Hereditary angioedema, emergency management of attacks by a call center

European Journal of Internal Medicine - Tập 67 - Trang 42-46 - 2019
Nicolas Javaud1,2, Adrien Altar1, Olivier Fain3, Paul-Georges Reuter2, Michel Desmaizieres2, Tomislav Petrovic2, Aiham Ghazali4, Isabelle Durand-zaleski5, Laurence Bouillet6, Eric Vicaut7, David Launay8, Ludovic Martin9, Bernard Floccard10, Anne Gompel11, Alain Sobel12, Isabelle Boccon-Gibod6, Gisele Kanny13, Frederic Lapostolle2, Frederic Adnet2
1AP-HP, Urgences, Centre de référence sur les angiœdèmes à kinines, hôpital Louis Mourier, Université Paris 7, 92700 Colombes, France
2AP-HP, Urgences - Samu 93, Hôpital Avicenne, Université Paris 13, Inserm U942, 93000 Bobigny, France
3AP-HP, Médecine Interne, DHUi2B, Centre de Référence associé sur les angiœdèmes à kinines (CRéAk), Hôpital Saint-Antoine, Université Paris 6, 75 012 Paris, France
4AP-HP, Urgences, Hôpital Bichat, Université Paris 7, 75018 Paris, France.
5AP-HP, URCEco Ile de France, Hôpital de l'Hôtel-Dieu, Université Paris 12, 75 004 Paris, France
6Médecine Interne, Centre de Référence sur les angiœdèmes à kinines (CRéAk), CHU de Grenoble, 38043 Grenoble, France
7AP-HP, Unité de Recherche Clinique, Hôpital Fernand Widal, Paris, France
8Université de Lille, CHRU de Lille, Médecine Interne, Centre de Référence sur les angiœdèmes à kinines (CRéAk), Hôpital Claude Huriez, 59037 Lille Cedex, France
9Dermatologie, Centre de Référence sur les angiœdèmes à kinines (CRéAk), Université d'Angers, CHU d'Angers, 49 933 Angers, cedex, France
10Hospices Civils de Lyon, Réanimation, Centre de Référence sur les angiœdèmes à kinines (CRéAk), CHU Edouard Herriot, 69 437 Lyon, Cedex, France
11Université de Paris-Descartes, AP-HP, HUPC, Unité de Gynécologie Endocrinienne, Hôpital Port Royal, 75001 Paris, France
12AP-HP, Hôpital Hôtel Dieu, Université Paris 5, 75004 Paris, France
13Médecine Interne, Centre de Référence sur les angiœdèmes à kinines (CRéAk), CHU de Nancy, 54 035 Nancy, France

Tài liệu tham khảo

Longhurst, 2012, Hereditary angio-oedema, Lancet, 379, 10.1016/S0140-6736(11)60935-5 Cicardi, 2014, Classification, diagnosis, and approach to treatment for angioedema: consensus report from the hereditary angioedema international working group, Allergy, 69, 10.1111/all.12380 Zuraw, 2013, A focused parameter update: hereditary angioedema, acquired C1 inhibitor deficiency, and angiotensin-converting enzyme inhibitor-associated angioedema, J Allergy Clin Immunol, 131, 10.1016/j.jaci.2013.03.034 Bork, 2003, Clinical studies of sudden upper airway obstruction in patients with hereditary angioedema due to C1 esterase inhibitor deficiency, Arch Intern Med, 163, 10.1001/archinte.163.10.1229 Bork, 2012, Fatal laryngeal attacks and mortality in hereditary angioedema due to C1-INH deficiency, J Allergy Clin Immunol, 130, 692, 10.1016/j.jaci.2012.05.055 Guichon, 2011, One hypovolaemic shock. Two kinin pathway abnormalities, Intensive Care Med, 37, 10.1007/s00134-011-2225-1 Maurer, 2018, The international WAO/EAACI guideline for the management of hereditary angioedema - the 2017 revision and update, Allergy, 73, 1575, 10.1111/all.13384 Javaud, 2013, The early treatment of bradykinin angioedema, a challenge for emergency medicine, Eur J Emerg Med Off J Eur Soc Emerg Med, 20 Otani, 2017, Emergency department management of hereditary angioedema attacks: patient perspectives, J Allergy Clin Immunol Pract, 5, 128, 10.1016/j.jaip.2016.06.029 Banerji, 2015, Current state of hereditary angioedema management: a patient survey, Allergy Asthma Proc, 36, 10.2500/aap.2015.36.3824 Moellman, 2014, A consensus parameter for the evaluation and management of angioedema in the emergency department, Acad Emerg Med Off J Soc Acad Emerg Med, 21, 10.1111/acem.12341 Cicardi, 2012, Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: consensus report of an international working group, Allergy, 67, 10.1111/j.1398-9995.2011.02751.x Ucar, 2016, Difficulties encountered in the emergency department by patients with hereditary angioedema experiencing acute attacks, Allergy Asthma Proc, 37, 10.2500/aap.2016.37.3905 Bouillet, 2013, Hereditary angioedema with C1 inhibitor deficiency: clinical presentation and quality of life of 193 French patients, Ann Allergy Asthma Immunol Off Publ Am Coll Allergy Asthma Immunol, 111 Wennberg, 2010, A randomized trial of a telephone care-management strategy, N Engl J Med, 363, 10.1056/NEJMsa0902321 Javaud, 2016, Dedicated call center (SOS-HAE) for hereditary angiœdema attacks: study protocol for a randomized controlled trial, Trials, 17, 225, 10.1186/s13063-016-1350-0 Aygören-Pürsün, 2014, Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe, Orphanet J Rare Dis, 9, 99, 10.1186/1750-1172-9-99 Wilson, 2010, Economic costs associated with acute attacks and long-term management of hereditary angioedema, Ann Allergy Asthma Immunol, 104, 314, 10.1016/j.anai.2010.01.024 Craig, 2011, C1 esterase inhibitor concentrate in 1085 hereditary angioedema attacks—final results of the I.M.P.A.C.T.2 study, Allergy, 66 Longhurst, 2010, HAE international home therapy consensus document, Allergy Asthma Clin Immunol, 6, 22, 10.1186/1710-1492-6-22 Javaud, 2015, Bradykinin-mediated angioedema: factors associated with admission to an intensive care unit, a multicenter study, Eur J Emerg Med Off J Eur Soc Emerg Med, 23, 219, 10.1097/MEJ.0000000000000252 Javaud, 2015, Factors associated with hospital admission in hereditary angioedema attacks: a multicenter prospective study, Ann Allergy Asthma Immunol Off Publ Am Coll Allergy Asthma Immunol, 114, 499, 10.1016/j.anai.2015.04.005 Bork, 2006, Symptoms, course, and complications of abdominal attacks in hereditary angioedema due to C1 inhibitor deficiency, Am J Gastroenterol, 101, 10.1111/j.1572-0241.2006.00492.x