Experiences of Friendships for Individuals on the Autism Spectrum: A Scoping Review
Review Journal of Autism and Developmental Disorders - Trang 1-26 - 2022
Tóm tắt
Friendships are vital to mental health and well-being. Understanding autistic individuals’ lived experiences of friendship is necessary to support friendship development. A scoping review exploring autistic individuals’ experiences of friendship was undertaken to understand their perspectives of friendship. Electronic database and manual reference searches identified twenty-two studies exploring autistic perspectives of friendship. Results were synthesised using a meta-ethnographic approach across the lifespan. Findings highlight the common and unique experiences of friendship among autistic individuals. While autistic individuals defined friendship based on homophily and propinquity, similar to non-autistic individuals, unique challenges including friendship insecurity, monotropism and efforts to conform to neurotypical social norms, leading to anxiety, were experienced by autistic individuals.
Tài liệu tham khảo
Alkhaldi, R. S., Sheppard, E., & Mitchell, P. (2019). Is there a link between autistic people being perceived unfavorably and having a mind that is difficult to read? Journal of Autism and Developmental Disorders, 49(10), 3973–3982. https://doi.org/10.1007/s10803-019-04101-1
Atkins, S., Lewin, S., Smith, H., Engel, M., Fretheim, A., & Volmink, J. (2008). Conducting a meta-ethnography of qualitative literature: Lessons learnt. BMC Medical Research Methodology, 8(1), 21. https://doi.org/10.1186/1471-2288-8-21
Bagwell, C. L., Newcomb, A. F., & Bukowski, W. M. (1998). Pre-adolescent friendship and peer rejection as predictors of adult adjustment. Child Development, 69(1), 140–153.
Bauminger-Zviely, N., Karin, E., Kimhi, Y., & Agam-Ben-Artzi, G. (2014). Spontaneous peer conversation in preschoolers with high-functioning autism spectrum disorder versus typical development. Journal of Child Psychology and Psychiatry, 55(4), 363–373. https://doi.org/10.1111/jcpp.12158
Bauminger, N., Shulman, C., & Agam, G. (2004). The link between perceptions of self and of social relationships in high-functioning children with autism. Journal of Developmental and Physical Disabilities, 16(2), 193–214. https://doi.org/10.1023/b:jodd.0000026616.24896.c8
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism, 15(1), 7–20. https://doi.org/10.1177/1362361309346066
Blieszner, R., & Adams, R. G. (1992). Adult friendship. SAGE Publications. http://ebookcentral.proquest.com/lib/curtin/detail.action?docID=997079
Block, P., & Grund, T. (2014). Multidimensional homophily in friendship networks. Network Science (cambridge University Press), 2(2), 189–212. https://doi.org/10.1017/nws.2014.17
Browning, J., Osborne, L., & Reed, P. (2009). A qualitative comparison of perceived stress and coping in adolescents with and without autistic spectrum disorders as they approach leaving school. British Journal of Special Education, 36(1), 36–43. https://doi.org/10.1111/j.1467-8578.2008.00400.x
Bukowski, W., Hoza, B., & Boivin, M. (1994). Measuring friendship quality during pre- and early adolescence: The development and psychometric properties of the Friendship Qualities Scale. Journal of Social and Personal Relationships, 11(3), 471–484. https://doi.org/10.1177/0265407594113011
Bukowski, W. M., & Sippola, L. K. (2005). Friendship and development: Putting the most human relationship in its place. New Directions for Child and Adolescent Development, 2005(109), 91–98. https://doi.org/10.1002/cd.141
Cacioppo, J. T., Hawkley, L. C., Ernst, J. M., Burleson, M., Berntson, G. G., Nouriani, B., & Spiegel, D. (2006). Loneliness within a nomological net: An evolutionary perspective. Journal of Research in Personality, 40(6), 1054–1085. https://doi.org/10.1016/j.jrp.2005.11.007
Calder, L., Hill, V., & Pellicano, E. (2013). ‘Sometimes I want to play by myself’: Understanding what friendship means to children with autism in mainstream primary schools. Autism, 17(3), 296–316. https://doi.org/10.1177/1362361312467866
