Ethical, legal, and social implications of incorporating genomic information into electronic health records

Genetics in Medicine - Tập 15 - Trang 810-816 - 2013
Ribhi Hazin1, Kyle B. Brothers2,3, Bradley A. Malin4,5,6, Barbara A. Koenig7,8, Saskia C. Sanderson9, Mark A. Rothstein3, Marc S. Williams10, Ellen W. Clayton6, Iftikhar J. Kullo
1Department of Internal Medicine, Wayne State University School of Medicine, Detroit, Michigan, USA
2Department of Pediatrics, University of Louisville School of Medicine, Louisville, Kentucky USA
3Institute for Bioethics, Health Policy, and Law, University of Louisville School of Medicine, Louisville, Kentucky, USA
4Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee, USA
5Department of Electrical Engineering and Computer Science, School of Engineering, Vanderbilt University, Nashville, Tennessee, USA
6Center for Biomedical Ethics and Society, Vanderbilt University, Nashville, Tennessee, USA
7Department of Social and Behavioral Sciences, Institute for Health and Aging, University of California, San Francisco, San Francisco, California, USA
8Department of Anthropology, History, and Social Medicine, University of California, San Francisco, San Francisco, California, USA
9Genetics and Genomic Sciences, The Charles Bronfman Institute for Personalized Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA
10Genomic Medicine Institute, Geisinger Health System, Danville, Pennsylvania, USA

Tài liệu tham khảo

National Human Genome Research Institute McGuire Hoffman Worthey Mardis Mardis Cheng Kreso Link McDermott Iyer Kullo Manolio Evans Jha Ash Marcotte de Ligt Berg Sax McClellan Collins Personalized health care. 2008. http://www.hhs.gov/myhealthcare/. Accessed 18 December 2012. Icahn School of Medicine at Mount Sinai. Whole Genome Sequencing and You. 2012. https://www.youtube.com/watch?v=IXamRS85hXU&hd=1. Delbanco About ABGC. http://www.abgc.net/ABGC/AmericanBoardofGeneticCounselors.asp. Accessed 2 April 2013. Giarelli Galbraith Juengst Brierley Thurston Riley Hofman Fargher Starren Westbrook Ormond Biesecker Leventhal Scheuner members of the RAND Molecular Genetic Test Report Advisory Board Bitton Health Information Exchange (HIE): Interoperability Basics Training Course. http://www.healthit.gov/providers-professionals/interoperability-basics-training-courses. Accessed 11 March 2013. Ruotsalainen Boxwala Rothstein Green, 2013, ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing, Genet Med, 15, 294 Gottesman O, Kuivaniemi H, Tromp G, et al. The Electronic Medical Records and Genomics (eMERGE) Network: past, present, and future. Genet Med 2013;. Scott Pulley Hicks O’Donnell Chen Facio Murphy Facio Allyse Cho Clayton Richardson Wolf Morreim Ossorio Kohane Pyeritz Cancer Genetics Risk Assessment and Counseling (PDQ): Ethical, Legal, and Social Implications. http://www.cancer.gov/cancertopics/pdq/genetics/risk-assessment-and-counseling/HealthProfessional/page6. Accessed 28 March 2013. Offit Rothstein, 2012, Health information technology and physicians’ duty to notify patients of new medical developments, Hous J Health L Policy, 12, 93 Safran Bunnik Diergaarde Rothstein Allain Klitzman Chan EM, Lam PE, Mitchell JC. Understanding the challenges with medical data segmentation for privacy. Health Tech'13, 2013. https://www.usenix.org/conference/healthtech13/understanding-challenges-medical-data-segmentation-privacy. Rothstein Professional disclosures of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure. Am J Hum Genet 1998:62(2):474–483.
Thông tin
Thông tin xuất bản

Genetics in Medicine

Tập 15

810-816

Thông tin tác giả