Long term outcomes in classic bladder exstrophy – The adult picture

1987, Epidemiology of bladder exstrophy and epispadias: a communication from the international clearinghouse for birth defects monitoring systems, Teratology, 36, 221, 10.1002/tera.1420360210 Jayachandran, 2011, Register based study of bladder exstrophy-epispadias complex: prevalence, associated anomalies, prenatal diagnosis and survival, J Urol, 186, 2056, 10.1016/j.juro.2011.07.022 Trendelenberg, 1906, The treatment of ectopia vesicae, Ann Surg, 44, 281, 10.1097/00000658-190608000-00013 Mayo, 1926, Exstrophy of the bladder, Surg Gynecol Obstet, 43, 129 Woodhouse, 1996, Late failure of the reconstructed exstrophy bladder, Br J Urol, 77, 590, 10.1046/j.1464-410X.1996.94121.x Woodhouse, 2006, Standing the test of time: long-term outcome of reconstruction of the exstrophy bladder, World J Urol, 24, 244, 10.1007/s00345-006-0053-7 Gobet, 2009, Long-term follow up (37-69 years) of patients with bladder exstrophy treated with ureterosigmoidostomy: uro-nephrological outcome, J Pediatr Urol, 5, 190, 10.1016/j.jpurol.2008.11.007 Zabbo, 1986, Ureterosigmoidostomy and bladder exstrophy: a long-term followup, J Urol, 136, 396, 10.1016/S0022-5347(17)44879-8 Gupta, 2014, Examining long-term outcomes of bladder exstrophy: a 20-year follow-up, BJU Int, 113, 137, 10.1111/bju.12389 Szymanski, 2019, Probability of bladder augmentation, diversion and clean intermittent catheterization in classic bladder exstrophy: a 36-year, multi-institutional, retrospective cohort study, J Urol, 202, 1256, 10.1097/JU.0000000000000552 Maruf, 2020, Urinary continence outcomes in classic bladder exstrophy: a long-term perspective, J Urol, 203, 200, 10.1097/JU.0000000000000505 Harris, 2023, The exstrophy experience: a national survey assessing urinary continence, bladder management, and oncologic outcomes in adults, J Pediatr Urol, 19, 178.e1, 10.1016/j.jpurol.2022.11.014 Canalichio, 2020, Patient-reported outcomes in adult females with bladder exstrophy: a study of long-term sexual, reproductive and urinary outcomes using social media, J Pediatr Urol, 16, 567.e1, 10.1016/j.jpurol.2020.06.020 Frimberger, 2003, Continent urinary diversions in the exstrophy complex: why do they fail?, J Urol, 170, 1338, 10.1097/01.ju.0000082012.14663.7e Benz, 2018, Bladder Re-augmentation in classic bladder exstrophy: risk factors and prevention, Urology, 115, 157, 10.1016/j.urology.2018.02.003 Cleper, 2023, Exstrophy-epispadias complex: are the kidneys and kidney function spared?, Pediatr Nephrol, 10.1007/s00467-023-05889-y Sinatti, 2021, Long-Term fate of the upper urinary tract and ITS association with continence in exstrophy patients, J Pediatr Urol, 17, 655.e1, 10.1016/j.jpurol.2021.06.009 Ellison, 2017, Long-term fate of the upper tracts following complete primary repair of bladder exstrophy, J Pediatr Urol, 13, 394.e1, 10.1016/j.jpurol.2017.03.036 Handa, 2021, Long-term kidney outcomes in exstrophy-epispadias complex: how patients present as adults, Urology, 154, 333, 10.1016/j.urology.2021.01.033 Husmann, 2016, Long-term complications following bladder augmentations in patients with spina bifida: bladder calculi, perforation of the augmented bladder and upper tract deterioration, Transl Androl Urol, 5, 3 Gerharz, 2003, Metabolic and functional consequences of urinary reconstruction with bowel, BJU Int, 91, 143, 10.1046/j.1464-410X.2003.04000.x Lendvay, 2006, Augmentation cystoplasty rates at children's hospitals in the United States: a pediatric health information system database study, J Urol, 176, 1716, 10.1016/S0022-5347(06)00615-X DeFoor, 2004, Bladder calculi after augmentation cystoplasty: risk factors and prevention strategies, J Urol, 172, 1964, 10.1097/01.ju.0000140911.43898.15 Metcalfe, 2006, What is the need for additional bladder surgery after bladder augmentation in childhood?, J Urol, 176, 1801, 10.1016/j.juro.2006.03.126 Roberts, 2004, Time