Knowledge of Palliative Care Among Community-Dwelling Adults

American Journal of Hospice and Palliative Medicine - Tập 35 Số 4 - Trang 647-651 - 2018
Elissa Kozlov1, Meghan McDarby2, M. Carrington Reid1, Brian Carpenter2
1Department of Medicine, Weill Cornell Medical College, New York, NY, USA
2Department of Psychology, Washington University in St. Louis, St. Louis, MO, USA

Tóm tắt

Objective: To identify what laypersons know about palliative care using the Palliative Care Knowledge Scale (PaCKS). A secondary aim was to establish preliminary normative data for the PaCKS. Methods: A sample of 301 adults were recruited via Amazon’s Mechanical Turk database. Participants were administered the PaCKS along with a demographic questionnaire. Results: The mean score on the 13-item PaCKS was 5.25 (standard deviation = 4.77, range: 0-13), the median was 5, and the mode was 0, with a significant proportion of participants selecting “I don’t know” for every item. Women scored significantly higher than men, and 45- to 54- and 55- to 64-year-olds scoring highest. The PaCKS was also significantly positively correlated with education. Conclusion: Broadly, laypersons lack knowledge about some key aspects of palliative care, though palliative care knowledge is highly variable across individuals and some groups. Targeted educational interventions are essential to improve knowledge of palliative care in order to increase access to this type of life-enhancing, supportive service.

Từ khóa


Tài liệu tham khảo

10.1089/jpm.2011.9634

Department of Veterans Affairs, Veterans Health Administration. Palliative Care Consultation Teams; 2008:1–7. http://www1.va.gov/vhapublications/ViewPublication.asp?pub_ID=1784.Accessed August 3, 2017.

10.1097/PPO.0b013e3181f684e5

10.4103/0973-1075.76233

10.1056/NEJMoa1000678

Center for the Advancement of Palliative Care. Palliative Care Service Penetration by Hospital Size, 2015. NewYork, NY; 2015. https://registry.capc.org/wp-content/uploads/2016/10/PalliativeCarePenetration2015.pdf. Accessed August 3, 2017.

Center to Advance Palliative Care. Palliative Care Facts and Stats. 2014. https://media.capc.org/filer_public/68/bc/68bc93c7-14ad-4741-9830-8691729618d0/capc_press-kit.pdf. Accessed August 3, 2017.

Grossman M, 1997, Effects of Education on Health

10.1007/s00520-015-2788-4

10.1177/1049909114546885

10.1089/109662104773709369

10.1177/0269216306074639

Elizabeth H, McInturff B. 2011 Public Opinion Research on Palliative Care. Center to Advance Palliative Care (CAPC) with support from the American Cancer Society (ACS) and the American Cancer Society Cancer Action Network (ACS CAN). 2011. https://media.capc.org/filer_public/18/ab/18ab708c-f835-4380-921d-fbf729702e36/2011-public-opinion-research-on-palliative-care.pdf. Accessed August 3, 2017.

10.1177/1049909117715215

10.1017/S1478951516000997

10.1093/geront/25.2.177

10.1177/1745691610393980

Gibson Hunt G, Barrett L, Management Susan Lutz K, National alliance for caregiving in collaboration with AARP. 2009. http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf. Accessed August 3, 2017.

10.2307/2095354

10.1089/jpm.2015.0514

10.1016/j.pec.2016.12.022

Before I Die. http://beforeidie.city/. Accessed August 3, 2017.

Redesigning Death | ideo.com. https://www.ideo.com/case-study/redesigning-death. Accessed August 3, 2017.

10.1093/geront/25.2.177

10.7812/TPP/07-144

10.1177/1049909115615566