Carrington, S., Templeton, E., & Papinczak, T. (2003). Adolescents with asperger syndrome and perceptions of friendship. Focus on Autism and Other Developmental Disabilities, 18(4), 211–218. https://doi.org/10.1177/10883576030180040201
Causton-Theoharis, J., Ashby, C., & Cosier, M. (2009). Islands of loneliness: Exploring social interaction through the autobiographies of individuals with autism. Intellectual and Developmental Disabilities, 47(2), 84–96. https://doi.org/10.1352/1934-9556-47.2.84
Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37(2), 230–242. https://doi.org/10.1007/s10803-006-0164-4
Chevallier, C., Kohls, G., Troiani, V., Brodkin, E. S., & Schultz, R. T. (2012). The social motivation theory of autism. Trends in Cognitive Sciences, 16(4), 231–239. https://doi.org/10.1016/j.tics.2012.02.007
Church, C., Alisanski, S., & Amanullah, S. (2000). The social, behavioral, and academic experiences of children with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 15(1), 12–20. https://doi.org/10.1177/108835760001500102
Cook, A., Ogden, J., & Winstone, N. (2018). Friendship motivations, challenges and the role of masking for girls with autism in contrasting school settings. European Journal of Special Needs Education, 33(3), 302–315. https://doi.org/10.1080/08856257.2017.1312797
Cresswell, L., Hinch, R., & Cage, E. (2019). The experiences of peer relationships amongst autistic adolescents: A systematic review of the qualitative evidence. Research in Autism Spectrum Disorders, 61, 45–60. https://doi.org/10.1016/j.rasd.2019.01.003
Crompton, C. J., Hallett, S., Ropar, D., Flynn, E., & Fletcher-Watson, S. (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family. Autism, 24(6), 1438–1448. https://doi.org/10.1177/1362361320908976
Daniel, L. S., & Billingsley, B. S. (2010). What boys with an autism spectrum disorder say about establishing and maintaining friendships. Focus on Autism and Other Developmental Disabilities, 25(4), 220–229. https://doi.org/10.1177/1088357610378290
Davis, S. F., Hanson, H., Edson, R., & Ziegler, C. (1992). The relationship between optimism-pessimism, loneliness, and level of self-esteem in college students. College Student Journal, 26(2), 244–247. https://psycnet.apa.org/record/1993-01448-001
Durkin, K., & Conti-Ramsden, G. (2007). Language, social behavior, and the quality of friendships in adolescents with and without a history of specific language impairment. Child Development, 78(5), 1441–1457. https://doi.org/10.1111/j.1467-8624.2007.01076.x
Ee, D., Ye In (Jane) Hwang, Reppermund, S., Srasuebku, P., Troller, J., Foley, K.-R., & Arnold, S. (2019). Loneliness in adults on the autism spectrum. Autism in Adulthood, 1(3). https://doi.org/10.1089/aut.2018.0038
Engström, I., Ekström, L., & Emilsson, B. (2003). Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism. Autism, 7(1), 99–110. https://doi.org/10.1177/1362361303007001008
Forster, S., & Pearson, A. (2020). Bullies tend to be obvious”: Autistic adults perceptions of friendship and the concept of ‘mate crime. Disability & Society, 35(7), 1–21. https://doi.org/10.1080/09687599.2019.1680347
Haertl, K., Callahan, D., Markovics, J., & Sheppard, S. S. (2013). Perspectives of adults living with autism spectrum disorder: Psychosocial and occupational implications. Occupational Therapy in Mental Health, 29(1), 27–41. https://doi.org/10.1080/0164212X.2012.760303
Hartup, W. W. (1996). The company they keep: Friendships and their developmental significance. Child Development, 67(1), 1–13. https://doi.org/10.2307/1131681
Heiman, T. (2000). Friendship quality among children in three educational settings. Journal of Intellectual & Developmental Disability, 25(1), 1–12. https://doi.org/10.1080/132697800112749
Helm, B. (2010). Love, friendship, and the self: Intimacy, identification, and the social nature of persons. Oxford University Press. https://doi.org/10.1093/acprof:oso/9780199567898.001.0001
Howard, B., Cohn, E., & Orsmond, G. I. (2006). Understanding and negotiating friendships: Perspectives from an adolescent with asperger syndrome. Autism, 10(6), 619–627. https://doi.org/10.1177/1362361306068508
