Participation Rates in Epidemiologic Studies

Annals of Epidemiology - Tập 17 Số 9 - Trang 643-653 - 2007
Sandro Galea1, Melissa Tracy1
1From the Department of Epidemiology, University of Michigan, School of Public Health

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Bradburn, 1992, Presidential address: a response to the nonresponse problem, Public Opin Q, 56, 391, 10.1086/269318

Groves, 2004

Curtin, 2005, Changes in telephone survey nonresponse over the past quarter century, Public Opin Q, 69, 87, 10.1093/poq/nfi002

Nohr, 2006, Does low participation in cohort studies induce bias?, Epidemiology, 17, 413, 10.1097/01.ede.0000220549.14177.60

Forthofer, 1983, Investigation of nonresponse bias in NHANES II, Am J Epidemiol, 117, 507, 10.1093/oxfordjournals.aje.a113568

Tortora, 2004, [Response trends in a national random digit dial survey.], Metodoloski zvezki, 1, 21

Centers for Disease Control and Prevention (CDC). About the BRFSS. 2006a. Available at: http://www.cdc.gov/brfss/about.htm. Accessed October 23, 2006.

Centers for Disease Control and Prevention (CDC). Behavioral Risk Factor Surveillance System: 2005 Summary Data Quality Report. 2006b. Available at: http://www.cdc.gov/brfss/technical_infodata/2005QualityReport.htm. Accessed October 23, 2006.

Curtin, 1982, Indicators of consumer behavior: The University of Michigan Surveys of Consumers, Public Opin Q, 46, 340, 10.1086/268731

Singer, 2000, Experiments with incentives in telephone surveys, Public Opin Q, 64, 171, 10.1086/317761

Kessler, 1993, Sex and depression in the National Comorbidity Survey. I: Lifetime prevalence, chronicity and recurrence, J Affect Disord, 29, 85, 10.1016/0165-0327(93)90026-G

Kessler, 2004, The US National Comorbidity Survey Replication (NCS-R): design and field procedures, Int J Methods Psychiatr Res, 13, 69, 10.1002/mpr.167

Morton, 2006, Reporting participation in epidemiologic studies: a survey of practice, Am J Epidemiol, 163, 197, 10.1093/aje/kwj036

Dawber, 1963, An approach to longitudinal studies in a community: the Framingham Study, Ann N Y Acad Sci, 107, 539, 10.1111/j.1749-6632.1963.tb13299.x

MESA Coordinating Center, University of Washington. MESA Exam 1 Participation Rate. 2006. Available at: http://www.mesa-nhlbi.org/participation.aspx. Accessed October 25, 2006.

Rogers, 2004, Contacting controls: are we working harder for similar response rates, and does it make a difference?, Am J Epidemiol, 160, 85, 10.1093/aje/kwh176

Blackwell, 2002, Summary health statistics for the U.S. population: National Health Interview Survey, 1997, Vital Health Stat 10, 1

Adams, 2006, Summary health statistics for the U.S. population: National Health Interview Survey, 2004, Vital Health Stat 10, 1

Arday, 1997, State smoking prevalence estimates: a comparison of the Behavioral Risk Factor Surveillance System and current population surveys, Am J Public Health, 87, 1665, 10.2105/AJPH.87.10.1665

Johnson T, Owens L. Survey response reporting in the professional literature. Paper presented at the 58th Annual Meeting of the American Association for Public Opinion Research. Nashville, TN; 2003.

Groves, 2002

American Association for Public Opinion Research (AAPOR). Standard definitions: Final dispositions of case codes and outcome rates for surveys. 2003. Available at: http://www.aapor.org/pdfs/newstandarddefinitions.pdf. Accessed September 1, 2003.

