Modeling social support in autism community on social media
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Alpers GW, Winzelberg AJ et al (2005) Evaluation of computerized text analysis in an Internet breast cancer support group. Comput Hum Behav 21(2):361–376
Arora NK et al (2007) Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. Psycho-Oncol 16(5):474–486
Autism Speaks (2015) https://www.autismspeaks.org/about-us/web-community-guidelines . Accessed 10 Oct 2015
Autistic Self Advocacy Network (2015) http://autisticadvocacy.org/home/about-asan . Accessed 10 Oct 2015
Backstrom L, Boldi P, Rosa M, Ugander J, Vigna S (2012) Four degrees of separation. In: Proceedings of the 4th annual ACM Web Science conference (WebSci ‘12). ACM, New York, NY, USA, pp 33–42
Bambina A (2007) Online social support: the interplay of social networks and computer-mediated communication. Cambria press, Amherst
Bianco A, Zucco R, Nobile CGA., Pileggi C, Pavia M (2013) Parents seeking health-related information on the Internet: cross-sectional study. J Med Internet Res 15(9)
Bode L, Vraga EK (2015) In related news, that was wrong: the correction of misinformation through related stories functionality in social media. J Commun 65(4):619–638
Boyd BA (2002) Examining the relationship between stress and lack of social support in mothers of children with autism. Focus Autism Other Dev Disabil 17(4):208–215
Bruhn JG, Philips BU, Wolf S (1982) Lessons from Roseto 20 years later: a community study of heart disease. South Med J 75:575–580
Buescher AS, Cidav Z, Knapp M, Mandell DS (2014) Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatr 168(8):721–728. doi: 10.1001/jamapediatrics.2014.210
Burton S, Tew C, Thackeray R (2013) Social moms and health: a multi-platform analysis of mommy communities. In: Proceedings of the 2013 IEEE/ASONAM. ACM
Carlisle G (2014) Pet dog ownership decisions for parents of children with autism spectrum disorder. J Pediatr Nurs 29(2):114–123
Centers for Disease Control and Prevention (CDC) (2014) Community report on autism. http://www.cdc.gov/ncbddd/autism/states/comm_report_autism_2014.pdf . Accessed 10 July 2015
Centers for Disease Control and Prevention (CDC) (2015) National health statistics reports. http://www.cdc.gov/nchs/data/nhsr/nhsr087.pdf . Accessed 15 Nov 2015
Cilibrasi RL, Vitanyi PMB (2007) "The Google Similarity Distance," in Knowledge and Data Engineering. IEEE Trans 19(3):370–383. doi: 10.1109/TKDE.2007.48
Cobb S (1976) Presidential Address-1976. Social support as a moderator of life stress. Psychosom Med 38:300–314
Cohen Sheldon, Wills AT (1985) Stress, social support, and the buffering hypothesis. Psychol Bull 98(2):310
Coulson NS (2005) Receiving social support online: an analysis of a computer-mediated support group for individuals living with irritable bowel syndrome. CyberPsychol Behav 8(6):580–584
Coulson NS (2014) Sharing, supporting and sobriety: a qualitative analysis of messages posted to alcohol-related online discussion forums in the United Kingdom. J Subst Use 19(1-2):176–180
Coulson NS, Buchanan H, Aubeeluck A (2007) Social support in cyberspace: a content analysis of communication within a Huntington’s disease online support group. Patient Educ Couns 68(2):173–178
Crocco AG, Villasis-Keever M, Jadad AR (2002) Analysis of cases of harm associated with use of health information on the internet. Jama 87(21):2869–2871
De Choudhury M, Counts S, Horvitz E, Hoff A (2014) Characterizing and predicting postpartum depression from Facebook data. In: ICWSM 2014, Baltimore, MD
Durkheim E (1915) The elementary forms of the religious life. Free Press, New York
Egolf B et al (1992) The Roseto effect: a 50-year comparison of mortality rates. Am J Public Health 82(8):1089–1092
Eichhorn KC (2008) Soliciting and providing social support over the internet: an investigation of online eating disorder support groups. Journal of Computer-Mediated Communication 14:67–78. doi: 10.1111/j.1083-6101.2008.01431.x
Fredrickson BL (2001) The role of positive emotions in positive psychology: the broaden-and-build theory of positive emotions. Am Psychol 56(3):218
Freeman LC (1977) A set of measures of centrality based on betweenness. Sociometry 40(1):35–41. doi: 10.2307/3033543
