Family Caregivers’ Concerns and Expectations From a Long-Stay Residential Facility for Persons with Mental Illness: Experience From Richmond Fellowship Society (I), Bangalore Branch
Tóm tắt
Some family caregivers of persons with mental illness have a felt need for long-term residential facilities. Richmond Fellowship Society (I), (RFS) Bangalore Branch has been running 'Jyothi,' a long-stay residential facility for the last 25 years (1995–2020). This paper aims to understand the family caregivers' concerns and expectations from Jyothi. Sixteen family caregivers whose family members are availing of Jyothi services were interviewed using a semi-structured interview schedule developed for the study. The caregiver burden persuaded families to ask for a long-stay residential facility. Though unhappy at the idea of shifting to a long-stay facility, most clients accepted it due to the then prevailing circumstances. Family caregivers' expectations include catering to basic requirements, health care needs, activity scheduling, and socialization. A few family caregivers were not sure if the long-stay facility can cater to emotional needs. The family caregivers look for a 'home away from home’ for their clients. The decision to admit to Jyothi and ongoing care involved only close or extended family members. Despite being a long-stay facility, families are closely involved in the care of the clients. More such studies are needed to understand families' need for long-stay residential facilities for persons with mental illness, especially those from lower socioeconomic status, fees they can afford, and expected services.
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