Olson, 2002, Reporting participation in case-control studies, Epidemiology, 13, 123, 10.1097/00001648-200203000-00004

Schleifer, 1986, Trends in attitude toward and participation in survey research, Public Opin Q, 50, 17, 10.1086/268956

Groves, 1992, Understanding the decision to participate in a survey, Public Opin Q, 56, 475, 10.1086/269338

Fricker, 2002, Advantages and disadvantages of Internet research surveys: Evidence from the literature, Field Methods, 14, 347, 10.1177/152582202237725

McNutt, 2000, Intimate partner violence prevalence estimation using telephone surveys: understanding the effect of nonresponse bias, Am J Epidemiol, 152, 438, 10.1093/aje/152.5.438

Remington, 1992, Telemarketing and declining survey response rates, J Advertising Res, 32, 6

Groves, 1998

Petty, 2000, Marketing without consent: consumer choice and costs, privacy, and public policy, J Public Policy & Marketing, 19, 42, 10.1509/jppm.19.1.42.16940

Galloway, 2004, Annoying, intrusive,and constitutional: Telemarketing and the national Do-Not-Call Registry, J Consumer Marketing, 21, 27, 10.1108/07363760410513941

Federal Trade Commission. You make the call: The FTC's new telemarketing sales rule. 2003. Available at: http://www.ftc.gov/bcp/conline/pubs/tmarkg/donotcall.htm. Accessed October 24, 2006.

O'Neil, 1979, Estimating the nonresponse bias due to refusals in telephone surveys, Public Opin Q, 43, 218, 10.1086/268513

Putnam, 1995, Tuning in, tuning out: The strange disappearance of social capital in America, PS: Political Science and Politics, 28, 664, 10.2307/420517

Hardell, 2002, Case-control study on the use of cellular and cordless phones and the risk for malignant brain tumours, Int J Radiat Biol, 78, 931, 10.1080/09553000210158038

Pelucchi, 2003, Fried potatoes and human cancer, Int J Cancer, 105, 558, 10.1002/ijc.11118

Dunn, 2004, Patterns of consent in epidemiologic research: evidence from over 25,000 responders, Am J Epidemiol, 159, 1087, 10.1093/aje/kwh141

Olson, 2001, Reported participation in case-control studies: changes over time, Am J Epidemiol, 154, 574, 10.1093/aje/154.6.574

Law, 2002, United Kingdom Childhood Cancer Study Investigators. The importance of full participation: lessons from a national case-control study, Br J Cancer, 86, 350, 10.1038/sj.bjc.6600092

Moorman, 1999, Participation rates in a case-control study: the impact of age, race, and race of interviewer, Ann Epidemiol, 9, 188, 10.1016/S1047-2797(98)00057-X

Smith, 1973, A new science policy in the United States, Minerva, 11, 162, 10.1007/BF01557714

Seymour, 1997

Horgan, 1996

Greenwood, 1999, Science through the looking glass: Winning the battles but losing the war?, Science, 286, 2072, 10.1126/science.286.5447.2072

Woolf, 1995, Screening for prostate cancer with prostate-specific antigen. An examination of the evidence, N Engl J Med, 333, 1401, 10.1056/NEJM199511233332107

Strauss, 1997, Measuring effectiveness of lung cancer screening: from consensus to controversy and back, Chest, 112, 216S, 10.1378/chest.112.4_Supplement.216S

Ransohoff, 1997, Lessons from the mammography screening controversy: can we improve the debate?, Ann Intern Med, 127, 1029, 10.7326/0003-4819-127-11-199712010-00016

Kopans, 1998, The breast cancer screening controversy: lessons to be learned, J Surg Oncol, 67, 143, 10.1002/(SICI)1096-9098(199803)67:3<143::AID-JSO1>3.0.CO;2-9

Young, 1999, Intervention studies on cancer, Eur J Cancer Prev, 8, 91, 10.1097/00008469-199904000-00003

Patrick, 2000, Beta-carotene: the controversy continues, Altern Med Rev, 5, 530

Beilin, 2006, Alcohol and hypertension: an update, Hypertension, 47, 1035, 10.1161/01.HYP.0000218586.21932.3c

Willett, 2003, Rebuilding the food pyramid, Sci Am, 288, 64, 10.1038/scientificamerican0103-64

