Ethics at the end of life in the newborn intensive care unit: Conversations and decisions

Katz, 2016, Committee on Bioethics. Informed consent in decision-making in pediatric practice, Pediatrics, 138, 10.1542/peds.2016-1485 Fuedtner, 2007, Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making, Pediatr Clin, 54, 583 Eaton, 2022, Pediatric shared decision-making for simple and complex decisions: findings from a delphi panel, Pediatrics, 150, 10.1542/peds.2022-057978 Gooding, 2011, Family support and family-centered care in the neonatal intensive care unit: origins, advances, impact, Semin Perinatol, 35, 20, 10.1053/j.semperi.2010.10.004 2007, vol. 119, 401 Mercurio, 2022, The path more easily reversed: postponed withholding at borderline viability, Am J Bioeth, 22, 35, 10.1080/15265161.2022.2123985 Buchanan, 1990, 94 Kopelman, 2010, Using the best interest standard in treatment decisions for young children, 22 Weise, 2017, Committee on Bioethics. Guidance on forgoing life-sustaining medical treatment, Pediatrics, 140, 10.1542/peds.2017-1905 Cummings, 2012, Ethics of emerging technologies and their transition to accepted practice: intestinal transplant for short bowel syndrome, J Perinatol, 32, 752, 10.1038/jp.2012.69 Mercurio, 2021, Critical decision-making in neonatology and pediatrics: the I-P-O framework, J Perinatol, 41, 173, 10.1038/s41372-020-00841-6 Gillam, 2016, The zone of parental discretion: an ethical tool for dealing with disagreement between parents and doctors about medical treatment for a child, Clin Ethics, 11, 1, 10.1177/1477750915622033 Mercurio, 2009, The ethics of newborn resuscitation, Semin Perinatol, 33, 354, 10.1053/j.semperi.2009.07.002 2006, vol. 117, e955 Sullivan, 2020, After an end‐of‐life decision: parents' reflections on living with an end‐of‐life decision for their child, J Paediatr Child Health, 56, 1060, 10.1111/jpc.14816 Brody, 1997, Withdrawing intensive life-sustaining treatment: recommendations for compassionate clinical management, N Engl J Med, 336, 652, 10.1056/NEJM199702273360910 Pasman, 2005, Discomfort in nursing home patients with severe dementia in whom artificial nutrition and hydration is forgone, Arch Intern Med, 165, 1729, 10.1001/archinte.165.15.1729 Lazzara, 2023, Observation of child experience during discontinuing of medically provided nutrition and hydration, J Pain Manage, 65, 155 Diekema, 2009, Clinical report--Forgoing medically provided nutrition and hydration in children, vol. 124, 813 1994, vol. 93, 532 Larcher, 2015, Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice, Arch Dis Child, 100, s1, 10.1136/archdischild-2014-306666 Diekema, 2004, Parental refusals of medical treatment: the harm principle as threshold for state intervention, Theor Med Bioeth, 25, 243, 10.1007/s11017-004-3146-6 Hester, 2019, Offering the reasonable interests standard in response to Ross's analysis of the best interests standard, J Clin Ethics, 3, 196, 10.1086/JCE2019303196