Parenting Early Adolescents with Autism Spectrum Disorder Before and After Transition to Secondary School

Springer Science and Business Media LLC - Tập 2 - Trang 179-189 - 2018
Lotte van Esch1,2, Liz O’Nions1,2, Karin Hannes3, Eva Ceulemans4, Karla Van Leeuwen1, Ilse Noens1,2
1Parenting and Special Education Research Unit, KU Leuven, Leuven, Belgium
2Leuven Autism Research (LAuRes), Leuven, Belgium
3Centre for Sociological Research, KU Leuven, Leuven, Belgium
4Quantitative Psychology and Individual Differences, KU Leuven, Leuven, Belgium

Tóm tắt

Although early adolescence is a challenging period for all parents, parents of children with autism spectrum disorder (ASD) face additional challenges. At present, little is known about their concrete parenting behaviors during this stage of their child’s development. The main goal of this study was to explore what behaviors parents adopt and investigate how these relate to parenting dimensions previously described in the literature. In addition, we aimed to explore the feelings and cognitions of parents regarding their parenting behavior. Parents of 17 early adolescents aged 11 to 15 years with ASD were interviewed. Starting from three general parenting dimensions (warmth, parental control, and autonomy support) and two parenting dimensions of particular relevance in ASD (stimulating the development and adapting the environment), our analyses produced an integrated framework with three core dimensions: warmth, behavioral control, and stimulation. Our findings suggest that parents make strategic decisions in parenting their children with ASD: they report adapting their behaviors at many levels, although these behaviors per se are not ASD specific.

Tài liệu tham khảo

Barber, B. K. (1996). Parental psychological control: revisiting a neglected construct. Child Development, 67(6), 3296–3319. https://doi.org/10.2307/1131780. Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: the mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36(5), 685–695. https://doi.org/10.1007/s10803-006-0112-3. Beurkens, N. M., Hobson, J. A., & Hobson, R. P. (2013). Autism severity and qualities of parent–child relations. Journal of Autism and Developmental Disorders, 43(1), 168–178. https://doi.org/10.1007/s10803-012-1562-4. Boonen, H., van Esch, L., Lambrechts, G., Maljaars, J., Zink, I., Van Leeuwen, K., & Noens, I. (2015). Mothers’ parenting behaviors in families of school-aged children with autism spectrum disorder: an observational and questionnaire study. Journal of Autism and Developmental Disorders, 45(11), 3580–3593. https://doi.org/10.1007/s10803-015-2506-6. Carter, A. S., de Martínez-Pedraza, F. L., & Gray, S. A. O. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: maternal and child correlates. Journal of Clinical Psychology, 65(12), 1270–1280. https://doi.org/10.1002/jclp.20634. Carter, E. W., Common, E. A., Sreckovic, M. A., Huber, H. B., Bottema-Beutel, K., Gustafson, J. R., et al. (2013). Promoting social competence and peer relationships for adolescents with autism spectrum disorders. Remedial and Special Education, 35(2), 91–101. https://doi.org/10.1177/0741932513514618. Collins, W. A., & Laursen, B. (2004). Changing relationships, changing youth interpersonal contexts of adolescent development. The Journal of Early Adolescence, 24(1), 55–62. https://doi.org/10.1177/0272431603260882. Dąbrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. https://doi.org/10.1111/j.1365-2788.2010.01258.x. Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427. https://doi.org/10.1177/1362361305056081. Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387. https://doi.org/10.1177/1362361309105658. Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with Down syndrome and autism. Journal of Autism and Developmental Disorders, 40(5), 610–619. https://doi.org/10.1007/s10803-009-0906-1. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y. Joussemet, M., Landry, R., & Koestner, R. (2008). A self-determination theory perspective on parenting. Canadian Psychology/Psychologie Canadienne, 49(3), 194–200. https://doi.org/10.1037/a0012754. Lambrechts, G., Van Leeuwen, K., Boonen, H., Maes, B., & Noens, I. (2011). Parenting behavior among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 5(3), 1143–1152. https://doi.org/10.1016/j.rasd.2010.12.011. Laursen, B., Coy, K. C., & Collins, W. A. (1998). Reconsidering changes in parent-child conflict across adolescence: a meta-analysis. Child Development, 69(3), 817–832. Lytton, H., & Romney, D. M. (1991). Parents’ differential socialization of boys and girls: a meta-analysis. Psychological Bulletin, 109(2), 267–296. https://doi.org/10.1037/0033-2909.109.2.267. Makin, C., Hill, V., & Pellicano, E. (2017). The primary-to-secondary school transition for children on the autism spectrum: a multi-informant mixed-methods study. Autism and Developmental Language Impairments, 2. https://doi.org/10.1177/2396941516684834. Maljaars, J., Boonen, H., Lambrechts, G., Van Leeuwen, K., & Noens, I. (2014). Maternal parenting behavior and child behavior problems in families of children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(3), 501–512. https://doi.org/10.1007/s10803-013-1894-8. Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics, 119(5), e1040–e1046. https://doi.org/10.1542/peds.2006-2819. Negriff, S., & Susman, E. J. (2011). Pubertal timing, depression, and externalizing problems: a framework, review, and examination of gender differences. Journal of Research on Adolescence, 21(3), 717–746. https://doi.org/10.1111/j.1532-7795.2010.00708.x. Osborne, L. A., & Reed, P. (2010). Stress and self-perceived parenting behaviors of parents of children with autistic spectrum conditions. Research in Autism Spectrum Disorders, 4(3), 405–414. https://doi.org/10.1016/j.rasd.2009.10.011. Picci, G., & Scherf, K. S. (2014). A two-hit model of autism adolescence as the second hit. Clinical Psychological Science, 3, 349–371. https://doi.org/10.1177/2167702614540646. Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Supplement), S114–S121. https://doi.org/10.1542/peds.2006-2089Q. Socolar, R. R. S. (1997). A classification scheme for discipline: type, mode of administration, context. Aggression and Violent Behavior, 2(4), 355–364. https://doi.org/10.1016/S1359-1789(97)00021-9. Solish, A., Perry, A., & Minnes, P. (2010). Participation of children with and without disabilities in social, recreational and leisure activities. Journal of Applied Research in Intellectual Disabilities, 23(3), 226–236. https://doi.org/10.1111/j.1468-3148.2009.00525.x. Steinberg, L., Elmen, J. D., & Mounts, N. S. (1989). Authoritative parenting, psychosocial maturity, and academic success among adolescents. Child Development, 60(6), 1424–1436. https://doi.org/10.2307/1130932.