Schwartz, 1999, Changing disease definitions: implications for disease prevalence. Analysis of the Third National Health and Nutrition Examination Survey, 1988–1994, Eff Clin Pract, 2, 76

Ellis, 2000, Attitudes towards and participation in randomised clinical trials in oncology: a review of the literature, Ann Oncol, 11, 939, 10.1023/A:1008342222205

Cunny, 1994, Participation in clinical drug studies: motivations and barriers, Clin Ther, 16, 273

Corbie-Smith, 1999, Attitudes and beliefs of African Americans toward participation in medical research, J Gen Intern Med, 14, 537, 10.1046/j.1525-1497.1999.07048.x

Ross, 1999, Barriers to participation in randomised controlled trials: a systematic review, J Clin Epidemiol, 52, 1143, 10.1016/S0895-4356(99)00141-9

Roberson, 1994, Clinical trial participation: viewpoints from racial/ethnic groups, Cancer, 74, 2687, 10.1002/1097-0142(19941101)74:9+<2687::AID-CNCR2820741817>3.0.CO;2-B

Robinson, 1996, Attitudes of African-Americans regarding prostate cancer clinical trials, J Community Health, 21, 77, 10.1007/BF01682300

Ogloff, 1991, Are research participants truly informed? Readability of informed consent forms used in research, Ethics Behav, 1, 239, 10.1207/s15327019eb0104_2

Sin, 2005, Seeking informed consent: reflections on research practice, Sociology, 39, 277, 10.1177/0038038505050539

Mader, 1997, Emergency medicine research consent form readability assessment, Ann Emerg Med, 29, 534, 10.1016/S0196-0644(97)70229-4

Singer, 1978, Informed consent: consequences for response rate and response quality in social surveys, Am Sociol Rev, 43, 144, 10.2307/2094696

Davis, 1998, Informed consent for clinical trials: a comparative study of standard versus simplified forms, J Natl Cancer Inst, 90, 668, 10.1093/jnci/90.9.668

Fischer, 2002, Ever-more rooted Americans, City & Community, 1, 177, 10.1111/1540-6040.00016

Kennedy, 2001, Challenges in survey research and their implications for philanthropic studies research, Nonprofit and Voluntary Sector Q, 30, 483, 10.1177/0899764001303006

Galesic, 2006, Complementing random-digit-dial telephone surveys with other approaches to collecting sensitive data, Am J Prev Med, 31, 437, 10.1016/j.amepre.2006.07.023

Blumberg, 2006, Telephone coverage and health survey estimates: evaluating the need for concern about wireless substitution, Am J Public Health, 96, 926, 10.2105/AJPH.2004.057885

U.S. Census Bureau. Statistical Abstract of the United States. 2000. Available at:http://www.census.gov/prod/www/statistical-abstract-1995_2000.html. Accessed October 24, 2006.

Jacobs, 1998, Who are the overworked Americans?, Rev Soc Econ, 56, 442, 10.1080/00346769800000044

Schor, 1991

Fischer, 2006

Rawlings, 1995

Burg, 1997, The potential for bias due to attrition in the National Exposure Registry: an examination of reasons for nonresponse, nonrespondent characteristics, and the response rate, Toxicol Ind Health, 13, 1, 10.1177/074823379701300101

Eagan, 2002, Nonresponse in a community cohort study: predictors and consequences for exposure-disease associations, J Clin Epidemiol, 55, 775, 10.1016/S0895-4356(02)00431-6

Hille, 2005, Dutch POPS-19 Collaborative Study Group. Nonresponse bias in a follow-up study of 19-year-old adolescents born as preterm infants, Pediatrics, 116, e662, 10.1542/peds.2005-0682

Wild, 2001, Nonresponse in a follow-up to a representative telephone survey of adult drinkers, J Stud Alcohol, 62, 257, 10.15288/jsa.2001.62.257

Cunradi, 2005, Survey nonresponse bias among young adults: the role of alcohol, tobacco, and drugs, Subst Use Misuse, 40, 171, 10.1081/JA-200048447

