Obtaining an autism spectrum disorder diagnosis and supports: New Zealand parents’ experiences

Brett, 2016, Factors affecting age at ASD diagnosis in UK: No evidence that diagnosis age has decreased between 2004 and 2014, Journal of Autism and Developmental Disorders, 46, 1974, 10.1007/s10803-016-2716-6 Chamak, 2011, The autism diagnostic experiences of French parents, Autism, 15, 83, 10.1177/1362361309354756 Craddock, 2014, Psychiatric diagnosis: Impersonal, imperfect and important, British Journal of Psychiatry, 204, 93, 10.1192/bjp.bp.113.133090 Crane, 2016, Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom, Autism, 20, 153, 10.1177/1362361315573636 Fernell, 2013, Early diagnosis of autism and impact on prognosis: A narrative review, Clinical Epidemiology, 5, 33, 10.2147/CLEP.S41714 Gaspar de Alba, 2011, Addressing parental concerns at the initial diagnosis of an autism spectrum disorder, Research in Autism Spectrum Disorders, 5, 633, 10.1016/j.rasd.2010.07.009 Goin-Kochel, 2006, How many doctors does it take to make an autism spectrum diagnosis?, Autism, 10, 439, 10.1177/1362361306066601 Harris, 2006, Copying letters to patients: The view of patients and health professionals, Journal of Health Services Research & Policy, 11, 133, 10.1258/135581906777641712 Health Committee, 2013 Howlin, 1997, Diagnosis in autism: A survey of over 1200 patients in the UK, Autism, 1, 135, 10.1177/1362361397012003 Lloyd, 2014, Patient reports of the outcomes of treatment: A structured review of approaches, Health and Quality of Life Outcomes, 12, 5, 10.1186/1477-7525-12-5 Mansell, 2004, A survey of parents’ reactions to the diagnosis of an autistic spectrum disorder by a local service: Access to information and use of services, Autism, 8, 387, 10.1177/1362361304045213 Ministries of Health and Education, 2008 Moh, 2012, Factors associated with parental stress and satisfaction during the process of diagnosis of children with autism spectrum disorders, Research in Autism Spectrum Disorders, 6, 293, 10.1016/j.rasd.2011.05.011 Renty, 2006, Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents, Child: Care, Health and Development, 32, 371, 10.1111/j.1365-2214.2006.00584.x Ryan, 2012, ’You know what boys are like’: Pre-diagnosis experiences of parents of children with autism spectrum conditions, British Journal of General Practice, 62, e378, 10.3399/bjgp12X641500 Siklos, 2007, Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders, Research in Developmental Disabilities, 28, 9, 10.1016/j.ridd.2005.09.003 Statistics New Zealand, 2013 Tehee, 2009, Factors contributing to stress in parents of individuals with autistic spectrum disorders, Journal of Applied Research in Intellectual Disabilities, 22, 34, 10.1111/j.1468-3148.2008.00437.x Thabrew, 2018, Spectrum of care: Current management of childhood autism spectrum disorder (ASD) in New Zealand, Australasian Psychiatry, 26, 294, 10.1177/1039856217716290