Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over: a feasibility study to inform a future trial
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Department of Health. The National Service Framework for long-term conditions. UK: Crown Copyright; 2005.
Department of Health. Living well with dementia. London (UK): A National Dementia Strategy; 2009.
Department of Health. The Dementia Challenge. Fighting back against dementia. UK. 2012. https://engage.dh.gov.uk/dementiachallenge .
van der Roest H, Meiland F, Comijs H, Derksen E, Jansen A, van Hout H, et al. What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. Int Psychogeriatr. 2009;21(5):949–65.
Flannery Jr RB. Treating learned helplessness in the elderly dementia patient: preliminary inquiry. American Journal of Alzheimers Disease and Other Dementias. 2002;17(6):345–9.
Olazaran J, Reisberg B, Clare L, Cruz I, Pena-Casanova J, Del Ser T, et al. Nonpharmacological therapies in Alzheimer’s disease: a systematic review of efficacy. Dementia Geriatric Cognitive Disorders. 2010;30(2):161–78. doi: 10.1159/000316119 .
Cooper C, Mukadam N, Katona C, Lyketsos CG, Ames D, Rabins P, et al. Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. Int Psychogeriatr. 2012;24(06):856–70. doi: 10.1017/S1041610211002614 .
Logsdon RG, Pike KC, McCurry SM, Hunter P, Maher J, Snyder L, et al. Early-stage memory loss support groups: outcomes from a randomized controlled clinical trial. J Gerontol B Psychol Sci Soc Sci. 2010;65(6):691–7. doi: 10.1093/geronb/gbq054 .
Mountain G. Self management and dementia: an exploration of concepts and evidence dementia. The International Journal of Social Research and Practice. 2006;5(3):429–47.
Mountain G, Craig C. What should be in a self-management programme for people with early dementia? Aging and Mental Health. 2012;16(5):576–83.
Sprange K, Mountain GA, Brazier J, Cook SP, Craig C, Hind D, et al. Lifestyle Matters for maintenance of health and wellbeing in people aged 65 years and over: study protocol for a randomised controlled trial. Trials. 2013;14:302. doi: 10.1186/1745-6215-14-302 .
Clark F, Azen S, Zemke R, Jackson J, Carlson M, Mandel D. Occupational therapy for independent-living older adults. JAMA. 1997;278(16):1321–6.
Clark F, Jackson J, Carlson M, Chou CP, Cherry BJ, Jordan-Marsh M, et al. Effectiveness of a lifestyle intervention in promoting the well-being of independently living older people: results of the Well Elderly 2 Randomised Controlled Trial. J Epidemiol Community Health. 2012;66(9):782–90. doi: 10.1136/jech.2009.099754 .
Clark F, Azen S, Carlson M, Mandel D, LaBree L, Hay J, et al. Embedding health-promoting changes into the daily lives of independent-living older adults: long-term follow-up of occupational therapy intervention. Journal of Gerontology: Series B Psychological Sciences. 2001;56(1):60–3.
Craig C, Mountain G. Lifestyle Matters: an occupational approach to healthy ageing. Bicester: Speechmark; 2007.
Bandura A. Self-efficacy: the exercise of control. New York: Freeman; 1997.
Luszczynska A, Gutierrez-Dona B, Schwarzer R. General self-efficacy in various domains of human functioning: evidence from five countries. Int J Psychol. 2005;40(2):80–9.
Medical Research Council (MRC). Developing and evaluating complex interventions: new guidance. 2008. http://www.mrc.ac.uk/documents/pdf/complex-interventions-guidance/ . August 2014.
Moher D, Schulz KF, Altman DG. The CONSORT statement: revised recommendations for improving the quality of reports of parallel group randomised trials. BMC Medical Research Methodology. 2001;1(2). doi: 10.1186/1471-2288-1-2 .
Folstein MF, Folstein SE, McHugh PR. “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12(3):189–98.
Brod M, Stewart AL, Sands L, Walton P. Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL. Gerontologist. 1999;39:25–35.
Mozley CG, Huxley P, Sutcliffe C, Bagley H, Burns A, Challis D, et al. ‘Not knowing where I am doesn’t mean I don’t know what I like’: cognitive impairment and quality of life responses in elderly people. Int J Geriatr Psychiatry. 1999;14:776–83.
