Goal Setting with Latinx Families of Children with Intellectual and Developmental Disabilities: Case Studies

Behavior and Social Issues - Tập 31 - Trang 194-214 - 2022
Yolanda Suarez-Balcazar1, Fabricio Balcazar1, Mariana Garcia Torres1, Claudia Garcia1, Dalmina L. Arias2
1University of Illinois Chicago, Chicago, USA
2University of Illinois-Chicago, Chicago, USA

Tóm tắt

Behavioral community psychology focuses on studying issues that matter to communities, unpacking contextual factors that impact people’s behaviors, and identifying strategies to address such issues. Goal setting is one such strategy often used by behavioral psychologists. Grounded in the values of behavioral community psychology and a behavior analysis paradigm, this study illustrated two case studies of Latinx parents of children with disabilities where goal-setting strategies were implemented to promote behavior change. The first case study focused on the promotion of healthy lifestyle behaviors and routines among Latinx families of children with disabilities in the United States. The second case study examined goal setting related to youth development by parents of adolescents with disabilities in Colombia. In both cases, participants received training on goal setting and had opportunities to discuss progress toward achieving their goals, share action steps taken, and discuss the contextual challenges or barriers that they experienced. The results indicate that behavioral goal-setting procedures can be effective in helping parents attain their goals and brainstorm strategies for addressing behavioral and contextual challenges. Implications for future research advancing behavioral community psychology are discussed.

