Mental health reported in adult invasive home mechanical ventilation through a tracheostomy: A scoping review

Andersen, M.P., Laub, M., Biering-Sørensen, F., 2017. Phrenic pacing compared with mechanical ventilation. Spinal cord series and cases 3, 17022. https://doi.org/10.1038/scsandc.2017.22. Arksey, 2005, Scoping studies: towards a methodological framework, Int. J. Soc. Res. Methodol., 8, 19, 10.1080/1364557032000119616 Aromataris, 2014, Constructing a search strategy and searching for evidence. A guide to the literature search for a systematic review, Am. J. Nursing, 114, 49, 10.1097/01.NAJ.0000446779.99522.f6 Brien, 2010, Overview of a formal scoping review on health system report cards, Implementation Sci., 5, 2, 10.1186/1748-5908-5-2 Briscoe, 2010, Sustaining self: the lived experience of transition to long-term ventilation, Qual. Health Res., 20, 57, 10.1177/1049732309356096 Brurberg, 2014, NIPH systematic reviews: executive summaries Brurberg, 2012, NIPH systematic reviews: executive summaries Brurberg, 2012, NIPH systematic reviews: executive summaries Caspers Conway, 2015, Neurobehavioral concerns among males with dystrophinopathy using population-based surveillance data from the muscular dystrophy surveillance, tracking, and research network, J. Dev. Behav. Pediatr., 36, 455, 10.1097/DBP.0000000000000177 Crockford, 2018, ALS-specific cognitive and behavior changes associated with advancing disease stage in ALS, Neurology, 91, e1370, 10.1212/WNL.0000000000006317 Dale, 2018, Transitions to home mechanical ventilation: the experiences of Canadian ventilator-assisted adults and their family caregivers, Ann. Am. Thorac. Soc., 15, 357, 10.1513/AnnalsATS.201708-663OC De Brún, 2014 Dreyer, 2010, Life with home mechanical ventilation for young men with Duchenne muscular dystrophy, Journal of Advanced Nursing, 66, 753, 10.1111/j.1365-2648.2009.05233.x Dreyer, 2010, Living with severe physical impairment, Duchenne's muscular dystrophy and home mechanical ventilation, International Journal of Qualitative Studies on Health and Well-being, 5, 1, 10.3402/qhw.v5i3.5388 Dybwik, 2011, Home mechanical ventilation and specialised health care in the community: between a rock and a hard place, BMC Health Serv. Res., 11, 115, 10.1186/1472-6963-11-115 Dyrstad, 2013, Factors that influence user satisfaction: tracheotomised home mechanical ventilation users' experiences, J. Clin. Nurs., 22, 331, 10.1111/j.1365-2702.2012.04304.x Farre, 2005, Quality control of equipment in home mechanical ventilation: a European survey, Eur. Respir. J., 26, 86, 10.1183/09031936.05.00066904 Galderisi, 2015, Toward a new definition of mental health, World Psychiatry, 14, 231, 10.1002/wps.20231 Garner, 2013, Home mechanical ventilation in Australia and New Zealand, Eur. Respir. J., 41, 39, 10.1183/09031936.00206311 Grant, 2009, A typology of reviews: an analysis of 14 review types and associated methodologies, Health Inf. Libraries J., 26, 91, 10.1111/j.1471-1842.2009.00848.x Greaney, 2017, 83 Hind, 2017, AJRCCM: 100-year anniversary. Homeward bound: a centenary of home mechanical ventilation, Am. J. Respir. Crit. Care Med., 195, 1140, 10.1164/rccm.201702-0285CI Hong, 2018 Huttmann, 2015, Invasive home mechanical ventilation: living conditions and health-related quality of life, Respiration, 89, 312, 10.1159/000375169 Israelsson-Skogsberg, 2017, Personal care assistants' experiences of caring for people on home mechanical ventilation, Scand. J. Caring Sci., 31, 27, 10.1111/scs.12326 Jacobs, 2021, Prolonged mechanical ventilation: a comparison of patients treated at home compared with hospital long-term care, J. Am. Med. Dir. Assoc., 22, 418, 10.1016/j.jamda.2020.06.038 Jacobs, 2020, Prolonged mechanical ventilation: symptomatology, well-Being, and attitudes to life, J. Am. Med. Dir. Assoc. Keyes, 2014, Mental health as a complete state: how the salutogenic perspective completes the picture, 179 Kim, 2019, Home mechanical ventilation use in South Korea based on national health insurance service data, Respir. Care, 64, 528, 10.4187/respcare.06310 Klingshirn, 2022, Comparing the quality of care for long-term ventilated individuals at home versus in shared living communities: a convergent parallel mixed-methods study, BMC Nurs., 21, 224, 10.1186/s12912-022-00986-z Laub, 2007, Survival of patients on home mechanical ventilation: a nationwide prospective study, Respir. Med., 101, 1074, 10.1016/j.rmed.2006.10.007 Lewarski, 2007, Current issues in home mechanical ventilation, Chest, 132, 671, 10.1378/chest.07-0558 Lindahl, 2019, When technology enters the home – a systematic and integrative review examining the influence of technology on the meaning of home, Scand. J. Caring Sci., 33, 43, 10.1111/scs.12615 Lloyd-Owen, 2005, Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey, Eur. Respir. J., 