to recurrent stone formation in patients with bladder or continent reservoir reconstruction: fragmentation versus intact extraction, J Urol, 172, 1706, 10.1097/01.ju.0000138989.54211.f2 Szymanski, 2014, Cutting for stone in augmented bladders-what is the risk of recurrence and is it impacted by treatment modality?, J Urol, 191, 1375, 10.1016/j.juro.2013.11.057 Arkani, 2023, Urinary bladder cancer in bladder exstrophy and epispadias complex: a Swedish register study and a systematic review of the literature, JU Open Plus, 1, 10.1097/JU9.0000000000000014 Novak, 2005, Polyps in the exstrophic bladder. A cause for concern?, J Urol, 174, 1522, 10.1097/01.ju.0000179240.25781.1b Husmann, 2008, Long-term follow up of enteric bladder augmentations: the risk for malignancy, J Pediatr Urol, 4, 381, 10.1016/j.jpurol.2008.06.003 Smeulders, 2001, Neoplasia in adult exstrophy patients, BJU Int, 87, 623, 10.1046/j.1464-410x.2001.02136.x Silver, 1997, Prostate-specific antigen in men born with bladder exstrophy, Urology, 49, 253, 10.1016/S0090-4295(96)00438-4 Berkowitz, 2008, Prostate cancer in patients with the bladder exstrophy-epispadias complex: insights and outcomes, Urology, 71, 1064, 10.1016/j.urology.2007.12.069 Ebert, 2010, Long-term follow-up of male patients after reconstruction of the bladder-exstrophy-epispadias complex: psychosocial status, continence, renal and genital function, J Pediatr Urol, 6, 6, 10.1016/j.jpurol.2009.06.002 Lee, 2006, Gender-associated differences in the psychosocial and developmental outcome in patients affected with the bladder exstrophy-epispadias complex, BJU Int, 97, 349, 10.1111/j.1464-410X.2005.05910.x Tregunna, 2020, Let's Talk about Sex: a review of expectations, body image and sexual function in exstrophy, J Clin Urol, 13, 309, 10.1177/2051415819892458 Castagnetti, 2010, Sexual function in men born with classic bladder exstrophy: a norm related study, J Urol, 183, 1118, 10.1016/j.juro.2009.11.029 Silver, 1997, Penile length in adulthood after exstrophy reconstruction, J Urol, 157, 999, 10.1016/S0022-5347(01)65131-0 Baumgartner, 2017, Long-term sexual health outcomes in men with classic bladder exstrophy, BJU Int, 120, 422, 10.1111/bju.13866 Harris, 2022, Sexual health outcomes after penile reconstruction in the exstrophy-epispadias complex, J Pediatr Urol, 18, 747, 10.1016/j.jpurol.2022.02.016 Harris, 2020, Outcomes of inflatable penile prosthesis insertion using a neotunica allograft in neophalluses of patients on the bladder exstrophy-epispadias complex spectrum, J Pediatr Urol, 16, 659 e1, 10.1016/j.jpurol.2020.07.004 Suominen, 2015, Sexual function in patients operated on for bladder exstrophy and epispadias, J Urol, 194, 195, 10.1016/j.juro.2015.01.098 Wilson, 2007, The psychosocial impact of bladder exstrophy in adolescence, J Adolesc Health, 41, 504, 10.1016/j.jadohealth.2007.05.021 Reiner, 1999, Psychosexual dysfunction in males with genital anomalies: late adolescence, Tanner stages IV to VI, J Am Acad Child Adolesc Psychiatry, 38, 865, 10.1097/00004583-199907000-00017 Rubenwolf, 2016, Sexual function, social integration and paternity of males with classic bladder exstrophy following urinary diversion, J Urol, 195, 465, 10.1016/j.juro.2015.08.076 Salem, 2012, Long-term follow-up (18-35 years) of male patients with history of bladder exstrophy (BE) repair in childhood: erectile function and fertility potential outcome, J Sex Med, 9, 1466, 10.1111/j.1743-6109.2011.02536.x Cervellione, 2010, Vaginoplasty in the female exstrophy population: outcomes and complications, J Pediatr Urol, 6, 595, 10.1016/j.jpurol.2010.01.011 Canalichio, 2021, Long-term urological and gynecological outcomes following complete primary repair in females with bladder exstrophy, J Pediatr Urol, 17, 608.e1, 10.1016/j.jpurol.2021.07.019 Ebert, 2017, Evaluation of sexual function in females with exstrophy-epispadias-complex: a survey of the multicenter German