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45(2), 212–229. https://doi.org/10.1111/j.1469-7610.2004.00215.x
Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017). “Putting on my best normal”: Social camouflaging in adults with autism spectrum conditions. Journal of Autism and Developmental Disorders, 47(8), 2519–2534. https://doi.org/10.1007/s10803-017-3166-5
Humphrey, N., & Hebron, J. (2015). Bullying of children and adolescents with autism spectrum conditions: A ‘state of the field’ review. International Journal of Inclusive Education, 19(8), 845–862. https://doi.org/10.1080/13603116.2014.981602
Humphrey, N., & Symes, W. (2011). Peer interaction patterns among adolescents with autistic spectrum disorders (ASDs) in mainstream school settings. Autism, 15(4), 397–419. https://doi.org/10.1177/1362361310387804
Kasari, C., Locke, J., Gulsrud, A., & Rotheram-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41(5), 533–544. https://doi.org/10.1007/s10803-010-1076-x
Kmet, L., Lee, R. C., & Cook, L. S. (2004). Standard quality assessment criteria for evaluating primary research papers from a variety of fields. Alberta Heritage Foundation for Medical Research. https://doi.org/10.7939/R37M04F16
Larson, R. W., Rcihards, M. H., Moneta, G., Holmbeck, G., & Ducket, E. (1996). Changes in adolescents’ daily interactions with their families from ages 10 to 18: Disengagement and transformation. Developmental Psychology, 32(4), 744–754. https://doi.org/10.1037/0012-1649.32.4.744
Lawson, W. (2020). Adaptive morphing and coping with social threat in autism: An autistic perspective. Journal of Intellectual Disability Diagnosis and Treatment, 8, 3. https://doi.org/10.6000/2292-2598.2020.08.03.29
Lee, L., Packer, T. L., Tang, S. H., & Girdler, S. (2008). Self-management education programs for age-related macular degeneration: A systematic review. Australasian Journal on Ageing, 27(4), 170–176. https://doi.org/10.1111/j.1741-6612.2008.00298.x
Locke, J., Ishijima, E. H., Kasari, C., & London, N. (2010). Loneliness, friendship quality and the social networks of adolescents with high functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10(2), 74–81. https://doi.org/10.1111/j.1471-3802.2010.01148.x
Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223–232. https://doi.org/10.1177/1362361312474121
McPherson, M., Smith-Lovin, L., & Cook, J. M. (2001). Birds of a feather: Homophily in social networks. Annual Review of Sociology, 27(1), 415–444. https://doi.org/10.1146/annurev.soc.27.1.415
Milner, V., McIntosh, H., Colvert, E., & Happé, F. (2019). A qualitative exploration of the female experience of autism spectrum disorder (ASD). Journal of Autism and Developmental Disorders, 49(6), 2389–2402. https://doi.org/10.1007/s10803-019-03906-4
Milton, D. E. M. (2012). On the ontological status of autism: The ‘double empathy problem.’ Disability & Society, 27(6), 883–887. https://doi.org/10.1080/09687599.2012.710008
Müller, E., Schuler, A., & Yates, G. B. (2008). Social challenges and supports from the perspective of individuals with asperger syndrome and other autism spectrum disabilities. Autism, 12(2), 173–190. https://doi.org/10.1177/1362361307086664
Murphy, M., Burns, J., & Kilbey, E. (2017). Using personal construct methodology to explore relationships with adolescents with autism spectrum disorder. Research in Developmental Disabilities, 70, 22–32. https://doi.org/10.1016/j.ridd.2017.08.006
Murray, D., Lesser, M., & Lawson, W. (2005). Attention, monotropism and the diagnostic criteria for autism. Autism, 9(2), 139–156. https://doi.org/10.1177/1362361305051398
Myles, O., Boyle, C., & Richards, A. (2019). The social experiences and sense of belonging in adolescent females with autism in mainstream school. Educational & Child Psychology, 36(4), 8. http://ovidsp.ovid.com/ovidweb.cgi?T=JS&PAGE=reference&D=psyc16&NEWS=N&AN=2019-71284-001
Newcomb, A., & Bagwell, C. (1995). Children’s friendship relations: A meta-analytic review. Psychological Bulletin, 117(2), 306–347. https://doi.org/10.1037/0033-2909.117.2.306
Noblit, G. W., & Hare, R. D. (1988). Meta-ethnography: Synthesizing qualitative studies. Sage Publications.