Partin, 2003, The impact of survey nonresponse bias on conclusions drawn from a mammography intervention trial, J Clin Epidemiol, 56, 867, 10.1016/S0895-4356(03)00061-1

Weaver, 1975, Some characteristics of inaccessible respondents in a telephone survey, J Appl Psychol, 60, 260, 10.1037/h0076494

Richiardi, 2002, Analysis of nonresponse bias in a population-based case-control study on lung cancer, J Clin Epidemiol, 55, 1033, 10.1016/S0895-4356(02)00455-9

Shahar, 1996, The effect of nonresponse on prevalence estimates for a referent population: insights from a population-based cohort study. Atherosclerosis Risk in Communities (ARIC) Study Investigators, Ann Epidemiol, 6, 498, 10.1016/S1047-2797(96)00104-4

Bak, 2001, Education and public attitudes towards science: implications for the “deficit model” of education and support for science and technology, Soc Sci Q, 82, 779, 10.1111/0038-4941.00059

Stang, 2005, Baseline recruitment and analyses of nonresponse of the Heinz Nixdorf Recall Study: identifiability of phone numbers as the major determinant of response, Eur J Epidemiol, 20, 489, 10.1007/s10654-005-5529-z

Schuz, 2001, Residential magnetic fields as a risk factor for childhood acute leukaemia: results from a German population-based case-control study, Int J Cancer, 91, 728, 10.1002/1097-0215(200002)9999:9999<::AID-IJC1097>3.0.CO;2-D

Lahkola, 2005, Selection bias due to differential participation in a case-control study of mobile phone use and brain tumors, Ann Epidemiol, 15, 321, 10.1016/j.annepidem.2004.12.009

Herr, 2003, Effects of bioaerosol polluted outdoor air on airways of residents: a cross sectional study, Occup Environ Med, 60, 336, 10.1136/oem.60.5.336

Haan, 1987, Poverty and health. Prospective evidence from the Alameda County Study, Am J Epidemiol, 125, 989, 10.1093/oxfordjournals.aje.a114637

Lynch, 1997, Why do poor people behave poorly? Variation in adult health behaviours and psychosocial characteristics by stages of the socioeconomic lifecourse, Soc Sci Med, 44, 809, 10.1016/S0277-9536(96)00191-8

Adler, 1999, Socioeconomic status and health: what we know and what we don't, Ann N Y Acad Sci, 896, 3, 10.1111/j.1749-6632.1999.tb08101.x

Anderson, 1995, Toward understanding the association of socioeconomic status and health: a new challenge for the biopsychosocial approach, Psychosom Med, 57, 213, 10.1097/00006842-199505000-00003

Beard, 1994, Comparison of respondents and nonrespondents in an osteoporosis study, Ann Epidemiol, 4, 398, 10.1016/1047-2797(94)90075-2

Hebert, 1996, Refusal and information bias associated with postal questionnaires and face-to-face interviews in very elderly subjects, J Clin Epidemiol, 49, 373, 10.1016/0895-4356(95)00527-7

Kauppi, 2005, Survey nonresponse is associated with increased mortality in patients with rheumatoid arthritis and in a community population, J Rheumatol, 32, 807

Bisgard, 1994, Mortality and cancer rates in nonrespondents to a prospective study of older women: 5-year follow-up, Am J Epidemiol, 139, 990, 10.1093/oxfordjournals.aje.a116948

Mond, 2004, Nonresponse bias in a general population survey of eating-disordered behavior, Int J Eat Disord, 36, 89, 10.1002/eat.20007

Beglin, 1992, Women who chose not to participate in surveys on eating disorders, Int J Eat Disord, 12, 113, 10.1002/1098-108X(199207)12:1<113::AID-EAT2260120116>3.0.CO;2-W

Kypri, 2004, Assessment of nonresponse bias in an internet survey of alcohol use, Alcohol Clin Exp Res, 28, 630, 10.1097/01.ALC.0000121654.99277.26

