Illness beliefs among people living with treated coeliac disease

Scandinavian Journal of Caring Sciences - Tập 34 Số 2 - Trang 401-408 - 2020
Lisa Ring Jacobsson1, Åsa Johansson Stark1, Jeanette Eckerblad1
1Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden

Tóm tắt

BackgroundEvidence suggests that many people with coeliac disease (CD) suffer from continuing illness despite following a strict gluten‐free diet. Beliefs affect how people experience and manage their residual symptoms. Illness beliefs therefore provide a useful framework for understanding these problems.AimTo explore illness beliefs among people living with treated coeliac disease.MethodsThe design was qualitative descriptive with semi‐structured interviews including 22 adults with coeliac disease. Data were analysed with qualitative content analysis. The study follows the ethical guidelines given in the Declaration of Helsinki and was approved by the local ethical committee (DN 2014/92‐31).FindingThe source of experienced continuing illness, despite following a gluten‐free diet, was believed to be a bodily imbalance affecting participants’ lives in many ways, both private and in contact with the health services. Due to a feeling of exhaustion and lack of energy, this imbalance had prevented them from participating in school, work life and social activities. Since the participants had often been ill for many years before diagnosis, they believed their intestine to be so damaged that it was no longer possible to achieve a bodily balance.ConclusionsIllness beliefs in people diagnosed and treated for CD showed that they explained various continuing conditions, physiological and/or psychological, by a bodily imbalance, originally caused by the CD. By uncovering these illness beliefs, the possibility of finding an adequate and facilitative strategy grows stronger.

Từ khóa


Tài liệu tham khảo

10.1016/j.jaci.2015.01.044

10.1177/0884533611399773

10.3748/wjg.v18.i12.1348

10.1038/ajg.2014.355

10.1186/1471-230X-13-75

10.1177/1074840715576794

10.1111/scs.12351

10.1016/j.apnr.2017.02.009

10.1111/jgh.12514

10.1056/NEJMoa1313977

10.1053/j.gastro.2015.01.044

10.1016/j.cgh.2012.11.033

10.1111/j.2044-8287.2012.02069.x

10.1016/j.jpsychores.2012.11.007

10.1111/j.1365-2036.2010.04432.x

10.1136/gut.2009.195131

10.3390/nu8090525

2009 4th Floor Press Inc. Calgary AB LM Wright JM Bell Beliefs and Illness: A Model for Healing

10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G

Patton MQ, 2015, Qualitative Research & Evaluation Method: Integrating Theory and Practice

Flick U, 2014, An Introduction to Qualitative Research

Brinkmann S, 2015, InterViews: Learning the Craft of Qualitative Research Interviewing

Krippendorff K, 2013, Content Analysis: An Introduction to Its Methodology

10.1186/1477-7525-10-25

10.1136/gutjnl-2013-306578

10.1097/MCG.0b013e31816a8c9b

10.1111/j.1365-2036.2009.04053.x

Calder PC, 2009, Inflammatory disease processes and interactions with nutrition, Br J Nutr, 101, S1, 10.1017/S0007114509377867

10.1371/journal.pone.0048403

10.1016/j.jpsychores.2013.05.011

10.1177/1755738015615378

Schroeder R, 2014, “You Can't Eat WHAT?” Managing the Stigma of Celiac, Disease, 35, 456

10.1111/jocn.13123

10.2337/diacare.23.3.267

10.1177/019394502237695

10.1111/bjhp.12043

10.1177/1359105313498627

Thông tin
Thông tin xuất bản

Scandinavian Journal of Caring Sciences

Tập 34 Số 2

401-408

Thông tin tác giả