Influencing health policy through public deliberation: Lessons learned from two decades of Citizens'/community juries

Social Science and Medicine - Tập 179 - Trang 166-171 - 2017
Chris Degeling1, Lucie Rychetnik2,1, Jackie Street3, Rae Thomas4, Stacy M. Carter1
1Centre for Values, Ethics and the Law in Medicine, School of Public Health, K25, University of Sydney, NSW, 2006, Australia
2School of Medicine Sydney, The University of Notre Dame, Broadway, NSW, 2077, Australia
3School of Public Health, North Terrace Tower, The University of Adelaide, SA, 5005, Australia
4Faculty of Health Sciences and Medicine, Bond University, Gold Coast, 4229 QLD, Australia

Tài liệu tham khảo

Abelson, 2003, Deliberations about deliberative methods: issues in the design and evaluation of public participation processes, Soc. Sci. Med., 57, 239, 10.1016/S0277-9536(02)00343-X Abelson, 2012, The future of public deliberation on health issues, Hastings Cent. Rep., 42, 27, 10.1002/hast.30 Abelson, 2013, Public deliberation in health policy and bioethics: mapping an emerging, interdisciplinary field, J. Public Deliberation, 9, 5 Barnes, 2007 Birkland, 2014 Boswell, 2015, Who speaks, and in what Voice? The challenge of engaging ‘the public’ in health policy decision-making, Public Manag. Rev., 17, 1358, 10.1080/14719037.2014.943269 Braunack-Mayer, 2010, Including the public in pandemic planning: a deliberative approach, BMC public health, 10, 501, 10.1186/1471-2458-10-501 Burchardt, 2014, Deliberative research as a tool to make value judgements, Qual. Res., 14, 353, 10.1177/1468794112469624 Carson, 2008, Creating democratic surplus through citizens' assemblies, J. Public Deliberation, 4 Colebatch, 2010, Understanding Policy Work, 11 Davies, 2006 Daviter, 2015, The political use of knowledge in the policy process, Policy Sci., 48, 491, 10.1007/s11077-015-9232-y Degeling, 2015, Which public and why deliberate? – A scoping review of public deliberation in public health and health policy research, Soc. Sci. Med., 131, 114, 10.1016/j.socscimed.2015.03.009 Degeling, 2015, What should happen before asymptomatic men decide whether or not to have a PSA test? A report on three community juries, Med. J. Australia, 203, 335, 10.5694/mja15.00164 Dewey, 2012 Dryzek, 2000 Fishkin, 2010, Consulting the public thoughtfully: prospects for deliberative democracy Friedrich, 1968, Public policy and the nature of administrative responsibility’ Goodin, 2006, Deliberative impacts: the macro-political uptake of mini-publics, Polit. Soc., 34, 219, 10.1177/0032329206288152 Hendriks, 2005, Participatory storylines and their influence on deliberative forums, Policy Sci., 38, 1, 10.1007/s11077-005-0870-3 Hill, 2008 Hill, 2014 Hodgetts, 2014, Disinvestment policy and the public funding of assisted reproductive technologies: outcomes of deliberative engagements with three key stakeholder groups, BMC Health Serv. Res., 14, 204, 10.1186/1472-6963-14-204 Irwin, 2013, The good, the bad and the perfect: criticizing engagement practice, Soc. Stud. Sci., 43, 118, 10.1177/0306312712462461 Krinks, 2016, Do consumer voices in health-care citizens' juries matter?, Health Expect., 19, 1015, 10.1111/hex.12397 Li, 2015, Conceptualizing the use of public involvement in health policy decision-making, Soc. Sci. Med., 138, 14, 10.1016/j.socscimed.2015.05.023 Mahony, 2010, Introduction: rethinking the public, 1 Majone, 1989 Martin, 2008, Representativeness, legitimacy and power in public involvement in health-service management, Soc. Sci. Med., 67, 1757, 10.1016/j.socscimed.2008.09.024 Martin, 2008, ‘Ordinary people only’: knowledge, representativeness, and the publics of public participation in healthcare, Sociol. health & Illn., 30, 35, 10.1111/j.1467-9566.2007.01027.x Mitton, 2009, Public participation in health care priority setting: a scoping review, Health Policy, 91, 219, 10.1016/j.healthpol.2009.01.005 Parkinson, 2004, Hearing voices: negotiating representation claims in public Deliberation1, Br. J. Polit. Int. Relat., 6, 370, 10.1111/j.1467-856X.2004.00145.x Rowe, 2005, A typology of public engagement mechanisms, Sci. Technol. Hum. values, 30, 251, 10.1177/0162243904271724 Rychetnik, 2013, Enhancing citizen engagement in cancer screening through deliberative democracy, J. Natl. Cancer Inst., 105, 380, 10.1093/jnci/djs649 Rychetnik, 2014, A Community Jury on PSA screening: what do well-informed men want the government to do about prostate cancer screening—a qualitative analysis, BMJ Open, 4, e004682, 10.1136/bmjopen-2013-004682 Solomon, 2012, Why and when should we use public deliberation?, Hastings Cent. Rep., 42, 17, 10.1002/hast.27 Street, 2014, The use of citizens' juries in health policy decision-making: a systematic review, Soc. Sci. Med., 109, 1, 10.1016/j.socscimed.2014.03.005 Tenbensel, 2006, Policy knowledge for policy work, 199 Thomas, 2016, CJCheck Stage 1: development and testing of a checklist for reporting community juries – Delphi process and analysis of studies published in 1996–2015, Health Expect. Williams, 2010, Is Evidence-based Policy Making Really Possible? Reflections for policymakers and academics on making use of research in the work of policy, 195 Woolf, 2015, Translating evidence into population health improvement: strategies and barriers, Annu. Rev. public health, 36, 463, 10.1146/annurev-publhealth-082214-110901