Tài liệu tham khảo

Balcazar, F. E., Davies, G. L., Viggers, D., & Tranter, G. (2006). Goal attainment scaling as an effective strategy to assess the outcomes of mentoring programs for troubled youth. International Journal on School Disaffection, 4(1), 43–52. https://doi.org/10.18546/IJSD.04.1.08 Balcazar, F. E., Garcia-Iriarte, E., & Suarez-Balcazar, Y. (2009). Participatory action research with Colombian immigrants. Hispanic Journal of Behavioral Sciences, 31(1), 112–127. https://doi.org/10.1177/0739986308327080 Balcazar, F. E., & Keys, C. B. (2014). Goals in mentoring relationships. In D. L. Dubois & M. J. Karcher (Eds.), Handbook of youth mentoring (2nd ed.). Sage. https://doi.org/10.4135/9781412996907.n6 Balcazar, F. E., Magana, S., & Suarez-Balcazar, Y. (2020). Disability among the Latinx population: Epidemiology and empowerment interventions. In A. D. Martinez & S. D. Rhodes (Eds.), New and emerging issues in Latinx health (pp. 126–143). Springer. Balcazar, F. E., Suarez-Balcazar, Y., Adames, S. B., Keys, C. B., Garcia-Ramirez, M., & Paloma, V. (2012). A Case study of liberation among Latino immigrant families with children with disabilities. American Journal of Community Psychology, 49, 283–293. Bogat, G. A., & Jason, L. A. (2000). Toward an integration of behaviorism and community psychology. In J. Rappaport & E. Seidman (Eds.), Handbook of community psychology (pp. 101–114). Kluwer. Buysse, V., Castro, D. C., West, T., & Skinner, M. (2005). Addressing the needs of Latino children: A national survey of state administrators of early childhood programs. Early Childhood Research Quarterly, 20(2), 146–163. https://doi.org/10.1016/j.ecresq.2005.04.005 Cattaneo, L. B., & Chapman, A. R. (2010). The process of empowerment: A model for use in research and practice. The American Psychologist, 65(7), 646–659. https://doi.org/10.1037/a0018854 Departamento Nacional de Planeación, República de Colombia (2017). Una aproximación a la vulnerabilidad Sistema de Indicadores Demográficos para Colombia 34 [An approach to vulnerability. System of Demographic Indicators for Colombia 34]. https://colaboracion.dnp.gov.co/CDT/Desarrollo%20Social/boletin34_1.pdf. Accessed 15 Jan 2021. Digennaro, F. D., & Martens, B. K. (2007). A comparison of performance feedback procedures on teachers’ treatment implementation integrity and students’ inappropriate behavior in special education classrooms. Journal of Applied Behavior Analysis, 40(3), 447–461. https://doi.org/10.1901/jaba.2007.40-447 Dillenburger, K., & Keenan, M. (2005). Bereavement: A D.I.S.C. analysis. Behavior and Social Issues, 14, 92–112. https://doi.org/10.5210/bsi.v14i2.333 Dillenburger, K., & McKeer, L. (2009). "40 Years is an awful long time": Parents caring for adult sons and daughters with disabilities. Behavior and Social Issues, 18(1), 1–20. https://doi.org/10.5210/bsi.v18i1.2449 Embry, D. D. (2002). The good behavior game: A best practice candidate as a universal behavioral vaccine. Clinical Child and Family Psychology Review, 5(4), 273–297. Fawcett, S. B. (1991). Some values guiding community research and action. Journal of Applied Behavior Analysis, 24(4), 621–636. https://doi.org/10.1901/jaba.1991.24-621 Forneris, T., Danish, S. J., & Scott, D. L. (2007). Setting goals, solving problems, and seeking social support: Developing adolescents’ abilities through A life skills program. Adolescence, 42(165), 103–114. Frazer, P., & Leslie, J. (2014). Feedback and goal setting interventions to reduce electricity use in the real world. Behavior and Social Issues., 2, 20–34. https://doi.org/10.5210/bsi.v.23i0.4324 Garcia-Torres, M. (2021). Evaluation of the program parents taking action for parents of preadolescents with autism in Colombia. In Dissertation. Department of Disability and Human Development. University of Illinois Chicago. Greer, R. D. (1997). The comprehensive application of behavior analysis to schooling (CABAS®). Behavior and Social Issues, 7(1), 59–63. https://doi.org/10.5210/bsi.v7i1.300 Hansen, B. D., & Wills, H. P. (2014). The effects of goal setting, contingent reward and instruction on writing skills. Journal of Applied Behavior Analysis, 47(1), 171–175. Jason, L. A., Glantsman, O., O’Brien, J. F., & Ramian, K. N. (2019). Introduction to the field of community psychology (Eds.), Introduction to Community Psychology: Becoming an agent of change. https://press.rebus.community/introductiontocommunitypsychology/chapter/intro-to-community-psychology/. Accessed 15 Jan 2021. Jason, L. A., & Glenwick, D. S. (2016). Handbook of methodological approaches to community-based research. American Psychological Association. Jason, L. A., Ji, P., Anes, M., & Birkhead, S. H. (1991). Active enforcement of cigarette control laws in the prevention of cigarette sales to minors. The Journal of the American Medical Association, 266(22), 3159–3161. https://doi.org/10.1016/0169-5002(92)90016-D Kiresuk, T. J., & Sherman, R. E. (1968). Goal attainment scaling: A general method for evaluating comprehensive community mental health programs. Community Mental Health Journal, 4(6), 443–453. https://doi.org/10.1007/BF01530764 Kuhl, S., Rudrud, E. H., Witts, B. N., & Schulze, K. A. (2015). Classroom-based interdependent group contingencies increase children’s physical activity. Journal of Applied Behavior Analysis, 48(3), 602–612. Levitt, S. M., Motulsky, S. L., Wert, F. J., & Morrow, S. L. (2017). Recommendations for designing and reviewing qualitative research in psychology: Promoting methodological integrity. Qualitative Psychology, 4(1), 2–22. Locke, E. A., & Latham, G. P. (2006). New