El viaje del paciente con fibromialgia en Latinoamérica

Reumatología Clínica - Tập 20 - Trang 32-42 - 2024
Teresa Otón1, Osvaldo Daniel Messina2, Daniel G. Fernández Ávila3, Manuel Robles San Román4, Darío Mata5, Constanza Arguissain6, Jorge Miguel Galindo Guzmán7, Marina Pérez8, Loreto Carmona1
1Instituto de Salud Musculoesquelética, InMusc, Madrid, España
2Investigaciones Reumatológicas y Osteológicas (IRO), Unidad Docente de postgrado en Reumatología, Universidad de Buenos Aires, Buenos Aires, Argentina
3Unidad de Reumatología, Pontificia Universidad Javeriana, Hospital Universitario San Ignacio, Bogotá, Colombia
4Centro Médico de Toluca, Metepec, México
5DOM Centro de Reumatología, Buenos Aires, Argentina
6Investigaciones Reumatológicas y Osteológicas (IRO), Buenos Aires, Argentina
7Clínica del Dr. Jorge Galindo, México DF, México
8Pontia Design, Berlín, Alemania

Tài liệu tham khảo

White, 2001, Classification, epidemiology, and natural history of fibromyalgia, Curr Pain Headache Rep, 5, 320, 10.1007/s11916-001-0021-2 Wolfe, 1995, The prevalence and characteristics of fibromyalgia in the general population, Arthritis Rheum, 38, 19, 10.1002/art.1780380104 Mease, 2005, Fibromyalgia syndrome: Review of clinical presentation, pathogenesis, outcome measures, and treatment, J Rheumatol Suppl., 75, 6 Rivera, 2006, Documento de consenso de la Sociedad Española de Reumatología sobre la fibromyalgia [Article in Spanish], Reumatol Clin, 2, S55, 10.1016/S1699-258X(06)73084-4 Choy, 2010, A patient survey of the impact of fibromyalgia and the journey to diagnosis, BMC Health Serv Res, 10, 102, 10.1186/1472-6963-10-102 Arnold, 2008, Patient perspectives on the impact of fibromyalgia, Patient Educ Couns, 73, 114, 10.1016/j.pec.2008.06.005 Perrot, 2008, Fibromyalgia syndrome: A relevant recent construction of an ancient condition?, Curr Opin Support Palliat Care, 2, 122, 10.1097/SPC.0b013e3283005479 White, 2002, Chronic widespread musculoskeletal pain with or without fibromyalgia: psychological distress in a representative community adult sample, J Rheumatol, 29, 588 Hughes, 2006, The impact of a diagnosis of fibromyalgia on health care resource use by primary care patients in the UK: An observational study based on clinical practice, Arthritis Rheum, 54, 177, 10.1002/art.21545 Arnold, 2011, Improving the recognition and diagnosis of fibromyalgia, Mayo Clin Proc, 86, 457, 10.4065/mcp.2010.0738 Hayes, 2010, Fibromyalgia and the therapeutic relationship: Where uncertainty meets attitude, Pain Res Manag, 15, 385, 10.1155/2010/354868 Hughes, 2016, Nurse Practitioners’ Education, Awareness, and Therapeutic Approaches for the Management of Fibromyalgia, Orthop Nurs, 35, 317, 10.1097/NOR.0000000000000277 Mohanty, 2016, Fibromyalgia syndrome care of Iraq- and Afghanistan-deployed Veterans in Veterans Health Administration, J Rehabil Res Dev, 53, 45, 10.1682/JRRD.2014.10.0265 Macfarlane, 2017, EULAR revised recommendations for the management of fibromyalgia, Ann Rheum Dis, 76, 318, 10.1136/annrheumdis-2016-209724 Clark, 2013, A patient and physician survey of fibromyalgia across Latin America and Europe, BMC Musculoskelet Disord, 14, 188, 10.1186/1471-2474-14-188 Perrot, 2012, Survey of physician experiences and perceptions about the diagnosis and treatment of fibromyalgia, BMC Health Serv Res, 12, 356, 10.1186/1472-6963-12-356 Buskila, 1997, Awareness of diagnostic and clinical features of fibromyalgia among family physicians, Fam Pract, 14, 238, 10.1093/fampra/14.3.238 Halvorsrud, 2018, Managing Complex Patient Journeys in Healthcare, 329 Gualandi, 2019, Exploring the hospital patient journey: What does the