Gallant LM, Irizarry C, Boone G, Kreps G (2011) Promoting participatory medicine with social media: new media applications on hospital websites that enhance health education and e-patients voice. J Participat Med 3:e49
Gupta VB, Hyman SL, Johnson CP, Bryant J, Byers B, Kallen R, Levy SE, Myers SM, Rosenblatt AI, Yeargin-Allsopp M (2007) Identifying children with autism early? Pediatrics 119(1):152–153
Hamm M, Chisholm A, Shulhan J, Milne A, et al. (2013) Social media use among patients and caregivers: a scoping review. BMJ Open 3(5)
Hastings RP et al (2005) Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. J Autism Dev Disord 35(5):635–644
Jordan CJ (2010) Evolution of autism support and understanding via the World Wide Web. Intellect Dev Disabil 48(3):220–227
Kata A (2010) A postmodern Pandora’s box: anti-vaccination misinformation on the Internet. Vaccine 28(7):1709–1716
Krause N, et al. (1999) Religion, social support, and health among the Japanese elderly. J Health Soc behav 405–421
Kummervold PE et al (2002) Social support in a wired world: use of online mental health forums in Norway. Nordic J Psychiatry 56(1):59–65
Lakey B, Cassady PB (1990) Cognitive processes in perceived social support. J Pers Soc Psychol 59(2):337
Milgram S (1967) The small world problem. Psychol Today 2(1):60–67
Olphen J et al (2003) Religious involvement, social support, and health among African–American women on the east side of Detroit. J Gen Intern Med 18(7):549–557
Panhandle Autism Society (2015). https://panhandleautismsociety.org/ Accessed 10 Jan 2015
Pennebaker JW, Martha EF, Roger JB (2001) Linguistic inquiry and word count: LIWC 2001, vol 71. Lawrence Erlbaum Associates, Mahway, p 2001
Plimley LA (2007) A review of quality of life issues and people with autism spectrum disorders. Br J Learn Disabil 35:205–213. doi: 10.1111/j.1468-3156.2007.00448.x
Reynolds JS, Perrin NA (2004) Mismatches in social support and psychosocial adjustment to breast cancer. Health Psy 23:425–430
Ross C, Mirowsky J (2002) Family relationships, social support, and subjective life expectancy. J Health Soc Behav 43:469–489
Ryan S, Cole KR (2009) From advocate to activist? Mapping the experiences of mothers of children on the autism spectrum. J Appl Res Intellect Disabil 22:43–53
Ryff CD, Singer BH (2001) Emotion, social relationships, and health. Oxford University Press, Oxford
Saha A, Agarwal N (2015) Social support and stress in autism blogging community on Twitter. In: Agarwal N, Xu K, Osgood N (eds) Social computing, behavioral-cultural modeling, and prediction, Springer International Publishing, p 421–427
Sarason IG et al (1987) A brief measure of social support: Practical and theoretical implications. Journal of social and personal relationships 4(4):497–510
Shaw LH, Gant LM (2002) The relationship between Internet communication and depression, loneliness, self-esteem, and perceived social support. Cyber Psy. & Behavior 5(2):157–171
Sigman M, Dijamco A, Gratier M, Rozga A (2004) Early detection of core deficits in autism. Mental Retardation Development Disability Res. Rev. 10:221–233. doi: 10.1002/mrdd.20046
Silberman S (2015) Neurotribes: the legacy of autism and the future of neurodiversity. Penguin Publishing Group, London
Stroever SJ, Stephanie J, et al (2013) Using social media to communicate child health information to low-income parents. Prevent Chron Dis 8(6)
Tov W, Ng KL, Lin H, Qiu L (2013) Detecting well-being via computerized content analysis of brief diary entries. J Pers Assess 25(4):1069–1078. doi: 10.1037/a0033007
Walen HR, Lachman ME (2000) Social support and strain from partner, family, and friends: costs and benefits for men and women in adulthood. J Soc Pers Relations 17(1):5–30
Wallace JE (2005) Job stress, depression and work-to-family conflict: a test of the strain and buffer hypotheses. Relat Ind Ind Relat 60:510–539
Weiss M (2002) Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism 6(1):115–130
White Marsha, Dorman Steve M (2001) Receiving social support online: implications for health education. Health Educ Res 16(6):693–707
Wolf S, Kay L, Bruhn J, Clarke S (1974) Roseto revisited: further data on the incidence of myocardial infarction in Roseto and neighboring Pennsylvania communities. Trans Am Clin Climatol Assoc 85:100
Young KW (2006) Social support and life satisfaction. Int J Psychosocial Rehabil 10(2):155–164