Lập kế hoạch chăm sóc trước do y tá dẫn dắt với người cao tuổi mắc bệnh thận giai đoạn cuối: tính khả thi của một thử nghiệm ngẫu nhiên có đối chứng với việc ghi nhận nhập cảnh hoãn lại kết hợp đánh giá kinh tế và đánh giá quy trình theo phương pháp hỗn hợp (ACReDiT)

UK Renal Registry. UK Renal Registry 21st Annual Report - data to 31/12/2017 [Internet]. Vol. 3349. Britstol, UK; 2019. Available from: https://www.renalreg.org/publications-reports/.

Liyanage T, Ninomiya T, Jha V, Neal B, Patrice HM, Okpechi I, et al. Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet. 2015;385(9981):1975–82 [cited 2015 Mar 19] Available from: http://www.sciencedirect.com/science/article/pii/S0140673614616019.

Tonelli M, Wiebe N, Guthrie B, James MT, Quan H, Fortin M, et al. Comorbidity as a driver of adverse outcomes in people with chronic kidney disease. Kidney Int. 2015;88(4):859–66. https://doi.org/10.1038/ki.2015.228.

National Collaborating Centre for Chronic Conditions. Chronic kidney disease. London: Royal College of Physicians; 2008. p. 1–204.

Anderson S, Halter JB, Hazzard WR, Himmelfarb J, Horne FM, Kaysen GA, et al. Prediction, progression, and outcomes of chronic kidney disease in older adults. J Am Soc Nephrol. 2009;20(6):1199–209 [cited 2014 Oct 17] Available from: http://www.ncbi.nlm.nih.gov/pubmed/19470680.

Bikbov B, Purcell CA, Levey AS, Smith M, Abdoli A, Abebe M, et al. Global, regional, and national burden of chronic kidney disease, 1990–2017: a systematic analysis for the global burden of disease study 2017. Lancet. 2020;395(10225):709–33.

Neovius M, Jacobson SH, Eriksson JK, Elinder CG, Hylander B. Mortality in chronic kidney disease and renal replacement therapy: a population-based cohort study. BMJ Open. 2014;4(2):1–9.

Arulkumaran N, Szawarski P, Philips BJ. End-of-life care in patients with end-stage renal disease. Nephrol Dial Transplant. 2012;27(3):879–81 [cited 2014 Jun 18] Available from: http://www.ncbi.nlm.nih.gov/pubmed/22379182.

Davison SN. Advance care planning in patients with chronic kidney disease. Semin Dial. 2012;25(6):657–63 [cited 2014 May 28] Available from: http://www.ncbi.nlm.nih.gov/pubmed/23173893.

Axelsson L, Alvariza A, Lindberg J, Öhlén J, Håkanson C, Reimertz H, et al. Unmet palliative care needs among patients with end-stage kidney disease: a National Registry Study about the last week of life. J Pain Symptom Manag. 2018;55(2):236–44 Available from: https://www.scopus.com/inward/record.uri?eid=2-s2.0-85038826057&doi=10.1016%2Fj.jpainsymman.2017.09.015&partnerID=40&md5=8b7b79a22b2ab676a2eee64f3a3d86ca.

Wachterman MW, Hailpern SM, Keating NL, Tamura MK, O’Hare AM. Association between hospice length of stay, health care utilization, and medicare costs at the end of life among patients who received maintenance hemodialysis. JAMA Intern Med. 2018;178(6):792–9 Available from: https://www.scopus.com/inward/record.uri?eid=2-s2.0-85048051816&doi=10.1001%2Fjamainternmed.2018.0256&partnerID=40&md5=54f2a8e9b740c187585f9a334eb86ba8.

Luckett T, Sellars M, Tieman J, Pollock CA, Silvester W, Butow PN, et al. Advance care planning for adults with CKD: a systematic integrative review. Am J Kidney Dis. 2014;63(5):761–70 [cited 2014 Jun 11] Available from: http://www.ncbi.nlm.nih.gov/pubmed/24434187.

Mullick A, Martin J, Sallnow L. An introduction to advance care planning in practice. BMJ. 2013;347(October):1–6. https://doi.org/10.1136/bmj.f6064.

