Moral Distress in the Neonatal Intensive Care Unit: What Is It, Why It Happens, and How We Can Address It
Tóm tắt
Từ khóa
Tài liệu tham khảo
Nussbaum, 2000, The costs of tragedy: some moral limits of cost-benefit analysis, J Legal Stud, 29, 1005, 10.1086/468103
Jameton, 1984, Nursing Practice: The Ethical Issues, 1
Fourie, 2017, Who is experiencing what kind of moral distress? distinctions for moving from a narrow to a broad definition of moral distress, AMA J Ethics, 19, 578, 10.1001/journalofethics.2017.19.6.nlit1-1706
Fourie, 2015, Moral distress and moral conflict in clinical ethics, Bioethics, 29, 91, 10.1111/bioe.12064
Prentice, 2018, The use and misuse of moral distress in neonatology, Semin Fetal Neonatal Med, 23, 39, 10.1016/j.siny.2017.09.007
Janvier, 2007, Moral distress in the neonatal intensive care unit: caregiver's experience, J Perinatol, 27, 203, 10.1038/sj.jp.7211658
Barr, 2020, Burnout in neonatal intensive care unit nurses: relationships with moral distress, adult attachment insecurities, and proneness to guilt and shame, J Perinat Med, 10.1515/jpm-2019-0323
Sannino, 2019, Moral distress in the pediatric intensive care unit: an Italian study, Front Pediatr, 7, 338, 10.3389/fped.2019.00338
Sundin-Huard, 1999, Moral distress, advocacy and burnout: theorizing the relationships, Int J Nurs Pract, 5, 8, 10.1046/j.1440-172x.1999.00143.x
Prentice, 2018, Always a burden? Healthcare providers' perspectives on moral distress, Arch Dis Child Fetal Neonatal Ed, 103, F441, 10.1136/archdischild-2017-313539
Lantos, 2007, Moral distress and ethical confrontation: problem or progress?, J Perinatol, 27, 201, 10.1038/sj.jp.7211679
Thorne, 2018, Navigating the dangerous terrain of moral distress: understanding response patterns in the NICU, Qual Health Res, 28, 683, 10.1177/1049732317753585
Prentice, 2016, Moral distress within neonatal and paediatric intensive care units: a systematic review, Arch Dis Child, 101, 701, 10.1136/archdischild-2015-309410
Whitehead, 2015, Moral distress among healthcare professionals: report of an institution-wide survey, J Nurs Scholarsh, 47, 117, 10.1111/jnu.12115
Musto, 2018, What we know about moral distress, Moral Distress in the Health Professions, 9, 10.1007/978-3-319-64626-8_2
Burton, 2020, Moral distress: defined and described by neonatal and pediatric critical care nurses in a quaternary care free-standing pediatric hospital, Dimens Crit Care Nurs, 39, 101, 10.1097/DCC.0000000000000403
Larson, 2017, Moral distress in PICU and neonatal ICU practitioners: a cross-sectional evaluation, Pediatr Crit Care Med, 18, e318, 10.1097/PCC.0000000000001219
Boss, 2015, Conflicts in learning to care for critically ill newborns: “It Makes Me Question My Own Morals, 12, 437, 10.1007/s11673-015-9609-9
Dzeng, 2016, Moral distress amongst American physician trainees regarding futile treatments at the end of life: a qualitative study, J Gen Intern Med, 31, 93, 10.1007/s11606-015-3505-1
Lewis, 2019, Emotional intelligence in neonatal intensive care unit nurses: decreasing moral distress in end-of-life care and laying a foundation for improved outcomes: an integrative review, J Hosp Palliat Nurs, 21, 250, 10.1097/NJH.0000000000000561
Sauerland, 2015, Assessing and addressing moral distress and ethical climate Part II: neonatal and pediatric perspectives, Dimens Crit Care Nurs, 34, 33, 10.1097/DCC.0000000000000083
Walters, 2020, Is this my home? a palliative care journey through life and death in the NICU: a case report, Adv Neonatal Care, 20, 127, 10.1097/ANC.0000000000000697
de Boer, 2016, Appropriateness of care and moral distress among neonatal intensive care unit staff: repeated measurements, Nurs Crit Care, 21, e19, 10.1111/nicc.12206
Field, 2016, Moral distress: an inevitable part of neonatal and paediatric intensive care?, Arch Dis Child, 101, 686, 10.1136/archdischild-2015-310268
Allen, 2013, Moral distress among healthcare professionals at a health system, JONAS Healthc Law Ethics Regul, 15, 111, 10.1097/NHL.0b013e3182a1bf33
Ford, 2018, Conflicts of conscience in the neonatal intensive care unit: Perspectives of Alberta, Nurs Ethics, 25, 992, 10.1177/0969733016684547
Hefferman, 1999, Giving “moral distress” a voice: ethical concerns among neonatal intensive care unit personnel, Camb Q Healthc Ethics, 8, 173, 10.1017/S0963180199802060
MacDorman, 2015, Fetal and perinatal mortality: United States, 2013, Natl Vital Stat Rep, 64, 1
Cook, 1996, Decision making for the critically ill neonate near the end of life, J Perinatol, 16, 133