directions in goal setting theory. Current Directions in Psychological Science, 15(5), 265–268. https://doi.org/10.1111/j.1467-8721.2006.00449.x Magaña, S., Lopez, K., & Machalicek, W. (2017). Parents taking action: A psycho-educational intervention for Latino parents of children with autism spectrum disorder. Family Process, 56(1), 59–74. https://doi.org/10.1111/famp.12169 Marin, G. (1993). Influence of acculturation on familialism and self-identification among Hispanics. In M. E. Bernal & G. P. Knight (Eds.), Ethnic identity: Formation and transmission among Hispanics and other minorities (pp. 181–196). State University of New York Press. Marks, B., Sisirak, J., Magallanes, R., Krok, K., & Donohue-Chase, D. (2019). Effectiveness of a health message peer-to-peer program for people with Intellectual and Developmental Disabilities (2019). Intellectual and Developmental Disabilities, 57(3), 242–258. https://doi.org/10.1352/1934-9556-57.3.242 Martínez-Rozo, A. M., Uribe-Rodríguez, A. F., & Velázquez-González, H. J. (2015). La discapacidad y su estado actual en la legislación colombiana [Disability and its current status in Colombian legislation]. Duazary, 12(1), 49–58. https://doi.org/10.21676/2389783X.1398 Mattaini, M. A., & Huffman-Gottschling, K. (2012). Ecosystems theory. In C. N. Dulmas, K. M. Sowers, & B. A. Thyer (Eds.), Human behavior in the social environment: Theories for social work practice (pp. 297–325). Wiley. Mattaini, M. A., Jason, L. A., & Glenwick, D. S. (2016). Behavioral time-series approaches. In L. A. Jason & D. S. Glenwick (Eds.), Handbook of methodological approaches to community-based research (pp. 177–186). Oxford University Press. Medina-Rico, M., Lopez-Ramos, H., & Quiñonez, A. (2018). Sexuality in people with intellectual disability: Review of literature. Sexuality and Disability, 36, 231–248. Paschall, K. (2020). Calculating racial disparities in child poverty. Child Trends https://www.childtrends.org/blog/calculating-racial-disparities-in-child-poverty. Accessed 15 Jan 2021. Riger, S. (1993). What is wrong with empowerment? American Journal of Community Psychology, 21, 279–287. Suarez-Balcazar, Y. (2020). Meaningful engagement in research: Community residents as co-creators of knowledge. American Journal of Community Psychology, 65(3–4), 261–271. https://doi.org/10.1002/ajcp.12414 Suarez-Balcazar, Y., Agudelo Orozco, A., Mate, M., & Garcia, C. (2018a). Unpacking barriers to healthy lifestyles from the perspective of youth with disabilities and their parents. Journal of Prevention & Intervention in the Community, 46(1), 61–72. https://doi.org/10.1080/10852352.2018.1386270 Suarez-Balcazar, Y., Early, A., Maldonado, A., Garcia, C. P., Arias, D., Zeidman, A., & Agudelo-Orozco, A. (2018b). Community-based participatory research to promote healthy lifestyles among Latino immigrant families with youth with disabilities. Scandinavian Journal of Occupational Therapy, 25(5), 396–406. https://doi.org/10.1080/11038128.2018.1502348 Suarez-Balcazar, Y., & Balcazar, F. (2016). Functional analysis of community concerns in participatory action research. In L. Jason & D. Glenwick (Eds.), Handbook of methodological approaches to community-based research (pp. 315–324). Oxford University Press. Suarez-Balcazar, Y., Francisco, V., & Jason, L. (2019). Behavioral community psychology. In L. A. Jason, O. Glantsman, J. F. O’Brien, & K. N. Ramian (Eds.), Introduction to community psychology: Becoming an agent of change. Pressbooks https://press.rebus.community/introductiontocommunitypsychology/chapter/behavioral-approaches-in-community-settings/. Accessed 15 Jan 2021. Suarez-Balcazar, Y., Hoisington, M., Orozco, A. A., Arias, D., Garcia, C., Smith, K., & Bonner, B. (2016). Benefits of a culturally tailored health promotion program for Latino youth with disabilities and their families. The American Journal of Occupational Therapy, 70(5), 7005180080p1. https://doi.org/10.5014/ajot.115.021949 Suarez-Balcazar, Y., Viquez, F., Miranda, D., & Early, A. (2020). Barrier to and facilitators of community participation among Latinx migrants with disabilities in the United States and Latinx migrant workers in Canada: An ecological analysis. Journal of Community Psychology, 48, 2773–2788. https://doi.org/10.1002/jcop.22452 Talero-Gutiérrez, C., Rodríguez, M., De La Rosa, D., Morales, G., & Vélez-Van-Meerbeke, A. (2010;2012); Caracterización de niños y adolescentes con trastornos del espectro autista en una institución de Bogotá, Colombia.[Characteristics of children and adolescents with autism spectrum disorders]. Neurología (Barcelona, Spain), 27(2), 90–96. https://doi.org/10.1016/j.nrl.2011.03.005 Taylor-Ritzler, T., Balcazar, F. E., Keys, C. B., Hayes, E., Garate-Serafini, T., & Ryerson Espino, S. (2001). Promoting attainment of transition-related goals among low-income ethnic minority students with disabilities. Career Development for Exceptional Individuals, 24(2), 147–167. https://doi.org/10.1177/088572880102400205 U.S. Census Bureau (2019). Quick facts United States. https://www.census.gov/quickfacts/fact/table/US/DIS010219. Accessed 15 Jan 2021. Velez van Meerbeke, A., Talero-Gutierrez, C., & Gonzalez-Reyes, R. (2007). Prevalence of delayed neurodevelopment in children from Bogotá, Colombia, South America. Neuroepidemiology, 29(1–2), 74–77. https://doi.org/10.1159/000109499 Zulas, A. L. (2009). Environmental change: The application of three theories of behavior change on recycling behavior and ecological values. Retrieved from ProQuest Dissertations and Theses. (ID: 1954848701).