi.12052 Miller, 1991 Garcia-Llana, 2014, Motivational interviewing promotes adherence and improves wellbeing in pre-dialysis patients with advanced chronic kidney disease, J Clin Psychol Med Settings, 21, 103, 10.1007/s10880-013-9383-y Ameling, 2012, Development of a decision aid to inform patients' and families' renal replacement therapy selection decisions, BMC Med Inform Decis Mak, 12, 140, 10.1186/1472-6947-12-140 Murray, 2009, A systematic review of factors influencing decision-making in adults living with chronic kidney disease, Patient Educ Couns, 76, 149, 10.1016/j.pec.2008.12.010 Xi, 2011, Patient attitudes towards the arteriovenous fistula: a qualitative study on vascular access decision making, Nephrol Dial Transpl, 26, 3302, 10.1093/ndt/gfr055 International Patient Decision Aid Standards (IPDAS) Collaboration. What are patient decision aids? http://ipdas.ohri.ca/what.html. Updated June 20, 2012. Accessed September 17, 2015. Stacey, 2014, Decision aids for people facing health treatment or screening decisions, Cochrane Database Syst Rev, CD001431 Elwyn, 2009, Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi), PloS One, 4, e4705, 10.1371/journal.pone.0004705 Winterbottom, 2015, Patient acceptability of the Yorkshire dialysis decision aid (YoDDA) Booklet: a prospective non-randomised comparison study, Perit Dial Int, 10.3747/pdi.2014.00274 Fortnum, 2015, End-stage kidney disease patient evaluation of the Australian ‘My Kidneys, My Choice’ decision aid, Clin Kidney J, 8, 469, 10.1093/ckj/sfv050 Fortnum, 2015, 'My kidneys, my choice, decision aid': supporting shared decision making, J Ren Care, 41, 81, 10.1111/jorc.12100 Greer, 2015, Specialist and primary care physicians' views on barriers to adequate preparation of patients for renal replacement therapy: a qualitative study, BMC Nephrol, 16, 37, 10.1186/s12882-015-0020-x 2010, 2 Davison, 2006, Nephrologists' reported preparedness for end-of-life decision-making, Clin J Am Soc Nephrol, 1, 1256, 10.2215/CJN.02040606 Schell, 2013, Communication skills training for dialysis decision-making and end-of-life care in nephrology, Clin J Am Soc Nephrol, 8, 675, 10.2215/CJN.05220512 Combs, 2015, Update on end-of-life care training during nephrology fellowship: a cross-sectional national survey of fellows, Am J Kidney Dis, 65, 233, 10.1053/j.ajkd.2014.07.018 Schell, 2012, NephroTalk: communication tools to enhance patient-centered care, Semin Dial, 25, 611, 10.1111/sdi.12017 Schell, 2014, A communication framework for dialysis decision-making for frail elderly patients, Clin J Am Soc Nephrol, 9, 2014, 10.2215/CJN.02190314 2014, NephroTalk: Train the Trainers' Communication Workshop for Nephrology Educators Slated for Spring 2015, Am Soc Nephrol Kidney News, 6, 15 Brega, 2015 Carpenito-Moyet, 2008 Ferron Parayre, 2014, Validation of SURE, a four-item clinical checklist for detecting decisional conflict in patients, Med Decis Making, 34, 54, 10.1177/0272989X13491463 Legare, 2010, Are you SURE? Assessing patient decisional conflict with a 4-item screening test, Can Fam Physician, 56, e308 Linder, 2011, Validity of a low literacy version of the Decisional Conflict Scale, Patient Educ Couns, 85, 521, 10.1016/j.pec.2010.12.012 O'Connor, 1995, Validation of a decisional conflict scale, Med Decis Making, 15, 25, 10.1177/0272989X9501500105 Palmer, 2013, Prevalence of depression in chronic kidney disease: systematic review and meta-analysis of observational studies, Kidney Int, 84, 179, 10.1038/ki.2013.77 Hindmarch, 2013, Depression and decision-making capacity for treatment or research: a systematic review, BMC Med Ethics, 14, 54, 10.1186/1472-6939-14-54 Schell, 2014, An interdisciplinary approach to dialysis decision-making in the CKD patient with depression, Adv Chronic Kidney Dis, 21, 385, 10.1053/j.ackd.2014.03.012 Fischer, 2012, Factors associated with depressive symptoms and use of antidepressant medications among participants in the Chronic Renal Insufficiency Cohort (CRIC) and Hispanic-CRIC Studies, Am J Kidney Dis, 60, 27, 10.1053/j.ajkd.2011.12.033 Watnick, 2003, The prevalence and treatment of depression among patients starting dialysis, Am J Kidney Dis, 41, 105, 10.1053/ajkd.2003.50029 Hedayati, 2012, A practical approach to the treatment of depression in patients with chronic kidney disease and end-stage renal disease, Kidney Int, 81, 247, 10.1038/ki.2011.358 Glassman, 2002, Sertraline treatment of major depression in patients with acute MI or unstable angina, J Am Med Assoc, 288, 701, 10.1001/jama.288.6.701 Erdley, 2014, Problem-solving therapy to improve depression scores among older hemodialysis patients: a pilot randomized trial, Clin Nephrol, 82, 26 Cukor, 2014, Psychosocial intervention improves depression, quality of life, and fluid adherence in hemodialysis, J Am Soc Nephrol, 25, 196, 10.1681/ASN.2012111134 Labott, 2007, Psychological assessment of candidates for solid organ transplantation, Prof Psychol Res Pr, 38, 150, 10.1037/0735-7028.38.2.150 Stanton, 2000, Emotionally expressive coping predicts psychological and physical adjustment to breast cancer, J Consult Clin Psychol, 68, 875, 10.1037/0022-006X.68.5.875 Heisler, 2006 Hughes, 2009, Exploring kidney patients' experiences of receiving individual peer support, Health Expect, 12, 396, 10.1111/j.1369-7625.2009.00568.x Paskett, 2011, Patient navigation: an update on the state of the science, CA Cancer J Clin, 61, 237, 10.3322/caac.20111 Wells, 2008, Patient navigation: state of the art or is it science?, Cancer, 113, 1999, 10.1002/cncr.23815 Sullivan, 2012, Impact of navigators on completion of steps in the kidney transplant process: a randomized, controlled trial, Clin J Am Soc Nephrol, 7, 1639, 10.2215/CJN.11731111 Jolly, 2015, Development of a chronic kidney disease patient navigator program, BMC Nephrol, 16, 69, 10.1186/s12882-015-0060-2 Tuttle, 2013, Type 2 translational research for CKD, Clin J Am Soc Nephrol, 8, 1829, 10.2215/CJN.00130113 Coleman, 2009, Evidence on the chronic care model in the new millennium, Health Aff (millwood), 28, 75, 10.1377/hlthaff.28.1.75