It Is a Life Journey: A Roadmap of Teens With Chronic Diseases in Transitioning to Independence
Tài liệu tham khảo
Anderson, 2016, On the path to a science of patient input, Science Translational Medicine, 8, 336ps11, 10.1126/scitranslmed.aaf6730
Babler, 2015, Moving the journey towards independence: Adolescents transitioning to successful diabetes self-management, Journal of Pediatric Nursing, 30, 648, 10.1016/j.pedn.2015.06.005
Baltes, 1987, Theoretical propositions of life-span developmental psychology: On the dynamics between growth and decline, Developmental Psychology, 23, 611, 10.1037/0012-1649.23.5.611
Betz, 2014, The health care transition research consortium health care transition model: A framework for research and practice, Journal of Pediatric Rehabilitation Medicine, 7, 3, 10.3233/PRM-140277
Blum, 1993, Transition from child-centered to adult health-care systems for adolescents with chronic conditions, Journal of Adolescent Health, 14, 570, 10.1016/1054-139X(93)90143-D
Brown, 2016, The neurologist's role in supporting transition to adult health care: A consensus statement, Neurology, 87, 835, 10.1212/WNL.0000000000002965
Charmaz, 2006
Compas, 2012, Coping with chronic illness in childhood and adolescence, Annual Review of Clinical Psychology, 8, 455, 10.1146/annurev-clinpsy-032511-143108
Gutiérrez-Zotes, 2004, Inventario del Temperamento y el Carácter-Revisado (TCI-R). Baremación y datos normativos en una muestra de población general [Temperament and Character Inventory Revised (TCI-R). Standardization and normative data in a general population sample], Actas Españolas de Psiquiatría, 32, 8
2007
Hamine, 2015, Impact of mHealth chronic disease management on treatment adherence and patient outcomes: A systematic review, Journal of Medical Internet Research, 17, e52, 10.2196/jmir.3951
Hojnoski, 2006, Projective test use among school psychologists: A survey and critique, Journal of Psychoeducational Assessment, 24, 145, 10.1177/0734282906287828
Holtz, 2017, Developing a patient-centered mHealth app: A yool for adolescents with type 1 diabetes and their parents, JMIR mHealth and uHealth, 5, e53, 10.2196/mhealth.6654
Huang, 2014, Preparing adolescents with chronic disease for transition to adult care: A technology program, Pediatrics, 133, e1639, 10.1542/peds.2013-2830
Huver, 2010, Personality and parenting style in parents of adolescents, Journal of Adolescence, 33, 395, 10.1016/j.adolescence.2009.07.012
Jackson, 1998, The Authoritative Parenting Index: Predicting health risk behaviors among children and adolescents, Health Education and Behavior, 25, 319, 10.1177/109019819802500307
Kennedy, 2007, Young people with chronic illness: The approach to transition, Internal Medicine Journal, 37, 555, 10.1111/j.1445-5994.2007.01440.x
Lebrun-Harris, 2018, Transition planning among US youth with and without special health care needs, Pediatrics, 142, 10.1542/peds.2018-0194
LeRouge, 2013, User profiles and personas in the design and development of consumer health technologies, International Journal of Medical Informatics, 82, e251, 10.1016/j.ijmedinf.2011.03.006
Orlowski, 2016, Mental health technologies: Designing with consumers, JMIR Human Factors, 3, e4, 10.2196/humanfactors.4336
Prochaska, 1997, The transtheoretical model of health behavior change, American Journal of Health Promotion, 12, 38, 10.4278/0890-1171-12.1.38
Rutishauser, 2014, Transition of young people with chronic conditions: A cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care, European Journal of Pediatrics, 173, 1067, 10.1007/s00431-014-2291-9
Sanders, 2014, Probes, toolkits and prototypes: Three approaches to making in codesigning, CoDesign, 10, 5, 10.1080/15710882.2014.888183
Sanders, 2012, Convivial design toolbox: Generative research for the front end of design, BIS
Sawyer, 2007, Adolescents with a chronic condition: Challenges living, challenges treating, Lancet, 369, 1481, 10.1016/S0140-6736(07)60370-5
Schwartz, 2011, A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions, Child: Care, Health and Development, 37, 883, 10.1111/j.1365-2214.2011.01282.x
Sezgin, 2018, Proposing an ecosystem of digital health solutions for teens with chronic conditions transitioning to self-management and independence: Exploratory qualitative study, Journal of Medical Internet Research, 20, e10285, 10.2196/10285
Surís, 2008, Health risk behaviors in adolescents with chronic conditions, Pediatrics, 122, e1113, 10.1542/peds.2008-1479
Van Cleave, 2010, Dynamics of obesity and chronic health conditions among children and youth, JAMA, 303, 623, 10.1001/jama.2010.104
White, 2018, Supporting the health care transition from adolescence to adulthood in the medical home, Pediatrics, 142, 10.1542/peds.2018-2587