Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the National Dementia Programme
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United Nations Secretariat: Population Division of the Department of Economic and Social Affairs of the United Nations Secretariat (2002). World Population Prospect: The. 2002, New York: United Nations, revision
ARCH, National Respite Network & Resource Centre. Factsheet Number 55: Respite care for persons with Alzheimer's Disease or related dementia. 2002, [ http://www.archrespite.org/archfs55.htm ]
Torti FM, Gwyther LP, Reed SD, Freidman JY, Schulman KA: A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Dis Assoc Discord. 2004, 18: 99-109. 10.1097/01.wad.0000126902.37908.b2.
Rosenblatt A, Samus QM, Steele CD, Baker AS, Harper MG, Brandt J, Rabins PV, Lyketsos CG: The Maryland Assisted Living Study: Prevalence, recognition, and treatment. J Am Geriatr Soc. 2004, 52: 1618-1625. 10.1111/j.1532-5415.2004.52452.x.
Wancata J, Musalek M, Alexandrowicz R, Kraugartner M: Number of dementia sufferers in Europe between the years 2000 and 2050. Eur Psychiatry. 2003, 18 (6): 306-313. 10.1016/j.eurpsy.2003.03.003.
Papastavrou E, Kalokerinou A, Papacostas SS, Tsangari H, Sourtzi P: Caregiving for a relative with dementia: family caregiver burden. J Adv Nurs. 2007, 58: 446-457. 10.1111/j.1365-2648.2007.04250.x.
Gräsel E: When home care ends - changes in the physical health of informal caregivers caring for people with dementia: a longitudinal study. J Am Geriatr Soc. 2002, 50: 843-849. 10.1046/j.1532-5415.2002.50209.x.
Legault A, Ducharme F: Advocating for a parent with dementia in a long-term care facility: the process experienced by daughters. J Fam Nurs. 2009, 15 (2): 198-219. 10.1177/1074840709332929.
Nordberg G, Von Strauss E, Kåreholt I, Johansson L, Wimo A: The amount of informal and formal care among non-demented and demented elderly persons. Results from a Swedish population-based study. Int J Geriatr Psychiatry. 2005, 20: 862-871. 10.1002/gps.1371.
Bruce JM, McQuiggan M, Williams V, Westervelt H, Tremont G: Burden among spousal and child caregivers of patients with mild cognitive impairment. Dement Geriatr Cogn Disord. 2008, 25: 385-390. 10.1159/000122587.
Gaugler J, Jarrott S, Zarit S, Stephens MA, Townsend A, Greene R: Respite for dementia caregivers: the effects of adult day service use on caregiving hours and care demands. Int Psychogeriatr. 2003, 15: 37-58. 10.1017/S1041610203008743.
Gaugler JE, Kane RL, Kane RA, Newcomer R: Unmet care needs and key outcomes in dementia. JAGS. 2005, 53: 2098-2105. 10.1111/j.1532-5415.2005.00495.x.
Gaugler JE, Kane RL, Kane RA, Newcomer R: Early community-based service utilization and its effects on institutionalization in dementia care giving. Gerontologist. 2005, 45 (2): 177-185.
Van der Roest HG, Meiland FJM, Comijs HC, Derksen E, Jansen APD, Van Hout HPJ, Jonker C, Dröes R-M: What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. Int Psychogeriat. 2009, 21 (5): 949-965. 10.1017/S1041610209990147.
Droës R-M, Meiland FJM, Schmitz MJ, Van Tilburg W: Effect of the Meeting Centres Support Program on informal carers of people with dementia: Results from a multi-centre study. Aging & Mental Health. 2006, 19 (2): 112-124. 10.1080/13607860500310682.
Van der Roest HG, Meiland FJM, Maroccini R, Comijs HC, Jonker C, Dröes R-M: Subjective needs of people with dementia: a review of the literature. Int Psychogeriat. 2007, 19 (3): 559-592. 10.1017/S1041610206004716.
Meerveld JHCM, Schumacher J, Krijger E, Bal R, Nies H: National Dementia Programme: workbook [Landelijk dementieprogramma: werkboek). 2006, NIZW, the Netherlands Institute for Care and Welcare [Nederlands Instituut voor Zorg en Welzijn]: Utrecht
Van der Poel K, Van Beek APA: Ontwikkeling van de vragenlijst 'Wensen en problemen van mantelzorgers van mensen met dementie' [Development of the questionnaire 'Needs and problems of informal caregivers of persons with dementia']. 2006, Utrecht: NIVEL, the Netherlands Institute for Health Services Research [Nederlands Instituut voor onderzoek van de Gezondheidszorg]
Brodaty H, Reen A, Koschera A: Meta-analysis of psychosocial interventions for caregivers of patients with dementia. J Am Geriatr Soc. 2003, 51: 657-674. 10.1034/j.1600-0579.2003.00210.x.
Brodaty H, Thomson C, Thompson C, Fine M: Why caregivers of people with dementia and memory loss don't use services. Int J Geriatr Psychiatry. 2005, 20: 637-546.
Swaab DF: Dementia. Advise of the Health Council to the Ministry of Health, Welfare and Sport [Dementie. Advies van een commissie van de Gezondheidsraad aan de Minister van Volksgezondheid, Welzijn en Sport]. 2002, Den Haag: Health Council of the Netherlands [Gezondheidsraad], number of publication 2002/04
Thompson CA, Spilbury K, Hall J, Birks Y, Barnes C, Adamson J: Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics. 2007, 27: 7-18.
Minkman MMN, Ligthart SA, Huisman R: Integrated dementia care in the Netherlands: a multiple case study of case management programmes. Health and Social Care in the Community. doi:10.1111.j.1365-2524.2009.00850.x
Jansen APD: Effectiveness of case management among older adults with dementia symptoms and their informal caregivers. PhD thesis. 2007, Amsterdam: Vrije Universiteit Amsterdam