CURE-Net, J Pediatr Urol, 13, 183 e1 Sinatti, 2021, Long-term outcome of urethral and genital reconstruction in hypospadias and exstrophy-epispadias complex, Curr Opin Urol, 31, 480, 10.1097/MOU.0000000000000920 Deans, 2015, Sexual function and health-related quality of life in women with classic bladder exstrophy, BJU Int, 115, 633, 10.1111/bju.12811 Rubenwolf, 2016, Sexual function and fertility of women with classic bladder exstrophy and continent urinary diversion, J Urol, 196, 140, 10.1016/j.juro.2015.12.099 Zhu, 2020, Urological, sexual, and quality of life evaluation of adult patients with exstrophy-epispadias complex: long-term results from a Dutch cohort, Urology, 136, 272, 10.1016/j.urology.2019.10.011 Kaufman, 2018, Pelvic organ prolapse and pregnancy in the female bladder exstrophy patient, Curr Urol Rep, 19, 18, 10.1007/s11934-018-0767-2 Mathews, 2003, Urogynaecological and obstetric issues in women with the exstrophy-epispadias complex, BJU Int, 91, 845, 10.1046/j.1464-410X.2003.04244.x Nakhal, 2012, Genital prolapse in adult women with classical bladder exstrophy, Int Urogynecol J, 23, 1201, 10.1007/s00192-012-1717-z Kazmierski, 2020, Congenital bladder exstrophy with uterine didelphys and prolapse of both uterine horns: a case report, Clin Imag, 67, 55, 10.1016/j.clinimag.2020.05.022 Dy, 2015, Successful pregnancy in patients with exstrophy-epispadias complex: a University of Washington experience, J Pediatr Urol, 11, 213 e1, 10.1016/j.jpurol.2015.04.019 Nethercliffe, 2001, False-positive pregnancy tests in patients with enterocystoplasties, BJU Int, 87, 780, 10.1046/j.1464-410x.2001.02187.x Vasquez, 2022, False positive pregnancy tests in pediatric patients with augmentation enterocystoplasty, J Pediatr Urol, 18, 615 e1, 10.1016/j.jpurol.2022.09.008 Nakhal, 2012, False-positive pregnancy tests following enterocystoplasty, BJOG, 119, 366, 10.1111/j.1471-0528.2011.03031.x Deans, 2012, Reproductive outcomes in women with classic bladder exstrophy: an observational cross-sectional study, Am J Obstet Gynecol, 206, 496 e1, 10.1016/j.ajog.2012.03.016 Zinaman, 1996, Estimates of human fertility and pregnancy loss, Fertil Steril, 65, 503, 10.1016/S0015-0282(16)58144-8 Greenwell, 2003, Pregnancy after lower urinary tract reconstruction for congenital abnormalities, BJU Int, 92, 773, 10.1046/j.1464-410X.2003.04465.x Giron, 2011, Bladder exstrophy: reconstructed female patients achieving normal pregnancy and delivering normal babies, Int Braz J Urol, 37, 605, 10.1590/S1677-55382011000500006 Mitchell, 1996, Complete penile disassembly for epispadias repair: the Mitchell technique, J Urol, 155, 300, 10.1016/S0022-5347(01)66649-7 Kelly, 1995, Vesical exstrophy: repair using radical mobilisation of soft tissues, Pediatr Surg Int, 10, 298 Feitz, 1994, Outcome analysis of the psychosexual and socioeconomical development of adult patients born with bladder exstrophy, J Urol, 152, 1417, 10.1016/S0022-5347(17)32434-5 Dellenmark-Blom, 2019, Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research, Qual Life Res, 28, 1389, 10.1007/s11136-019-02119-7 Holmdahl, 2020, Health-related quality of life in patients with the bladder exstrophy-epispadias complex and relationship to incontinence and sexual factors: a review of the recent literature, Eur J Pediatr Surg, 30, 251, 10.1055/s-0040-1713178 Hamid, 2009, Routine surveillance cystoscopy for patients with augmentation and substitution cystoplasty for benign urological conditions: is it necessary?, BJU Int, 104, 392, 10.1111/j.1464-410X.2009.08401.x Higuchi, 2011, Annual endoscopy and urine cytology for the surveillance of bladder tumors after enterocystoplasty for congenital bladder anomalies, J Urol, 186, 1791, 10.1016/j.juro.2011.07.028 Haddad, 2018, Who, where, and why are patients lost to follow-up? A 20-year study of bladder exstrophy patients at a single institution, J Pediatr Urol, 14, 276.e1, 10.1016/j.jpurol.2017.12.022