O’Day, B., & Killeen, M. (2002). Research on the lives of persons with disabilities: The emerging importance of qualitative research methodologies. Journal of Disability Policy Studies, 13(1), 9–15. https://doi.org/10.1177/10442073020130010201
O’Hagan, S., & Hebron, J. (2017). Perceptions of friendship among adolescents with autism spectrum conditions in a mainstream high school resource provision. European Journal of Special Needs Education, 32(3), 314–328. https://doi.org/10.1080/08856257.2016.1223441
Parker, J. (2006). Peer relationships, child development, and adjustment: A developmental psychopathology perspective. In D. Chicchetti & D. Cohen (Eds.), Developmental Psychopathology: Risk, Disorder, and Adaptation. John Wiley.
Petrina, N., Carter, M., & Stephenson, J. (2014). The nature of friendship in children with autism spectrum disorders: A systematic review. Research in Autism Spectrum Disorders, 8(2), 111–126. https://doi.org/10.1016/j.rasd.2013.10.016
Piccirillo, M. L., Taylor Dryman, M., & Heimberg, R. G. (2016). Safety behaviors in adults with social anxiety: Review and future directions. Behavior Therapy, 47(5), 675–687. https://doi.org/10.1016/j.beth.2015.11.005
Portway, S., & Johnson, B. (2003). Asperger syndrome and the children who ‘don’t quite fit. Early Child Development and Care, 173(4), 435–443. https://doi.org/10.1080/0300443032000079113
Potter, C. (2015). ‘I didn’t used to have much friends’: Exploring the friendship concepts and capabilities of a boy with autism and severe learning disabilities. British Journal of Learning Disabilities, 43(3), 208–218. https://doi.org/10.1111/bld.12098
Rapee, R. M., & Spence, S. H. (2004). The etiology of social phobia: Empirical evidence and an initial model. Clinical Psychology Review, 24(7), 737–767. https://doi.org/10.1016/j.cpr.2004.06.004
Reitz, A. K., Zimmermann, J., Hutteman, R., Specht, J., & Neyer, F. J. (2014). How peers make a difference: The role of peer groups and peer relationships in personality development. European Journal of Personality, 28(3), 279–288. https://doi.org/10.1002/per.1965
Rodebaugh, T., Lim, M., Fernandez, K., Langer, J., Weisman, J., Tonge, N., Levinson, C., & Shumaker, E. (2014). Self and friend’s differing views of social anxiety disorder’s effects on friendships. Journal of Abnormal Psychology, 123(4), 715–724. https://doi.org/10.1037/abn0000015
Rossetti, Z. (2015). Descriptors of friendship between secondary students with and without autism or intellectual and developmental disability. Remedial and Special Education, 36(3), 181–192. https://doi.org/10.1177/0741932514550370
Rotheram-Fuller, E., Kasari, C., Chamberlain, B., & Locke, J. (2010). Social involvement of children with autism spectrum disorders in elementary school classrooms. Journal of Child Psychology and Psychiatry, 51(11), 1227–1234. https://doi.org/10.1111/j.1469-7610.2010.02289.x
Rubin, K., Bukowski, W., Bowker, J., Lerner, J., & Hoboken, R. (2015). Children in peer groups. In M. H. Bornstein, T. Leventhal, & R. M. Lerner (Eds.), Handbook of child psychology and developmental science: Ecological settings and processes (pp. 175–222). John Wiley and Sons.
