Experiences of cancer care during COVID-19: Phase 1 results of a longitudinal qualitative study

Amanda Drury1, Manuela Eicher2,3, Maura Dowling4
1School of Nursing, Midwifery and Health Systems, University College Dublin, Belfield, Dublin 4, Ireland
2Department of Oncology, Lausanne University Hospital (CHUV), Lausanne, Switzerland
3Institute of Higher Education and Research in Healthcare (IUFRS), Faculty of Biology and Medicine, University of Lausanne, Lausanne, Switzerland
4School of Nursing and Midwifery, National University of Ireland, Galway, Ireland

Tài liệu tham khảo

Braun, 2006, Using thematic analysis in psychology, Qual. Res. Psychol., 3, 77, 10.1191/1478088706qp063oa Calman, 2013, Developing longitudinal qualitative designs: lessons learned and recommendations for health services research, BMC Med. Res. Methodol., 13, 1, 10.1186/1471-2288-13-14 Casanova, 2020, How young patients with cancer perceive the Covid-19 (coronavirus) epidemic in Milan, Italy: is there room for other fears?, Pediatr. Blood Cancer, e28318, 10.1002/pbc.28318 Chaix, 2020, Psychological distress during the COVID-19 pandemic in France: a national assessment of at-risk populations, General Psychiatry, 33, 10.1136/gpsych-2020-100349 Colomer-Lahiguera, 2021, Experiences of people affected by cancer during the outbreak of the COVID-19 pandemic: an exploratory qualitative analysis of public online forums, Support. Care Cancer, 10.1007/s00520-021-06041-y Donovan, 2014, Validation of the distress thermometer worldwide: state of the science, Psychooncology, 23, 241, 10.1002/pon.3430 2012 Greally, H., 2021. Twitter Post. https://twitter.com/GreallyHelen/status/1352929387293913088?s=03. Grossoehme, 2016, Analyzing longitudinal qualitative data: the application of trajectory and recurrent cross-sectional approaches, BMC Res. Notes, 9, 136, 10.1186/s13104-016-1954-1 Haase, 2020, Supportive care and ehealth: a narrative review of technologies, interventions, and opportunities for optimizing care in patients with cancer, Clin. J. Oncol. Nurs., 24, 32, 10.1188/20.CJON.S1.32-41 Layfield, 2020, Telemedicine for head and neck ambulatory visits during COVID-19: evaluating usability and patient satisfaction, Head Neck, 42, 1681, 10.1002/hed.26285 Liang, 2020, Cancer patients in SARS-CoV-2 infection: a nationwide analysis in China, Lancet Oncol., 21, 335, 10.1016/S1470-2045(20)30096-6 Lincoln, 1985 Losada-Baltar, 2021, Longitudinal correlates of loneliness and psychological distress during the lockdown situation due to COVID-19. Effects of age and self-perceptions of aging, J. Gerontol. 2020 Nekhlyudov, L., Duijts, S., Hudson, S.V., Jones, J.M., Keogh, J., Love, B., Lustberg, M., Smith, K.C., Tevaarwerk, A., Yu, X., 2020. Addressing the needs of cancer survivors during the COVID-19 pandemic. https://doi.org/10.1007/s11764-020-00884-w. Palandri, 2021, Telemedicine in patients with haematological diseases during the coronavirus disease 2019 (COVID-19) pandemic: selection criteria and patients' satisfaction, Br. J. Haematol., 192, e48, 10.1111/bjh.17208 Riehm, 2021, Association between psychological resilience and changes in mental distress during the COVID-19 pandemic, J. Affect. Disord., 282, 381, 10.1016/j.jad.2020.12.071 Riehm, 2021, Trajectories of mental distress among us adults during the COVID-19 pandemic, Ann. Behav. Med., 10.1093/abm/kaaa126 Romito, 2020, Psychological distress in outpatients with lymphoma during the COVID-19 pandemic, Front. Oncol., 10 Roth, 1998, Rapid screening for psychologic distress in men with prostate carcinoma: a pilot study, Cancer, 82, 1904, 10.1002/(SICI)1097-0142(19980515)82:10<1904::AID-CNCR13>3.0.CO;2-X Saldana, 2003 Sandelowski, 2000, Focus on research methods-whatever happened to qualitative description?, Res. Nurs. Health, 23, 334, 10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G Sandelowski, 2010, What's in a name? Qualitative description revisited, Res. Nurs. Health, 33, 77, 10.1002/nur.20362 Sutin, 2021, BMI, weight discrimination, and the trajectory of distress and well-being across the coronavirus pandemic, Obesity, 29, 38, 10.1002/oby.23048 Vaishnavi, 2007, An abbreviated version of the connor-davidson resilience scale (CD-RISC), the CD-RISC2: psychometric properties and applications in psychopharmacological trials, Psychiatry Res., 152, 293, 10.1016/j.psychres.2007.01.006 van Gemert-Pijnen, 2012, Improving the credibility of electronic health technologies, Bull. World Health Organ., 90, 323A, 10.2471/BLT.11.099804 Wang, 2020, Epidemiology of mental health problems among patients with cancer during COVID-19 pandemic, Transl Psychiatry, 10, 263, 10.1038/s41398-020-00950-y Weinkove, 2020, Managing haematology and oncology patients during the COVID-19 pandemic: interim consensus guidance, Med. J. Aust., 212, 481, 10.5694/mja2.50607 Willan, 2020, Assessing the impact of lockdown: fresh challenges for the care of haematology patients in the COVID-19 pandemic, Br. J. Haematol., 189, e224, 10.1111/bjh.16782 Willan, 2020, Care of haematology patients in a COVID-19 epidemic, Br. J. Haematol., 189, 241, 10.1111/bjh.16620 Yu, 2020, SARS-CoV-2 transmission in patients with cancer at a tertiary care hospital in Wuhan, China, JAMA Oncol., 10.1001/jamaoncol.2020.0980