Parents of children with cerebral palsy: a review of factors related to the process of adaptation

Child: Care, Health and Development - Tập 33 Số 2 - Trang 161-169 - 2007
Ingrid Rentinck1, Marjolijn Ketelaar, Marian J. Jongmans, Jan Willem Gorter
1Rehabilitation Centre De Hoogstraat, Centre of Excellence for Rehabilitation Medicine, Utrecht, the Netherlands. [email protected]

Tóm tắt

AbstractBackground  Little is known about the way parents adapt to the situation when their child is diagnosed with cerebral palsy.Methods  A literature search was performed to gain a deeper insight in the process of adaptation of parents with a child with cerebral palsy and on factors related to this process. The selected articles were examined with respect to (i) the type and purpose of the study, (ii) study sample, (iii) variables and instruments and (iv) results on adaptation and stress of the parents.Results  Twenty‐two studies were found, which showed a large variety in research designs, instruments and populations. Despite methodological differences, it was possible to extract a number of factors related to resources of individual family members, the family unit as a whole and in the community, family appraisal and adaptive coping.Conclusion  It is important to realize that parents’ adaptation may change as a function of their child’s development and changing stages of family life over time. Until now cross‐sectional studies have dominated this area of research, but in order to understand the process of adaptation over time, longitudinal studies are needed.

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