HMSO. Mental Capacity Act 2005: UK.
McKeown J, Clarke A, Ingleton C, Repper J. Actively involving people with dementia in qualitative research. J Clin Nurs. 2010;19:1935–43.
Bourgeois M, Dijkstra K, Burgio L, Allen-Burge R. Memory aids as an augmentative and alternative communication strategy for nursing home residents with dementia. Augment Altern Commun. 2001;17(3):196–210. doi: 10.1080/aac.17.3.196.210 .
National Collaborating Centre for Mental Health (UK). Dementia: a NICE-SCIE guideline on supporting people with dementia and their carers in health and social care. NICE Clinical Guidelines No 42. Leicester (UK): British Psychological Society; 2007.
Hawe P, Shiell A, Riley T. Complex interventions: how “out of control” can a randomised controlled trial be? BMJ. 2004;328(7455):1561–3.
Mulhern B, Rowen D, Brazier J, Smith S, Romeo R, Tait R et al. Development of DEMQOL-U and DEMQOLPROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation. Health Technology Assessment. 2013;15(5).
Herdman M, Gudex C, Lloyd A, Janssen MF, Kind P, Parkin D, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5 L). Qual Life Res. 2011;20(10):1727–36.
Kroenke K, Spitzer RL, Williams JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med. 2001;16(9):606–13.
Spitzer RL, Kroenke K, Williams JBW, Lowe B. A brief measure for assessing generalized anxiety disorder. Arch Inern Med. 2006;166:1092–7.
Schwarzer R, Jerusalem M. Generalized Self-Efficacy scale. In: Weinman J, Wright S, Johnston M, editors. Measures in health psychology: A user’s portfolio. Causal and control beliefs. Windsor, England: NFER-NELSON; 1995. p. 35–7.
Lawton MP, Brody EM. Assessment of older people: selfmaintaining and instrumental activities of daily living. Gerontologist. 1969;9(3):179–86.
Hérbert R, Bravo G, Préville M. Reliability, validity, and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Can J Aging. 2000;19:494–507.
Vernooij-Dassen MJFJ, Persoon JMG, Felling AJA. Predictors of sense of competence in caregivers of demented persons. Soc Sci Med. 1996;43:41–9.
Vernooij-Dassen A, Felling E, Brummelkamp M, Dautzenberg G, Van den Bosch RG. A short sense of competence questionnaire (SSCQ): measuring the caregiver’s sense of competence. J Am Geriatr Soc. 1999;47:256–7.
Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13:117. doi: 10.1186/1471-2288-13-117 .
Mulhern B, Rowen D, Brazier J, et al. Development of DEMQOL-U and DEMQOL-PROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation. Southampton (UK): NIHR Journals Library; 2013 Feb. (Health Technology Assessment, No.17.5.) Available from: http://www.ncbi.nlm.nih.gov/books/NBK260320/
Stoner CR, Orrell M, Spector A. Review of positive psychology outcome measures for chronic illness, traumatic brain injury and older adults: adaptability in dementia? Dement Geriatr Cogn Disord. 2015;40(5–6):340–57. doi: 10.1159/000439044 .
Lubben J, Blozik E, Gillmann G, Iliffe S, von Renteln KW, Beck JC, et al. Performance of an abbreviated version of the Lubben Social Network Scale among three European community-dwelling older adult populations. Gerontologist. 2006;46(4):503–13.
Clare L, Nelis SM, Quinn C, Martyr A, Henderson C, Hindle JV et al. Improving the experience of dementia and enhancing active life-living well with dementia: study protocol for the IDEAL study. Health Qual Life Outcomes. 2014;12. doi: 10.1186/s12955-014-0164-6
Trigg R, Jones R, Skevington SM. Can people with mild to moderate dementia provide reliable answers about their quality of life? Age Ageing. 2007;36(6):663–9. doi: 10.1093/ageing/afm077 .
Ready R, Ott B. Quality of life measures for dementia. Health and Quality of Life Outcomes. 2003;1(1):11.
Alzheimers Research UK. Dementia statistics. http://www.alzheimersresearchuk.org/dementia-statistics/ . August 2014.
Sabat SR. Excess disability and malignant social psychology: a case study of Alzheimer’s disease. Journal of community & applied social psychology. 1994;4(3):157–66.