Jones, 1996, The effects of non-response on statistical inference, J Health Soc Policy, 8, 49, 10.1300/J045v08n01_05

Kreiger, 1997, The effect of nonresponse on estimation of relative risk in a case-control study, Ann Epidemiol, 7, 194, 10.1016/S1047-2797(97)00013-6

Gerrits, 2001, An evaluation of nonresponse bias in peer, self, and teacher ratings of children's psychosocial adjustment, J Child Psychol Psychiatry, 42, 593, 10.1111/1469-7610.00755

Page, 1991, Using longitudinal data to estimate nonresponse bias, Soc Psychiatry Psychiatr Epidemiol, 26, 127, 10.1007/BF00782951

Keeter, 2000, Consequences of reducing nonresponse in a national telephone survey, Public Opin Q, 64, 125, 10.1086/317759

Stang, 2003, Nonresponse research—an underdeveloped field in epidemiology, Eur J Epidemiol, 18, 929, 10.1023/A:1025877501423

Fowler, 2002, Using telephone interviews to reduce nonresponse bias to mail surveys of health plan members, Med Care, 40, 190, 10.1097/00005650-200203000-00003

Mason R, Lesser V, Traugott MW. Impact of missing values from converted refusals on nonsampling error. Paper presented at International Conference on Survey Nonresponse. Portland (OR), October 28–31, 1999.

Särndal, 2005

Bongers, 1998, Mode effects on self-reported alcohol use and problem drinking: mail questionnaires and personal interviewing compared, J Stud Alcohol, 59, 280, 10.15288/jsa.1998.59.280

Mott, 2001, A national survey of U.S. pharmacists in 2000: assessing nonresponse bias of a survey methodology, AAPS Pharm Sci, 3, E33, 10.1208/ps030433

Kennet, 2005

2002, 163

James, 1990, The effect of monetary incentives and follow-up mailings on the response rate and response quality in mail surveys, Public Opin Q, 54, 346, 10.1086/269211

Collins, 2000, Effects of incentive size and timing on response rates to a follow-up wave of a longitudinal mailed survey, Eval Rev, 24, 347, 10.1177/0193841X0002400401

Zaslavsky, 2002, Factors affecting response rates to the Consumer Assessment of Health Plans Study survey, Med Care, 40, 485, 10.1097/00005650-200206000-00006

Yun GW, Trumbo CW. Comparative response to a survey executed by post, e-mail, and web form. 2000. Available at: http://jcmc.indiana.edu/vol6/issue1/yun.html. Accessed October 13, 2006.

Beebe, 2005, Increasing response rates in a survey of Medicaid enrollees: the effect of a prepaid monetary incentive and mixed modes (mail and telephone), Med Care, 43, 411, 10.1097/01.mlr.0000156858.81146.0e

Zhang, 2000, Using the Internet for survey research: a case study, J Educ Library Information Sci, 5, 57

Brambilla, 1987, A comparison of responses to mailed questionnaires and telephone interviews in a mixed mode health survey, Am J Epidemiol, 126, 962, 10.1093/oxfordjournals.aje.a114734

O'Toole, 1986, A comparison of costs and data quality of three health survey methods: mail, telephone and personal home interview, Am J Epidemiol, 124, 317, 10.1093/oxfordjournals.aje.a114390

McMahon, 2003, Comparison of e-mail, fax, and postal surveys of pediatricians, Pediatrics, 111, e299, 10.1542/peds.111.4.e299

Dillman, 2005, Survey mode as a source of instability in responses across surveys, Field Methods, 17, 30, 10.1177/1525822X04269550

Tourangeau, 1996, Asking sensitive questions: the impact of data collection mode, question format, and question context, Public Opin Q, 60, 275, 10.1086/297751

Hochstim, 1967, A critical comparison of three strategies of collecting data from households, J Am Stat Assoc, 62, 976, 10.2307/2283686

Weeks, 1983, Personal versus telephone surveys for collecting household health data at the local level, Am J Public Health, 93, 1389, 10.2105/AJPH.73.12.1389