Bernacki RE, Block SD, American College of Physicians High Value Care Task Force. Communication about serious illness care goals. JAMA Intern Med. 2014;174(12):1994 [cited 2017 May 22] Available from: http://www.ncbi.nlm.nih.gov/pubmed/25330167.

Krouse RS, Rosenfeld KE, Grant M, Aziz N, Byock I, Sloan J, et al. Palliative care research: issues and opportunities. Cancer Epidemiol Biomark Prev. 2004;13(3):337–9 [cited 2017 May 22] Available from: http://www.ncbi.nlm.nih.gov/pubmed/15006905.

Houben CHM, Spruit MA, Groenen MTJ, Wouters EFM, Janssen DJA. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc. 2014;15(7):477–89 [cited 2017 May 22] Available from: http://www.ncbi.nlm.nih.gov/pubmed/24598477.

Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–25 [cited 2014 Aug 10] Available from: http://www.ncbi.nlm.nih.gov/pubmed/24651708.

Department of Health. National service framework for renal services part two : chronic kidney disease, acute renal failure and end of life care. London: Department of Health; 2005.

National Institute for Health and Clinical Excellence. Chronic kidney disease quality standard: NICE; 2012. [cited 2014 Jul 1]. Available from: http://publications.nice.org.uk/chronic-kidney-disease-quality-standard-qs5.

Crail S, Walker R, Brown M. Renal supportive and palliative care: position statement. Nephrology. 2013;18:393–400. [cited 2014 Aug 27]. https://doi.org/10.1111/nep.12064/full.

Lim CED, Ng RWC, Cheng NCL, Cigolini M, Kwok C, Brennan F. Advance care planning for haemodialysis patients. Cochrane Database Syst Rev. 2016;7:CD010737. https://doi.org/10.1002/14651858.CD010737.pub2 Lim CED, editor [cited 2017 May 22].

CRD. Advance care planning [Internet]. York: Centre for Reviews and Dissemination; 2013. [cited 2015 Jan 27]. Available from: https://www.york.ac.uk/inst/crd/pdf/Advancecareplanning.pdf.

O’Halloran P, Noble H, Norwood K, Maxwell P, Shields J, Fogarty D, et al. Advance care planning with patients who have end-stage kidney disease: a systematic realist review. J Pain Symptom Manag. 2018;56(5):795–807.

Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: new guidance; 2008. Medical Research Council. Available from: https://mrc.ukri.org/documents/pdf/complex-interventions-guidance/.

Higginson IJ, Booth S. The randomized fast-track trial in palliative care: role, utility and ethics in the evaluation of interventions in palliative care? Palliat Med. 2011;25(8):741–7 [cited 2014 Sep 10] Available from: http://www.ncbi.nlm.nih.gov/pubmed/21993806.

Evans CJ, Stone KA, Manthorpe J, Higginson IJ. MRC guidance on developing and evaluating complex interventions: application to research on palliative and end of life care. Methods Review 15 [Internet]. London: NIHR School for Social Care Research London School of Economics and Political Science Houghton Street London WC2A 2AE; 2013. 1–37 p. Available from: www.sscr.nihr.ac.uk.

SAGE & THYME® [Internet]. 2019 [cited 2019 Jan 22]. Available from: http://www.sageandthymetraining.org.uk/.

Gibbons E, Fitzpatrick R. A structured review of patient-reported outcome measures for people with chronic kidney disease, 2010. phi.uhce.ox.ac.uk. 2010. Available from: http://phi.uhce.ox.ac.uk/pdf/ElectiveProcedures/PROMs_Oxford_Elective_Cardiac_012011.pdf.

Isaacs B, Kennie AT. The set test as an aid to the detection of dementia in old people. Br J Psychiatry. 1973 [cited 2014 Sep 26];123(4):467–70. https://doi.org/10.1192/bjp.123.4.467.

Evans C, Mellor-Clark J, Margison F, Barkham M, Audin K, Connell J, et al. CORE: clinical outcomes in routine evaluation. J Ment Health. 2000;9(3):247–55. https://doi.org/10.1080/713680250&magic=crossref%7C%7CD404A21C5BB053405B1A640AFFD44AE3.