patient experience?, PLoS One, 14, e0224899, 10.1371/journal.pone.0224899 Oton, 2021, The journey of the non-radiographic axial spondyloarthritis patient: the perspective of professionals and patients, Clin Rheumatol, 40, 591, 10.1007/s10067-020-05269-z Mengshoel, 2018, Diagnostic experience of patients with fibromyalgia - A meta-ethnography, Chronic Illn, 14, 194, 10.1177/1742395317718035 Sim, 2008, Illness experience in fibromyalgia syndrome: A metasynthesis of qualitative studies, Soc Sci Med, 67, 57, 10.1016/j.socscimed.2008.03.003 Juuso, 2014, Meanings of being received and met by others as experienced by women with fibromyalgia, Qual Health Res, 24, 1381, 10.1177/1049732314547540 Fernández-Ávil, 2020, Conceptos y percepciones acerca del diagnóstico y tratamiento de la fibromialgia en un grupo de reumatólogos colombianos, Rev Colomb Reumatol., 27 Fernández-Avila, 2020, Conceptos y percepciones acerca del diagnóstico y tratamiento de la fibromialgia en un grupo de médicos especialistas en medicina física y rehabilitación en Colombia, Rehabilitación, 54, 244, 10.1016/j.rh.2020.02.006 Vincent, 2013, Early experience with a brief, multimodal, multidisciplinary treatment program for fibromyalgia, Pain Manag Nurs, 14, 228, 10.1016/j.pmn.2011.05.001 Williams, 2010, Internet-enhanced management of fibromyalgia: A randomized controlled trial, Pain, 151, 694, 10.1016/j.pain.2010.08.034 Dumit, 2006, Illnesses you have to fight to get: Facts as forces in uncertain, emergent illnesses, Soc Sci Med, 62, 577, 10.1016/j.socscimed.2005.06.018 Glenton, 2003, Chronic back pain sufferers--striving for the sick role, Soc Sci Med, 57, 2243, 10.1016/S0277-9536(03)00130-8 Nettleton, 2006, ’I just want permission to be ill’: Towards a sociology of medically unexplained symptoms, Soc Sci Med, 62, 1167, 10.1016/j.socscimed.2005.07.030 Werner, 2004, ’I am not the kind of woman who complains of everything’: Illness stories on self and shame in women with chronic pain, Soc Sci Med, 59, 1035, 10.1016/j.socscimed.2003.12.001 Asbring, 2002, Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia, Qual Health Res, 12, 148 Asbring, 2003, Ideal versus reality: Physicians perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia, Soc Sci Med, 57, 711, 10.1016/S0277-9536(02)00420-3 Hadler, 1996, If you have to prove you are ill, you can’t get well. The object lesson of fibromyalgia, Spine (Phila Pa 1976), 21, 2397, 10.1097/00007632-199610150-00021 Looper, 2004, Perceived stigma in functional somatic syndromes and comparable medical conditions, J Psychosom Res, 57, 373, 10.1016/S0022-3999(04)00447-7 Madden, 2006, Creating meaning in fibromyalgia syndrome, Soc Sci Med, 63, 2962, 10.1016/j.socscimed.2006.06.020 Salmon, 1999, Patients’ perceptions of medical explanations for somatisation disorders: Qualitative analysis, BMJ., 318, 372, 10.1136/bmj.318.7180.372 Soderberg, 1999, Struggling for dignity: the meaning of women's experiences of living with fibromyalgia, Qual Health Res, 9, 575, 10.1177/104973299129122090 Deale, 2001, Patients’ perceptions of medical care in chronic fatigue syndrome, Soc Sci Med, 52, 1859, 10.1016/S0277-9536(00)00302-6 Werner, 2003, It is hard work behaving as a credible patient: Encounters between women with chronic pain and their doctors, Soc Sci Med, 57, 1409, 10.1016/S0277-9536(02)00520-8 Durif-Bruckert, 2015, Medication and the patient-doctor relationship: A qualitative study with patients suffering from fibromyalgia, Health Expect., 18, 2584, 10.1111/hex.12230 Geest, 1996, The Anthropology of Pharmaceuticals: A Biographical Approach, Annu Rev Anthropol, 25, 153, 10.1146/annurev.anthro.25.1.153