Singh, 2004, End-of-life after birth: death and dying in a neonatal intensive care unit, Pediatrics, 114, 1620, 10.1542/peds.2004-0447
Niehaus, 2018, NICU communication: the many disguises of opportunity, NeoReviews, 19, e526, 10.1542/neo.19-9-e526
Schneiderman, 2011, Defining medical futility and improving medical care, J Bioeth Inq, 8, 123, 10.1007/s11673-011-9293-3
Solomon, 2005, New and lingering controversies in pediatric end-of-life care, Pediatrics, 116, 872, 10.1542/peds.2004-0905
Wilfond, 2014, Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values, Pediatrics, 133, S44, 10.1542/peds.2013-3608H
Janvier, 2012, The experience of families with children with trisomy 13 and 18 in social networks, Pediatrics, 130, 293, 10.1542/peds.2012-0151
Lantos, 2016, Trisomy 13 and 18–treatment decisions in a stable gray zone, JAMA, 316, 396, 10.1001/jama.2016.9470
Robertson, 1975, Involuntary euthanasia of defective newborns: a legal analysis, Stanford Law Rev, 27, 213, 10.2307/1228265
Wightman, 2019, The relational potential standard: rethinking the ethical justification for life-sustaining treatment for children with profound cognitive disabilities, Hastings Cent Rep, 49, 18, 10.1002/hast.1003
Gillam, 2016, The zone of parental discretion: An ethical tool for dealing with disagreement between parents and doctors about medical treatment for a child, Clinical Ethics, 11, 1, 10.1177/1477750915622033
Janvier, 2009, I would never want this for my baby, Pediatr Crit Care Med, 10, 113, 10.1097/PCC.0b013e3181937adf
Kluge, 2006, Hope in the neonatal intensive care nursery: values, ethics, and the injury of continued existence, MedGenMed, 8, 74
Cavolo, 2019, Physicians' attitudes on resuscitation of extremely premature infants: a systematic review, Pediatrics, 143, 3972, 10.1542/peds.2018-3972
Janvier, 2019, Does it matter if this baby is 22 or 23 weeks?, Pediatrics, 144, 113, 10.1542/peds.2019-0113
Krick, 2019, Neonatologists' preferences regarding guidelines for periviable deliveries: do we really know what we want?, J Perinatol, 39, 445, 10.1038/s41372-019-0313-1
Carnevale, 2020, Moral distress in the ICU: it's time to do something about it! Minerva Anestesiol, 86, 455, 10.23736/S0375-9393.19.14021-7
Prentice, 2020, How should neonatal clinicians act in the presence of moral distress?, Arch Dis Child Fetal Neonatal Ed, 105, 348, 10.1136/archdischild-2019-317895
Santos, 2018, Difficult decisions in pediatric practice and moral distress in the intensive care unit, Rev Bras Ter Intensiva, 30, 226, 10.5935/0103-507X.20180039
Chehab, 2017, Moral distress: what is next?, Pediatr Crit Care Med, 18, 814, 10.1097/PCC.0000000000001243
Beumer, 2008, Innovative solutions: the effect of a workshop on reducing the experience of moral distress in an intensive care unit setting, Dimens Crit Care Nurs, 27, 263, 10.1097/01.DCC.0000338871.77658.03
Lawrence, 2011, Work engagement, moral distress, education level, and critical reflective practice in intensive care nurses, Nurs Forum, 46, 256, 10.1111/j.1744-6198.2011.00237.x
Saeedi, 2019, The effectiveness of narrative writing on the moral distress of intensive care nurses, Nurs Ethics, 26, 2195, 10.1177/0969733018806342
Lantos, 2018, Ethical problems in decision making in the neonatal ICU, N Engl J Med, 379, 1851, 10.1056/NEJMra1801063
Cavaliere, 2010, Moral distress in neonatal intensive care unit RNs, Adv Neonatal Care, 10, 145, 10.1097/ANC.0b013e3181dd6c48
Cavinder, 2014, The relationship between providing neonatal palliative care and nurses' moral distress: an integrative review, Adv Neonatal Care, 14, 322, 10.1097/ANC.0000000000000100
Rogers, 2008, Educational interventions in end-of-life care: part I: an educational intervention responding to the moral distress of NICU nurses provided by an ethics consultation team, Adv Neonatal Care, 8, 56, 10.1097/01.ANC.0000311017.02005.20
Okah, 2012, Perceptions of a strategy to prevent and relieve care provider distress in the neonatal intensive care unit, Am J Perinatol, 29, 687, 10.1055/s-0032-1314889
Mercurio, 2011, The role of a pediatric ethics committee in the newborn intensive care unit, J Perinatol, 31, 1, 10.1038/jp.2010.39
Bucher, 2018, Decision-making at the limit of viability: differing perceptions and opinions between neonatal physicians and nurses, BMC Pediatr, 18, 81, 10.1186/s12887-018-1204-x
Wocial, 2002, Moral distress–the role of ethics consultation in the NICU, Bioethics Forum, 18, 15