Ryan, C., Coughlan, M., Maher, J., Vicario, P., & Garvey, A. (2020).Perceptions of friendship among girls with autism spectrum disorders. European Journal of Special Needs Education, 1-15.https://doi.org/10.1080/08856257.2020.1755930
Sandstrom, M. J., & Cramer, P. (2003). Girls’ use of defense mechanisms following peer rejection. Journal of Personality, 71(4), 605–627. https://doi.org/10.1111/1467-6494.7104004
Sasson, N. J., & Morrison, K. E. (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers. Autism, 23(1), 50–59. https://doi.org/10.1177/1362361317729526
Schroeder, J. H., Cappadocia, M. C., Bebko, J. M., Pepler, D. J., & Weiss, J. A. (2014). Shedding light on a pervasive problem: A review of research on bullying experiences among children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1520–1534. https://doi.org/10.1007/s10803-013-2011-8
Sedgewick, F., Hill, V., & Pellicano, E. (2019). ‘It’s different for girls’: Gender differences in the friendships and conflict of autistic and neurotypical adolescents. Autism, 23(5), 1119–1132. https://doi.org/10.1177/1362361318794930
Sedgewick, F., Hill, V., Yates, R., Pickering, L., & Pellicano, E. (2016). Gender differences in the social motivation and friendship experiences of autistic and non-autistic adolescents. Journal of Autism and Developmental Disorders, 46(4), 1297–1306. https://doi.org/10.1007/s10803-015-2669-1
Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10(4), 234–247. https://doi.org/10.1002/mrdd.20038
Sosnowy, C., Silverman, C., Shattuck, P., & Garfield, T. (2019). Setbacks and successes: How young adults on the autism spectrum seek friendship. Autism in Adulthood, 1(1), 44–51. https://doi.org/10.1089/aut.2018.0009
Stillman, T. F., Baumeister, R. F., Lambert, N. M., Crescioni, A. W., DeWall, C. N., & Fincham, F. D. (2009). Alone and without purpose: Life loses meaning following social exclusion. Journal of Experimental Social Psychology, 45(4), 686–694. https://doi.org/10.1016/j.jesp.2009.03.007
Sumiya, M., Igarashi, K., & Miyahara, M. (2018). Emotions surrounding friendships of adolescents with autism spectrum disorder in Japan: A qualitative interview study. PLoS ONE, 13(2), e0191538–e0191538. https://doi.org/10.1371/journal.pone.0191538
Tierney, S., Burns, J., & Kilbey, E. (2016). Looking behind the mask: Social coping strategies of girls on the autistic spectrum. Research in Autism Spectrum Disorders, 23, 73–83. https://doi.org/10.1016/j.rasd.2015.11.013
Vine Foggo, R. S., & Webster, A. A. (2017). Understanding the social experiences of adolescent females on the autism spectrum. Research in Autism Spectrum Disorders, 35, 74–85. https://doi.org/10.1016/j.rasd.2016.11.006
Wei, M., Russell, D. W., & Zakalik, R. A. (2005). Adult attachment, social self-efficacy, self-disclosure, loneliness, and subsequent depression for freshman college students: A longitudinal study. Journal of Counseling Psychology, 52(4), 602–614. https://doi.org/10.1037/0022-0167.52.4.602
Whitehouse, A. J. O., Durkin, K., Jaquet, E., & Ziatas, K. (2009). Friendship, loneliness and depression in adolescents with Asperger’s syndrome. Journal of Adolescence, 32(2), 309–322. https://doi.org/10.1016/j.adolescence.2008.03.004