Family Caregiving in Advanced Chronic Organ Failure

Fitzsimons, 2007, The challenge of patients’ unmet palliative care needs in the final stages of chronic illness, Palliat Med, 21, 313, 10.1177/0269216307077711 Incalzi, 2005, Construct validity of activities of daily living scale: A clue to distinguish the disabling effects of COPD and congestive heart failure, Chest, 127, 830, 10.1378/chest.127.3.830 Annegarn, 2011, Problematic activities of daily life are weakly associated with clinical characteristics in COPD, J Am Med Dir Assoc Janssen, 2011, Impaired health status and care dependency in patients with advanced COPD or chronic heart failure, Qual Life Res, 10.1007/s11136-011-9892-9 Hwang, 2010, Family caregiving for patients with heart failure: Types of care provided and gender differences, J Card Fail, 16, 398, 10.1016/j.cardfail.2009.12.019 Emanuel, 1999, Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients, N Engl J Med, 341, 956, 10.1056/NEJM199909233411306 Elkington, 2005, The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life, Palliat Med, 19, 485, 10.1191/0269216305pm1056oa Barnes, 2006, Characteristics and views of family carers of older people with heart failure, Int J Palliat Nurs, 12, 380, 10.12968/ijpn.2006.12.8.380 Pinto, 2007, Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease, Respir Med, 101, 2402, 10.1016/j.rmed.2007.06.001 Dracup, 2004, Emotional well-being in spouses of patients with advanced heart failure, Heart Lung, 33, 354, 10.1016/j.hrtlng.2004.06.003 Luttik, 2009, Quality of life in partners of people with congestive heart failure: Gender and involvement in care, J Adv Nurs, 65, 1442, 10.1111/j.1365-2648.2009.05004.x Pressler, 2009, Family caregiver outcomes in heart failure, Am J Crit Care, 18, 149, 10.4037/ajcc2009300 Belasco, 2006, Quality of life of family caregivers of elderly patients on hemodialysis and peritoneal dialysis, Am J Kidney Dis, 48, 955, 10.1053/j.ajkd.2006.08.017 Hasson, 2009, Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease, J Palliat Care, 25, 157, 10.1177/082585970902500302 Boyd, 2004, Living with advanced heart failure: A prospective, community based study of patients and their carers, Eur J Heart Fail, 6, 585, 10.1016/j.ejheart.2003.11.018 Luttik, 2007, Living with heart failure: Partner perspectives, J Cardiovasc Nurs, 22, 131, 10.1097/00005082-200703000-00010 Garlo, 2010, Burden in caregivers of older adults with advanced illness, J Am Geriatr Soc, 58, 2315, 10.1111/j.1532-5415.2010.03177.x Yamamoto-Mitani, 2004, Subjective quality of life and positive appraisal of care among Japanese family caregivers of older adults, Qual Life Res, 13, 207, 10.1023/B:QURE.0000015296.14717.e7 Kim, 2007, Cancer caregivers’ quality of life: Effects of gender, relationship, and appraisal, J Pain Symptom Manage, 34, 294, 10.1016/j.jpainsymman.2006.11.012 Luttik, 2007, Caregiver burden in partners of heart failure patients; limited influence of disease severity, Eur J Heart Fail, 9, 695, 10.1016/j.ejheart.2007.01.006 Janssen, 2008, Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: the research protocol, BMC Palliat Care, 7, 5, 10.1186/1472-684X-7-5 Janssen, 2011, A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure, Chest, 139, 1081, 10.1378/chest.10-1753 Janssen DJ, Spruit MA, Uszko-Lencer NH, et al. Symptoms, co-morbidities and healthcare in advanced COPD or chronic heart failure. J Palliat Med. doi: 10.1089/jpm.2010.0479. Steinhauser, 2006, Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research, Palliat Med, 20, 745, 10.1177/0269216306073112 Charlson, 1987, A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation, J Chronic Dis, 40, 373, 10.1016/0021-9681(87)90171-8 Rutten, 2007, Comparison of B-type natriuretic peptide assays for identifying heart failure in stable elderly patients with a clinical diagnosis of chronic obstructive pulmonary disease, Eur J Heart Fail, 9, 651, 10.1016/j.ejheart.2007.01.010 Standardization of Spirometry, 1994 Update, 1995, American Thoracic Society, Am J Respir Crit Care Med, 152, 1107 Dolan, 1997, Modeling valuations for EuroQol health states, Med Care, 35, 1095, 10.1097/00005650-199711000-00002 Zigmond, 1983, The hospital anxiety and depression scale, Acta Psychiatr Scand, 67, 361, 10.1111/j.1600-0447.1983.tb09716.x Wilson, 1989, A comparison of the visual analogue scale and modified Borg scale for the measurement of dyspnoea during exercise, Clin Sci (Lond), 76, 277, 10.1042/cs0760277 Dijkstra, 2002, Further psychometric testing of the Dutch Care Dependency Scale on two different patient groups, Int J Nurs Pract, 8, 305, 10.1046/j.1440-172X.2002.00384.x Dijkstra, 2005, Diagnostic accuracy of the care dependency scale, J Adv Nurs, 50, 410, 10.1111/j.1365-2648.2005.03406.x Cooper, 2006, Development and initial validation of a family appraisal of caregiving questionnaire for palliative care, Psychooncology, 15, 613, 10.1002/pon.1001 Altman, 1983, Statistical guidelines for contributors to medical journals, Br Med J (Clin Res Ed), 286, 1489, 10.1136/bmj.286.6376.1489 Simpson, 2010, A day at a time: Caregiving on the edge in advanced COPD, Int J Chron Obstruct Pulmon Dis, 5, 141 Gysels, 2009, Caring for a person in advanced illness and suffering from breathlessness at home: Threats and resources, Palliat Support Care, 7, 153, 10.1017/S1478951509000200 Janssen, 2008, Daily symptom burden in end-stage chronic organ failure: A systematic review, Palliat Med, 22, 938, 10.1177/0269216308096906 Janssen, 2010, Symptoms of anxiety and depression in COPD patients entering pulmonary rehabilitation, Chron Respir Dis, 7, 147, 10.1177/1479972310369285 Barnes, 2005, Recruiting older people into a large, community-based study of heart failure, Chronic Illn, 1, 321, 10.1177/17423953050010040201 Riedijk, 2006, Caregiver burden, health-related quality of life and coping in dementia caregivers: A comparison of frontotemporal dementia and Alzheimer’s disease, Dement Geriatr Cogn Disord, 22, 405, 10.1159/000095750