25, 1025, 10.1183/09031936.05.00066704 Logan, 2010, Ten simple rules for editing Wikipedia, PLoS Comput. Biol., 6, 10.1371/journal.pcbi.1000941 Laakso, 2011, Communication experience of individuals treated with home mechanical ventilation, Int. J. Language & Commun. Disorders, 46, 686, 10.1111/j.1460-6984.2011.00040.x MacIntyre, 2016, Clinical outcomes associated with home mechanical ventilation: a systematic review, Canadian Respir. J., 2016, 10.1155/2016/6547180 MacLaren, 2019, A qualitative study of experiences of health and social care in home mechanical ventilation, Nurs. Open, 6, 283, 10.1002/nop2.213 Markström, 2002, Quality-of-life evaluation of patients with neuromuscular and skeletal diseases treated with noninvasive and invasive home mechanical ventilation, Chest, 122, 1695, 10.1378/chest.122.5.1695 Markussen, 2018, Factors associated with change in health-related quality of life among individuals treated with long-term mechanical ventilation, a 6-year follow-up study, J. Adv. Nurs., 74, 651, 10.1111/jan.13472 Masefield, 2017, Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS/ELF survey, ERJ Open Res., 3, 10.1183/23120541.00015-2017 Mathers, 2006, Projections of global mortality and burden of disease from 2002 to 2030, PLoS Med., 3, e442, 10.1371/journal.pmed.0030442 Mineiro, 2020, Organization of home mechanical ventilation in Portugal: characterization of current centers and a pathway to uniformization, Pulmonology, 26, 84, 10.1016/j.pulmoe.2019.05.006 Nakarada-Kordic, 2018, A systematic review of patient and caregiver experiences with a tracheostomy, Patient, 11, 175, 10.1007/s40271-017-0277-1 Nasiłowski, 2015, The evolution of home mechanical ventilation in Poland between 2000 and 2010, Respir. Care, 60, 577, 10.4187/respcare.03126 Nelissen, 2019, What it means for people to be mechanically ventilated via a tracheostomy at home: a qualitative study, Central Eur. J. Nurs. Midwifery, 10, 1102, 10.15452/CEJNM.2019.10.0020 Olejarczyk, 2021, Patient rights and ethics Page, 2021, The PRISMA 2020 statement: an updated guideline for reporting systematic reviews, BMJ, 372, n71, 10.1136/bmj.n71 Park, 2020, Home mechanical ventilation: back to basics, Acute and Critical Care, 35, 131, 10.4266/acc.2020.00514 Pautasso, 2013, Ten simple rules for writing a literature review, PLoS Comput. Biol., 9, 10.1371/journal.pcbi.1003149 Peters, 2020, Chaptor 11: scoping reviews (2020 version) Peterson, 2020, Psychological morbidity and chronic disease among adults with traumatic spinal cord injuries: a longitudinal cohort study of privately insured beneficiaries, Mayo Clin. Proc., 95, 920, 10.1016/j.mayocp.2019.11.029 Povitz, 2018, Home mechanical ventilation: a 12-year population-based retrospective cohort study, Respir. Care, 63, 380, 10.4187/respcare.05689 Rose, 2015, Home mechanical ventilation in Canada: a national survey, Respir. Care, 60, 695, 10.4187/respcare.03609 Rousseau, 2011, Quality of life of ALS and LIS patients with and without invasive mechanical ventilation, J. Neurol., 258, 1801, 10.1007/s00415-011-6018-9 Schaepe, 2017, I need complete trust in nurses' - home mechanical ventilated patients' perceptions of safety, Scand. J. Caring Sci., 31, 948, 10.1111/scs.12418 Schaepe, 2018, I see myself as part of the team" - family caregivers' contribution to safety in advanced home care, BMC Nurs., 17, 40, 10.1186/s12912-018-0308-9 Simonds, 2016, Home mechanical ventilation: an overview, Ann. Am. Thorac. Soc., 13, 2035, 10.1513/AnnalsATS.201606-454FR Stuart, 2004, Integrated health system for chronic disease management: lessons learned from France, Chest, 125, 695, 10.1378/chest.125.2.695 Tricco, 2018, PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation, Ann. Intern. Med., 169, 467, 10.7326/M18-0850 Valko, 2020, Home mechanical ventilation: quality of life patterns after six months of treatment, BMC Pulm. Med., 20, 10.1186/s12890-020-01262-z van der Poel, 2017, Home ventilation in South African children: do socioeconomic factors matter?, Pediatr. Allergy Immunol. Pulmonol., 30, 163, 10.1089/ped.2016.0727 Windisch, 2006, Lebensqualität bei Patienten mit häuslicher Beatmung [Quality of life in patients with home mechanical ventilation], Pneumologie, 60, 539, 10.1055/s-2006-932152 Winther, 2020, Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation-A qualitative study, J. Clin. Nurs., 29, 2306, 10.1111/jocn.15239 2004 Yamaguchi, 2013, Independent living with Duchenne muscular dystrophy and home mechanical ventilation in areas of Japan with insufficient national welfare services, Int. J. Qual. Stud. Health Well-being, 8, 8, 10.3402/qhw.v8i0.20914 Ørtenblad, 2019, Users' experiences with home mechanical ventilation: a review of qualitative studies, Respir. Care, 64, 1157, 10.4187/respcare.06855