Simon, 1993, Telephone assessment of depression severity, J Psychiatr Res, 27, 247, 10.1016/0022-3956(93)90035-Z

Parks, 2006, Collecting data on alcohol use and alcohol-related victimization: a comparison of telephone and Web-based survey methods, J Stud Alcohol, 67, 318, 10.15288/jsa.2006.67.318

Hepner, 2005, Comparison of mail and telephone in assessing patient experiences in receiving care from medical group practices, Eval Health Prof, 28, 377, 10.1177/0163278705281074

Revicki, 1997, Telephone versus in-person clinical and health status assessment interviews in patients with bipolar disorder, Harv Rev Psychiatry, 5, 75, 10.3109/10673229709034730

Cook, 2003, The reliability of telephone interviews compared with in-person interviews using memory aids, Ann Epidemiol, 13, 495, 10.1016/S1047-2797(03)00039-5

McCabe, 2004, Comparison of web and mail surveys in collecting illicit drug use data: a randomized experiment, J Drug Educ, 34, 61, 10.2190/4HEY-VWXL-DVR3-HAKV

Midanik, 2003, Telephone versus in-person interviews for alcohol use: results of the 2000 National Alcohol Survey, Drug Alcohol Depend, 72, 209, 10.1016/S0376-8716(03)00204-7

Link, 2005, Alternative modes for health surveillance surveys: an experiment with web, mail, and telephone, Epidemiology, 16, 701, 10.1097/01.ede.0000172138.67080.7f

Dennis JM, Chatt C, Li R, Motta-Stanko A, Pulliam P. Data collection mode effects controlling for sample origins in a panel survey: telephone versus Internet. 2005. Available at: www.knowledgenetworks.com/ganp/papers/rtimodestudy.html. Accessed October 13, 2006.

Siemiatycki, 1984, Nonresponse bias and early versus all responders in mail and telephone surveys, Am J Epidemiol, 120, 291, 10.1093/oxfordjournals.aje.a113892

Brogger, 2003, Contribution of follow-up of nonresponders to prevalence and risk estimates: a Norwegian respiratory health survey, Am J Epidemiol, 157, 558, 10.1093/aje/kwg003

der Wiel, 2002, A high response is not essential to prevent selection bias: results from the Leiden 85-plus study, J Clin Epidemiol, 55, 1119, 10.1016/S0895-4356(02)00505-X

Baer, 2002, Obtaining sensitive data through the Web: an example of design and methods, Epidemiology, 13, 640, 10.1097/00001648-200211000-00007

Sax, 2003, Assessing response rates and nonresponse bias in web and paper surveys, Res Higher Educ, 44, 409, 10.1023/A:1024232915870

Jones S. The Internet goes to college: how students are living in the future with today's technology. 2002. Available at: http://www.pewinternet.org/report_display.asp?r=71. Accessed October 13, 2006.

Thayer, 2006, Online communication preferences across age, gender, and duration of Internet use, Cyberpsychol Behav, 9, 432, 10.1089/cpb.2006.9.432

Szeto C, Jimenez L. Consumer preferences for communications media. 2005. Available at: http://www.upu.org/news_centre/2005/en/paper_2005-04-07_pitney-bowes04_en.pdf. Accessed October 17, 2006.

Lokken, 2003, Comparing online and non-online shoppers, Int J Consumer Stud, 27, 126, 10.1046/j.1470-6431.2003.00292.x

Kolodinsky, 2004, The adoption of electronic banking technologies by US customers, Int J Bank Marketing, 22, 238, 10.1108/02652320410542536

Balter, 2005, Web-based and mailed questionnaires: a comparison of response rates and compliance, Epidemiology, 16, 577, 10.1097/01.ede.0000164553.16591.4b

Eysenbach, 2002, Using the Internet for surveys and health research, J Med Internet Res, 4, 13, 10.2196/jmir.4.2.e13

Sills, 2002, Innovations in survey research: an application of web-based surveys, Soc Sci Comput Rev, 20, 22, 10.1177/089443930202000103