Measurement of health-related quality of life in patients with interstitial lung disease and autoimmune diseases

Karimi, 2016, Health, health-related quality of life, and quality of life: what is the difference?, Pharmacoeconomics, 34, 645, 10.1007/s40273-016-0389-9 Aronson, 2021, Health related quality of life in interstitial lung disease: can we use the same concepts around the world?, Front Med (Lausanne), 8 Phua, 2022, Health-related quality of life in a multiracial Asian interstitial lung disease cohort, J Thorac Dis, 14, 4713, 10.21037/jtd-22-906 Jeganathan, 2020, Connective tissue disease-related interstitial lung disease: prevalence, patterns, predictors, prognosis, and treatment, Lung, 198, 735, 10.1007/s00408-020-00383-w Cox, 2020, Health-related quality of life of patients with idiopathic pulmonary fibrosis: a systematic review and meta-analysis, Eur Respir Rev, 29, 1, 10.1183/16000617.0154-2020 Natalini, 2017, Understanding the determinants of health-related quality of life in rheumatoid arthritis-associated interstitial lung disease, Respir Med, 127, 1, 10.1016/j.rmed.2017.04.002 Matcham, 2014, The impact of rheumatoid arthritis on quality-of-life assessed using the SF-36: a systematic review and meta-analysis, Semin Arthritis Rheum, 44, 123, 10.1016/j.semarthrit.2014.05.001 Yazdani, 2014, Survival and quality of life in rheumatoid arthritis-associated interstitial lung disease after lung transplantation, J. Heart Lung Transplant, 33, 514, 10.1016/j.healun.2014.01.858 Grau García, 2023, The impact of disease activity on health-related quality of life in patients with systemic lupus erythematosus, Med Clin (Barc), 160, 428, 10.1016/j.medcli.2022.11.019 Kernder, 2020, The patient's perspective: are quality of life and disease burden a possible treatment target in systemic lupus erythematosus?, Rheumatology, 59, v63, 10.1093/rheumatology/keaa427 Trentin, 2021, One year in review 2021: systemic lupus erythematosus, Clin Exp Rheumatol, 39, 231, 10.55563/clinexprheumatol/7gzsxp Shi, 2021, Relationship between disease activity, organ damage and health-related quality of life in patients with systemic lupus erythematosus: a systemic review and meta-analysis, Autoimmun Rev, 20, 102691, 10.1016/j.autrev.2020.102691 Ponyi, 2005, Functional outcome and quality of life in adult patients with idiopathic inflammatory myositis, Rheumatology, 44, 83, 10.1093/rheumatology/keh404 Manfredi, 2017, Prevalence and characterization of non-sicca onset primary Sjögren syndrome with interstitial lung involvement, Clin Rheumatol, 36, 1261, 10.1007/s10067-017-3601-1 Zhao, 2020, Associated factors with interstitial lung disease and health-related quality of life in Chinese patients with primary Sjögren's syndrome, Clin Rheumatol, 39, 483, 10.1007/s10067-019-04753-5 Palm, 2013, Clinical pulmonary involvement in primary Sjögren's syndrome: prevalence, quality of life and mortality-a retrospective study based on registry data, Rheumatology, 52, 173, 10.1093/rheumatology/kes311 He, 2013, Validation of the Chinese version of the Summated Xerostomia Inventory (SXI), Qual Life Res, 22, 2843, 10.1007/s11136-013-0420-y Bollmeier, 2019, Assessment of symptom burden and adherence to respiratory medications in individuals self-reporting a diagnosis of COPD within a community pharmacy setting, J Am Pharm Assoc (2003), 59, 479, 10.1016/j.japh.2019.04.017 Cui, 2018, Anxiety and depression in primary Sjögren's syndrome: a cross-sectional study, BMC Psychiatry, 18, 131, 10.1186/s12888-018-1715-x Priori, 2016, Sleep quality in patients with primary Sjögren's syndrome, Clin Exp Rheumatol, 34, 373 Haldorsen, 2011, A five-year prospective study of fatigue in primary Sjögren's syndrome, Arthritis Res Ther, 13, 10.1186/ar3487 Miyamoto, 2019, Health-related quality of life and costs in Sjögren's syndrome, Rheumatology (Oxford), 60, 2588, 10.1093/rheumatology/key370 Jaeger, 2016, Incidences and risk factors of organ manifestations in the early course of systemic sclerosis: a longitudinal EUSTAR study, PLOS ONE, 11, e0163894, 10.1371/journal.pone.0163894 Perelas, 2020, Systemic sclerosis-associated interstitial lung disease, Lancet Respir Med, 8, 304, 10.1016/S2213-2600(19)30480-1 Walker, 2007, Clinical risk assessment of organ manifestations in systemic sclerosis: a report from the EULAR Scleroderma Trials And Research group database, Ann Rheum Dis, 66, 754, 10.1136/ard.2006.062901 Steelandt, 2021, Ethnic influence on the phenotype of French patients with systemic sclerosis, Joint Bone Spine, 88, 105081, 10.1016/j.jbspin.2020.09.013 Herdman, 2011, Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L), Qual Life Res, 20, 1727, 10.1007/s11136-011-9903-x Patel, 2012, The development and validation of the King's Brief Interstitial Lung Disease (K-BILD) health status questionnaire, Thorax, 67, 804, 10.1136/thoraxjnl-2012-201581 Allanore, 2022, Quality of life in SSc-ILD patients: understanding the impact of the ILD and the needs of the SSc-ILD patients and their need for caregivers in France, J Scleroderma Relat Disord, 7, 49, 10.1177/23971983211013979 Ciaffi, 2020, Lung function is associated with minimal EQ-5D changes over time in patients with systemic sclerosis, Clin Rheumatol, 39, 1543, 10.1007/s10067-020-04951-6 Hudson, 2009, Health-related quality of life in systemic sclerosis: a systematic review, Arthritis Rheum, 61, 1112, 10.1002/art.24676 Sebastiani, 2020, Epidemiology and management of interstitial lung disease in ANCA-associated vasculitis, Clin Exp Rheumatol, 38, 221 Carpenter, 2009, Health-related quality of life for patients with vasculitis and their spouses, Arthritis Rheum, 61, 259, 10.1002/art.24235 Tomasson, 2012, Assessment of health-related quality of life as an outcome measure in granulomatosis with polyangiitis (Wegener's), Arthritis Care Res (Hoboken), 64, 273, 10.1002/acr.20649 Wallace, 2015, Reliability, validity and responsiveness to change of the Saint George's Respiratory Questionnaire in early diffuse cutaneous systemic sclerosis, Rheumatology (Oxford), 54, 1369, 10.1093/rheumatology/keu456 Suzuki, 2019, Performance of the COPD Assessment Test in patients with connective tissue disease-associated interstitial lung disease, Respir Med, 150, 15, 10.1016/j.rmed.2019.01.017 Swigris, 2021, The living with pulmonary fibrosis questionnaire in progressive fibrosing interstitial lung disease, ERJ Open Res, 7, 00145, 10.1183/23120541.00145-2020