Functional classification of heart failure before and after implementing a healthcare transition program for youth and young adults transferring from a pediatric to an adult congenital heart disease clinics

Congenital Heart Disease - Tập 13 Số 4 - Trang 548-553 - 2018
Albert C. Hergenroeder1, Douglas S. Moodie2, Daniel J. Penny2, Constance M. Wiemann1, Blanca E. Sanchez-Fournier1, Lauren K. Moore2, Jane Head3
1Section of Adolescent Medicine and Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, Texas, USA
2Section of Cardiology, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, Texas, USA
3Section of Physical Medicine and Rehabilitation, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, Texas, USA

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Marelli, 2007, Congenital heart disease in the general population: changing prevalence and age distribution, Circulation., 115, 163, 10.1161/CIRCULATIONAHA.106.627224

Sable, 2011, Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association, Circulation., 123, 1454, 10.1161/CIR.0b013e3182107c56

Bloom, 2012, Health care transition for youth with special health care needs, J Adolesc Health., 51, 213, 10.1016/j.jadohealth.2012.01.007

Quinn, 2010, Improved survival of children and adolescents with sickle cell disease, Blood., 115, 3447, 10.1182/blood-2009-07-233700

Williams, 2015, Transitioning youth with congenital heart disease from pediatric to adult health care, J Pediatr., 166, 15, 10.1016/j.jpeds.2014.09.054

Yeung, 2008, Lapse of care as a predictor for morbidity in adults with congenital heart disease, Int J Cardiol., 125, 62, 10.1016/j.ijcard.2007.02.023

Fernandes, 2012, Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists, J Am Coll Cardiol., 60, 2411, 10.1016/j.jacc.2012.09.015

Okumura, 2006, Inpatient health care use among adult survivors of chronic childhood illnesses in the United States, Arch Pediatr Adolesc Med., 160, 1054, 10.1001/archpedi.160.10.1054

The Criteria Committee of the New York Heart Association, 1994, Nomenclature and Criteria for Diagnosis of Diseases of the Heart and Great Vessels, 9

Wiemann, 2015, Integrating an EMR-based transition planning tool for CYSHCN at a children's hospital: a quality improvement project to increase provider use and satisfaction, J Pediatr Nursing., 30, 776, 10.1016/j.pedn.2015.05.024

Walleghem, 2008, Evaluation of a systems navigator model for transition from pediatric to adult care for young adults with type 1 diabetes, Diabetes Care., 31, 1529, 10.2337/dc07-2247

Gurvitz, 2013, Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial), J Am Col Cardiol., 61, 2180, 10.1016/j.jacc.2013.02.048

Reid, 2004, Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects, Pediatrics., 113, e197, 10.1542/peds.113.3.e197

Heery, 2015, Experiences and outcomes of transition from pediatric to adult health care services for young people with congenital heart disease: a systematic review, Congenit Heart Dis., 10, 413, 10.1111/chd.12251

Hilderson, 2009, Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe, Pediatr Cardiol., 30, 786, 10.1007/s00246-009-9442-1