Evans C, Connell J, Barkham M, Margison F, McGrath G, Mellor-Clark J, et al. Towards a standardised brief outcome measure: Psychometric properties and utility of the CORE–OM. Br J Psychiatry. 2002;180(01):51–60 [cited 2019 Jan 4] Available from: https://www.cambridge.org/core/product/identifier/S0007125000160453/type/journal_article.

GEM. Patient experience of shared decision making (SHARED) [Internet]. Grid-enabled measures database. 2014 [cited 2014 Oct 17]. Available from: https://www.gem-measures.org/public/MeasureDetail.aspx?cat=2&mid=1517&tab=0.

Julious SA. Sample size of 12 per group rule of thumb for a pilot study. Pharm Stat. 2005[cited 2014 Aug 6];4(4):287–91. https://doi.org/10.1002/pst.185.

Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health. 2008;31(January):180–91.

Vickers AJ, Altman DG. Statistics notes: analysing controlled trials with baseline and follow up measurements. BMJ. 2001;323(7321):1123–4. [cited 2013 Dec 6]. https://doi.org/10.1136/bmj.323.7321.1123.

Statacorp. Stata 14 | Stata [Internet]. 2015. Available from: https://www.stata.com/stata14/.

Husereau D, Drummond M, Petrou S, Carswell C, Moher D, Greenberg D, et al. Consolidated Health Economic Evaluation Reporting Standards (CHEERS) statement. BMJ. 2013;346:f1049 [cited 2019 Mar 28] Available from: http://www.ncbi.nlm.nih.gov/pubmed/23529982.

Ivankova NV, Creswell JW, Stick SL. Using mixed-methods sequential explanatory design: from theory to practice. Field Methods. 2006;18(1):3–20.

Antonacci G, Reed JE, Lennox L, Barlow J. The use of process mapping in healthcare quality improvement projects. Health Serv Manag Res. 2018;31(2):74–84 [cited 2019 Jan 22] Available from: http://www.ncbi.nlm.nih.gov/pubmed/29707978.

Eldridge SM, Chan CL, Campbell MJ, Bond CM, Hopewell S, Thabane L, et al. CONSORT 2010 statement: extension to randomised pilot and feasibility trials. BMJ. 2016;355:i5239.

Hall RK, Luciano A, Pieper C, Colón-Emeric CS. Association of Kidney Disease Quality of Life (KDQOL-36) with mortality and hospitalization in older adults receiving hemodialysis. BMC Nephrol. 2018;19(1):11 [cited 2019 Jan 9] Available from: http://www.ncbi.nlm.nih.gov/pubmed/29334904.

Sudore RL, Fried TR. Redefining the “planning” in advance care planning: preparing for end-of-life decision making. Ann Intern Med. 2010;153(4):256–61.

McMahan RD, Knight SJ, Fried TR, Sudore RL. Advance care planning beyond advance directives: perspectives from patients and surrogates. J Pain Symptom Manag. 2013;46(3):355–65. https://doi.org/10.1016/j.jpainsymman.2012.09.006.

Sudore RL, Stewart AL, Knight SJ, McMahan RD, Feuz M, Miao Y, et al. Development and validation of a questionnaire to detect behavior change in multiple advance care planning behaviors. PLoS One. 2013;8(9):e72465. https://doi.org/10.1371/journal.pone.0072465 [cited 2019 Feb 11], Xie Z, editor.

Sudore RL, Heyland DK, Barnes DE, Howard M, Fassbender K, Robinson CA, et al. Measuring advance care planning: optimizing the advance care planning engagement survey. J Pain Symptom Manag. 2017;53(4):669–681.e8 [cited 2019 Feb 11] Available from: http://www.ncbi.nlm.nih.gov/pubmed/28042072.

Steenkamp R, Pyart R, Fraser S. UK Renal Registry 20th Annual Report: Chapter 5 Survival and Cause of Death in UK Adult Patients on Renal. Replacement Therapy in 2016: National and Centre-specific Analyses. Nephron. 2018;139(suppl1):117–50. https://doi.org/10.1159/000490963.

Detering K, Hancock A, Reade M, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340(7751) [cited 2014 Aug 27] Available from: http://www.bmj.com/content/340/bmj.c1345.

Royal College of Nursing. NHS pay scales 2017-18 [Internet]. [cited 2019 Nov 8]. Available from: https://www.rcn.org.uk/employment-and-pay/nhs-pay-scales-2017-18#tab4.