Evidence-Based Neuroethics for Neurodevelopmental Disorders

Racine, 2008, Neuroethics, 495 Illes, 2007, Empirical neuroethics, EMBO Rep, 8, S57, 10.1038/sj.embor.7401007 Racine, 2010 Moreno, 1999, Bioethics is a naturalism, 5 Racine, 2008, Which naturalism for bioethics?, Bioethics, 22, 92, 10.1111/j.1467-8519.2007.00604.x Wolf, 1994, Shifting paradigms in bioethics and health law: The rise of a new pragmatism, Am J Law Med, 20, 395, 10.1017/S0098858800006821 Miller, 1996, Clinical pragmatism: John Dewey and clinical ethics, J Contemp Health Law Policy, 13, 27 Brendel, 2006 Bernat, 2008 Racine, 2010, Contemporary neuroscience in the media, Soc Sci Med, 71, 725, 10.1016/j.socscimed.2010.05.017 Viner, 1999, Transition from paediatric to adult care, Arch Dis Child, 81, 271, 10.1136/adc.81.3.271 Dommergues, 2003, Transition from pediatric to adult care in severe chronic diseases in children, Arch Pediatr, 10, 295, 10.1016/S0929-693X(03)00041-1 Reiss, 2005, Health care transition: Youth, family, and provider perspectives, Pediatrics, 115, 112, 10.1542/peds.2004-1321 Binks, 2007, What do we really know about the transition to adult-centered health care?, Arch Phys Med Rehabil, 88, 1064, 10.1016/j.apmr.2007.04.018 Tiffreau, 2006, Transition in health care from youth to adulthood for disabled people, Ann Readapt Med Phys, 49, 652, 10.1016/j.annrmp.2006.06.003 Young, 2007, Youth and young adults with cerebral palsy: Their use of physician and hospital services, Arch Phys Med Rehabil, 88, 696, 10.1016/j.apmr.2007.03.005 Tervo, 2002, Medical students' attitudes toward persons with disability: A comparative study, Arch Phys Med Rehabil, 83, 1537, 10.1053/apmr.2002.34620 Russell, 1993, A study of the barriers to dental care in a sample of patients with cerebral palsy, Community Dent Health, 10, 57 Martin, 2005, Cerebral palsy: What do medical students know and believe?, J Paediatr Child Health, 41, 43, 10.1111/j.1440-1754.2005.00534.x Bernat, 2004, Ethical aspects of determining and communicating prognosis in critical care, Neurocrit Care, 1, 107, 10.1385/NCC:1:1:107 Glass, 2002, Ethical issues in neonatal intensive care: Perspectives for the neurologist, Semin Pediatr Neurol, 9, 35, 10.1053/spen.2002.30335 Shevell, 1999, Neonatal neurologic prognostication: The asphyxiated term newborn, Pediatr Neurol, 21, 776, 10.1016/S0887-8994(99)00102-2 McCullough, 2005, Neonatal ethics at the limits of viability, Pediatrics, 116, 1019, 10.1542/peds.2005-1901 Astin, 1998, Why patients use alternative medicine: Results of a national study, JAMA, 279, 1548, 10.1001/jama.279.19.1548 Dunning, 2003, Complementary therapies and diabetes, Complement Ther Nurs Midwifery, 9, 74, 10.1016/S1353-6117(02)00143-9 Kemper, 1999, Holistic pediatrics: A research agenda, Pediatrics, 103, 902 Cohen, 2005, Complementary therapies in pediatrics: A legal perspective, Pediatrics, 115, 774, 10.1542/peds.2004-1093 Kaptchuk, 2002, The placebo effect in alternative medicine: Can the performance of a healing ritual have clinical significance?, Ann Intern Med, 136, 817, 10.7326/0003-4819-136-11-200206040-00011 Kemper, 2008, The use of complementary and alternative medicine in pediatrics, Pediatrics, 122, 1374, 10.1542/peds.2008-2173 Nickel, 1996, Controversial therapies for young children with developmental disabilities, Infants Young Child, 8, 29, 10.1097/00001163-199604000-00005 Hurvitz, 2003, Complementary and alternative medicine use in families of children with cerebral palsy, Dev Med Child Neurol, 45, 364, 10.1111/j.1469-8749.2003.tb00414.x Levy, 2003, Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder, J Dev Behav Pediatr, 24, 418, 10.1097/00004703-200312000-00003 McCann, 2006, Survey of paediatric complementary and alternative medicine use in health and chronic illness, Arch Dis Child, 91, 173, 10.1136/adc.2004.052514 Pitetti, 2001, Complementary and alternative medicine use in children, Pediatr Emerg Care, 17, 165, 10.1097/00006565-200106000-00004 Wong, 2006, Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders, J Autism Dev Disord, 36, 901, 10.1007/s10803-006-0131-0 Ottolini, 2001, Complementary and alternative medicine use among children in the Washington, DC area, Ambul Pediatr, 1, 122, 10.1367/1539-4409(2001)001<0122:CAAMUA>2.0.CO;2 2001, Counseling families who choose complementary and alternative medicine for their child with chronic illness or disability, Pediatrics, 107, 598 Bulen, 2003, Greenwall Bioethics Award, J Leg Med, 24, 331 1997, Clinical practice guidelines in complementary and alternative medicine. An analysis of opportunities and obstacles. Practice and policy Guidelines Panel, National Institutes of Health Office of Alternative Medicine, Arch Fam Med, 6, 149, 10.1001/archfami.6.2.149 McCaffrey, 2007, Understanding patient preference for integrative medical care: Results from patient focus groups, J Gen Intern Med, 22, 1500, 10.1007/s11606-007-0302-5 Simpson, 2001, Complementary medicine use in children: Extent and reasons, Br J Gen Pract, 51, 914 Di Pietro NC, Whiteley l, Illes J: Drawing on science? Treatment services and products for neurodevelopment disorders on the internet. Neuroethics Society Meeting, November 13, 2010, San Diego, CA (abstract) Semere, 2003, A pediatric surgery study: Parent usage of the Internet for medical information, J Pediatr Surg, 38, 560, 10.1053/jpsu.2003.50122 Caspi, 2005, Lack of standards in informed consent in complementary and alternative medicine, Complement Ther Med, 13, 123, 10.1016/j.ctim.2005.03.004 Aylott, 2001, Understanding and listening to people with autism, Br J Nurs, 10, 166, 10.12968/bjon.2001.10.3.12361 Barnbaum, 2008 Sacks, 1995 Hagerman, 2010, Fragile X and autism: Intertwined at the molecular level leading to targeted treatments, Mol Autism, 1, 12, 10.1186/2040-2392-1-12